Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 aww dixie,, that is WONDERFUL!!!of course you can stay a member,, please take good care of yourself!dixierose41 <dixierose41@...> wrote: Well I told everyone that when I got the results I would let you all know. I talked to the doctors office yesterday and they said that the test came back with no virus at all, so evidently it cleared itself. I don't understand how some can get so lucky as for this to happen and then others have such a hard time. I feel blessed but at the same time feel bad for the ones who have to suffer endlessly with treatments and the like. All they told me was to keep a periodic watch over my liver enzymes for changes. I would like to continue to remain a member of the group if that is ok, even though I have cleared it without going thru what i know a lot of you have. Thanks so much for being here for me while I waited and wondered. DixieroseJackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2006 Report Share Posted May 3, 2006 You bet you can stay a member. We need advocates and people who can speak for us even if you don't have the disease. Your position here will be main support person!!!! And you can tell others of your experience!! Love JanetJackie on <redjaxjm@...> wrote: aww dixie,, that is WONDERFUL!!!of course you can stay a member,, please take good care of yourself!dixierose41 <dixierose41@...> wrote: Well I told everyone that when I got the results I would let you all know. I talked to the doctors office yesterday and they said that the test came back with no virus at all, so evidently it cleared itself. I don't understand how some can get so lucky as for this to happen and then others have such a hard time. I feel blessed but at the same time feel bad for the ones who have to suffer endlessly with treatments and the like. All they told me was to keep a periodic watch over my liver enzymes for changes. I would like to continue to remain a member of the group if that is ok, even though I have cleared it without going thru what i know a lot of you have. Thanks so much for being here for me while I waited and wondered. DixieroseJackie There are souls in this world which have the gift of finding joy everywhere and of leaving it behind them when they go." -Frederick Faber Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2006 Report Share Posted June 23, 2006 Keep us posted. Trust you are measureing BP at home. May your pressure be low! C.E. Grim, B.S., M.S., M.D. Specializing in Difficult to Control High Blood Pressure and the Physiology and History of Survival During Hard Times and Heart Disease today. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2006 Report Share Posted July 10, 2006 --- Prayers going out to you...........Happy Birthday !! Lynne mom to sis -- In , " " <mlcboyd@...> wrote: > > Hi everyone, > > I've been quietly reading posts and learning. I'm so sorry that > your children have gastric issues. We have been very lucky in that > department. We have had a really rough time lately with the mouth > ulcers and screaming pain associated with them. I took to > Ped. to day because he was up most of last night screaming in pain > even after I gave him some codeine. By the time we got there this > morning his whole right side of his face and lips was swollen. No > major ulcers to see so we went to the dentist. No dental problems. > Apparently, I was under the wrong assumption that the only antibody > that made was mumps. I've learned to day that it is Rubella. > His doctor called back and said that she thinks he has mumps or a > mumps like virus. We are treating the symptoms. > > The good news is that she finally gave me a diagnosis on his immune > deficiency. She believes but isn't sure that he has IgG2 and IgG4 > deficiency, which according to the literature most (but not all) > kids outgrow this problem bay age 6 or 10. I know that there are no > guarantees but any possiblity of outgrowing is phenomenal. I've > always said that I felt like he'd outgrow this but now there's > something to hang on. > > Hope everybody is having a great day as today is my 35th birthday > and I've spent it at the doctors offices. I guess thats what > happens when you quit celebrating them..the day just quits > celebrating you. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2006 Report Share Posted September 26, 2006 That is such wonderful news!!! Reading your message, put a 'BIG' smile on my face too. Thank you for sharing that with us. We are very happy for you and pray that Anthoney keeps growing. Mina and Farah gigiabc@... wrote: Hi Everyone, Just wanted to share 's good news. We went for his check up yesterday to Cleveland. He grew 1 1/2 inches and gained 5 pounds in five months. was thrilled!!!! He wears the Providence night brace and his curve is staying at 36 degrees. He hasn't grown in awhile and the doctor was happy that with this growth his curve didn't get worse. He is 9 and has been wearing the brace for about 3 years. doesn't like that he is so small compared to his classmates but yesterday he had a smile on his face from ear to ear!!!!!!! Gloria and Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2006 Report Share Posted September 27, 2006 Great news Gloria! I am glad felt so good about the appointment!! Yay! Noelle (12-2-01) Ian (8-15-04) good news Hi Everyone, Just wanted to share 's good news. We went for his check up yesterday to Cleveland. He grew 1 1/2 inches and gained 5 pounds in five months. was thrilled!!!! He wears the Providence night brace and his curve is staying at 36 degrees. He hasn't grown in awhile and the doctor was happy that with this growth his curve didn't get worse. He is 9 and has been wearing the brace for about 3 years. doesn't like that he is so small compared to his classmates but yesterday he had a smile on his face from ear to ear!!!!!!! Gloria and Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2006 Report Share Posted October 9, 2006 Great..my X was able to clear and he had stage 4...and is still clear after 2 1/2 yrs..he is hiv+ also..and the liver at least can repair some of its self...geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2006 Report Share Posted October 9, 2006 Wow, Thank God, that is just the BEST news! Blessings, Sheena kathy przybyla <kathypfmp@...> wrote: First I want to thank everyone who had sent words ofencouragement about my husband's bloodwork and ct.Just home from the doctor's...NO Cancer! He isprogressing with his cirhossis, and will have morefrequent visits-but we are both elated!Thank you everyone!Kathy--- us4heavenboundaol wrote:> God Bless you and your hubby, geri> > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 AWESOME,,, just AWESOME!!! Real answers to real prayers!kathy przybyla <kathypfmp@...> wrote: First I want to thank everyone who had sent words ofencouragement about my husband's bloodwork and ct.Just home from the doctor's...NO Cancer! He isprogressing with his cirhossis, and will have morefrequent visits-but we are both elated!Thank you everyone!Kathy--- us4heavenboundaol wrote:> God Bless you and your hubby, geri> > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 Kathy, I am doing the happy dance for you. Or as anne says the "Kanga dance" Dang Aussie and their funny dances. LOL But that is indeed good news. Give Hubbie a big ole sloppy Kiss from Janet and tell him that I keep him in my prayers. And that I am cheering for him. Love Janetkathy przybyla <kathypfmp@...> wrote: First I want to thank everyone who had sent words ofencouragement about my husband's bloodwork and ct.Just home from the doctor's...NO Cancer! He isprogressing with his cirhossis, and will have morefrequent visits-but we are both elated!Thank you everyone!Kathy--- us4heavenboundaol wrote:> God Bless you and your hubby, geri> > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 Thank you Janet! Will do! Bet he will sleep for the next 2 days! I know I could have when I got up this morning for work! Thank you for the happy dance! Even our puppies are dancing on this end! Make it a great day! Luv, Kathy --- Janet <doc_jade@...> wrote: > Kathy, > I am doing the happy dance for you. Or as anne > says the " Kanga dance " > Dang Aussie and their funny dances. LOL > But that is indeed good news. Give Hubbie a big > ole sloppy Kiss from Janet and tell him that I keep > him in my prayers. And that I am cheering for him. > Love > Janet > > kathy przybyla <kathypfmp@...> wrote: > First I want to thank everyone who had > sent words of > encouragement about my husband's bloodwork and ct. > > Just home from the doctor's...NO Cancer! He is > progressing with his cirhossis, and will have more > frequent visits-but we are both elated! > > Thank you everyone! > Kathy > > --- us4heavenbound@... wrote: > > > God Bless you and your hubby, geri > > > > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 Oh Kathy I am so happy to hear that he doesnt have hcc . That's a great sign Good News First I want to thank everyone who had sent words ofencouragement about my husband's bloodwork and ct.Just home from the doctor's...NO Cancer! He isprogressing with his cirhossis, and will have morefrequent visits-but we are both elated!Thank you everyone!Kathy--- us4heavenboundaol wrote:> God Bless you and your hubby, geri> > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 Oh Kathy I am so happy to hear that he doesnt have hcc . That's a great sign Good News First I want to thank everyone who had sent words ofencouragement about my husband's bloodwork and ct.Just home from the doctor's...NO Cancer! He isprogressing with his cirhossis, and will have morefrequent visits-but we are both elated!Thank you everyone!Kathy--- us4heavenboundaol wrote:> God Bless you and your hubby, geri> > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 Thank you so much for the wonderful words! He is not nearly out of the woods just yet, but the worst case senario is not happening now!!! He has slept since we got home from the doctors...I know he hasn't slept well for a few weeks. All of your prayers and well wishes are most appreciated! And will not be forgotten! Everyone out there-keep up the hard work...even when you don't want to anymore! This is a fantastic group and I don't know if I could have gotten this far without you! God Bless! --- elizabethnv1 <elizabethnv1@...> wrote: > Oh Kathy I am so happy to hear that he doesnt have > hcc . That's a great sign > Good News > > > First I want to thank everyone who had sent words > of > encouragement about my husband's bloodwork and ct. > > Just home from the doctor's...NO Cancer! He is > progressing with his cirhossis, and will have more > frequent visits-but we are both elated! > > Thank you everyone! > Kathy > > --- us4heavenbound@... wrote: > > > God Bless you and your hubby, geri > > > > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 Thank you so much for the wonderful words! He is not nearly out of the woods just yet, but the worst case senario is not happening now!!! He has slept since we got home from the doctors...I know he hasn't slept well for a few weeks. All of your prayers and well wishes are most appreciated! And will not be forgotten! Everyone out there-keep up the hard work...even when you don't want to anymore! This is a fantastic group and I don't know if I could have gotten this far without you! God Bless! --- elizabethnv1 <elizabethnv1@...> wrote: > Oh Kathy I am so happy to hear that he doesnt have > hcc . That's a great sign > Good News > > > First I want to thank everyone who had sent words > of > encouragement about my husband's bloodwork and ct. > > Just home from the doctor's...NO Cancer! He is > progressing with his cirhossis, and will have more > frequent visits-but we are both elated! > > Thank you everyone! > Kathy > > --- us4heavenbound@... wrote: > > > God Bless you and your hubby, geri > > > > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2006 Report Share Posted October 28, 2006 Bonnie and Rich - Great News and we are so happy for both of you. It was and is a tough fight but well worth it. All The Best to Both Of You. Love and Hugs. Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2006 Report Share Posted October 28, 2006 Great News!! I know except for feeling sick, your household is a happy with this news!! I don't know what to say other than help him stay focused on the end result, if a semi-negative report comes back during the tear. Happy for you! DelimanBonniy <bonniy@...> wrote: Just thought I'd send a little letter about my hubby and his 2nd go round on tx well this time around he is really feeling all the side effects of treatment, the joint pains, itching, mood swings (oh boy those mood swings), headaches, nausea, and total exaustion, other than that he is still working and doing pretty good He had his 10 week check up a couple of weeks ago and came back with <5 virus load YEAAAAAAAAA this means we can now start counting the 48 weeks he has to go, at 1 shot a day, this is going to be a long year for him now the next step is to hope and that he is undetectable after treatment, and does not relapse againLove to all Bonnie & Rich Get your email and see which of your friends are online - Right on the new .com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2006 Report Share Posted October 28, 2006 His White blood count is a little low but he is on neupogen 1 every other week his red count is normal so far Bonnie The journey begins and if his red or white count goes down which it probably will he can get shots to keep it up.Sounds like everything is running along normal.How is his blood count holding up. Gail he is undetectable after treatment, and does not relapse againLove to all Bonnie & Rich .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2006 Report Share Posted October 28, 2006 The journey begins and if his red or white count goes down which it probably will he can get shots to keep it up.Sounds like everything is running along normal.How is his blood count holding up. Gail Good news Just thought I'd send a little letter about my hubby and his 2nd go round on tx well this time around he is really feeling all the side effects of treatment, the joint pains, itching, mood swings (oh boy those mood swings), headaches, nausea, and total exaustion, other than that he is still working and doing pretty good He had his 10 week check up a couple of weeks ago and came back with <5 virus load YEAAAAAAAAA this means we can now start counting the 48 weeks he has to go, at 1 shot a day, this is going to be a long year for him now the next step is to hope and that he is undetectable after treatment, and does not relapse againLove to all Bonnie & Rich Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2006 Report Share Posted October 29, 2006 That is great to hear cause that means the doctor is staying on top of things.I am glad to hear that he is on nueopogen.It is good to build things up.Later they might have to give him one shot a wk.Sounds like you guys have things under control. Gail Re: Good news His White blood count is a little low but he is on neupogen 1 every other week his red count is normal so far Bonnie The journey begins and if his red or white count goes down which it probably will he can get shots to keep it up.Sounds like everything is running along normal.How is his blood count holding up. Gail he is undetectable after treatment, and does not relapse againLove to all Bonnie & Rich .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2006 Report Share Posted December 19, 2006 Cool! Thanks for posting this! It turns out I can't afford the Supartz shots in time for me to start college next semester, but the chondroitin/hyaluronic acid supplement I'm taking does seem to be helping relieve some of my knee pain -- finally some good news for my knees! Lucinda Ann <ruby2zdy@...> wrote: http://www.medscape.com/viewarticle/548750?src=mp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2007 Report Share Posted January 18, 2007 Great news about your hubby le! And so nice to see that your dentist didn't get all bent out of shape too! I'm sure you're not the first and won't be the last HepC+ patient he has. Luv anne good news My husband tested HCV negative! One less thing to worry about!! I did phone my dentist's office the other day, let them know my status. Luckily I was treated with the utmost of respect at my appointment later in the day. Just walking through it, le Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2007 Report Share Posted January 19, 2007 Great news, le! I know getting those test results on those closest to us is really reassuring. I remember waiting for my then 5 year old son's. Even though I had been reassured that chances were slim that he had contracted it - what a relief! Good news on the dental front, too. I'm so glad that your dentist is a professional. Keep walking - you are doing a great job! hugs, karen > > > > hello everyone! > > I got my 12 week viral load results yesterday and I'm > undetectable! I see a light at the end of thhe tunnel! Only twelve > more weeks to go... Hope everyone is hanging in there. > > Kerri > > > > > > --------------------------------- > > No need to miss a message. Get email on-the-go > > with for Mobile. Get started. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2007 Report Share Posted January 23, 2007 Great news, le, and also what a responsible choice.. I know it IS a choice, to tell, or not to tell, but personally I feel better to let someone know that is messing with my blood. I know Health Care Professionals are suppose to be careful, but human error happens and many may not have gotten the virus if they were only alerted. Not only do I "tell", I also wear a medi-alert. I would not ever wish to pass this virus on to anyone else.. Keep on walkin' Sheena le <kdaniellem@...> wrote: My husband tested HCV negative! One less thing to worry about!! I did phone my dentist's office the other day, let them know my status. Luckily I was treated with the utmost of respect at my appointment later in the day. Just walking through it, le When our eyes see our hands doing the work of our hearts, the circle ofcreation is completed,Inside us, the doors of our souls fly open and love steps forth to healeverything in sight."- Bridge -----Original Message-----From: Hepatitis C [mailto:Hepatitis C ]On Behalf Of LeeSent: Thursday, January 18, 2007 4:23 AMHepatitis C Subject: Re: undetectable GREAT NEWS KERRI!!! That 12 week test makes it all worthwhile.Your halfway there.LEE>> hello everyone!> I got my 12 week viral load results yesterday and I'm undetectable! I see a light at the end of thhe tunnel! Only twelve more weeks to go... Hope everyone is hanging in there. > Kerri> > > ---------------------------------> No need to miss a message. Get email on-the-go > with for Mobile. Get started.> Now that's room service! Choose from over 150,000 hotels in 45,000 destinations on Travel to find your fit. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2007 Report Share Posted February 4, 2007 I'm so glad you have found this advocate, and I hope that it is a smoother journey from now on. in England Quote Link to comment Share on other sites More sharing options...
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