Guest guest Posted April 28, 2007 Report Share Posted April 28, 2007 Wow Kerri... I'm glad you finished, but its awful that your Gastro let you white cells get so low. It shows how important it is for you to get copies of ALL of your tesy results. After mine came in my Gasros nurse would call and say something like " Well your counts are a little low, but continue treatment " , then I would read them myself and see where they really were. I hope you feel better soon. Lee I'm gonna talk to him about boosting my white cell count. I'm worn down with all the secondary things. If he won't consider that, I have another gastro/hep doc in the wings that I can talk to about it. > > Sharon > > > > > > > > > > > Jackie > > > > > > --------------------------------- > Ahhh...imagining that irresistible " new car " smell? > Check outnew cars at Autos. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2007 Report Share Posted April 28, 2007 Again, he must have waited until I was on death's door to give me the neupo... the few times he did px it.Lee <leecuate@...> wrote: Wow Kerri... I'm glad you finished, but its awful that your Gastro let you white cells get so low. It shows how important it is for you to get copies of ALL of your tesy results.After mine came in my Gasros nurse would call and say something like "Well your counts are a little low, but continue treatment", then I would read them myself and see where they really were.I hope you feel better soon.Lee I'm gonna talk to him about boosting my white cell count. I'm worn down with all the secondary things. If he won't consider that, I have another gastro/hep doc in the wings that I can talk to about it.> > Sharon> > > > > > > > > > > Jackie > > > > > > ---------------------------------> Ahhh...imagining that irresistible "new car" smell?> Check outnew cars at Autos.> Ahhh...imagining that irresistible "new car" smell? Check out new cars at Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2007 Report Share Posted April 28, 2007 It just really irritates me because I HAD a px for neupo, and he told me I DID NOT NEED IT ANYMORE!!! So now, I am having to go to an oncology office today (Saturday) and tomorrow (Sunday) to get more shots of Neuopo... what an inconvenience!! But I have been sick (very sick) twice recently and have had to go on antibiotics. I have two young kids so it is very hard for me to "stay away from germs and illness"... Jackie on <redjaxjm@...> wrote: sounds like you might need to file a 'formal' complaint with the AMA against your gastro,, he really dropped the ball,, Im glad your PCP stepped in,, mine did the same and he saved me Im sure!Kerri Landress <kerrilandress > wrote: my WBC were 1.3 and Neutro# .70- My PCP FREAKED OUT when she saw this lab and it was done two weeks after I HAVE STOPPED TX!! My GI doctor said that my counts have risen.... so I guess at a few points during tx they were EXTREMELY low, because I got Neuopgen several times throughout my tx. My GI doc told me my counts would just continue to rise on their own, however, my PCP said that was unacceptable... I have been getting too many infections... she INSISTED I go to a hematologist, who ordered more Neupo...SHARON CROSBY <csharonxoxomsn> wrote: WBC's is 2.8 and neutrophils are 72. Re: good news Good,, its totally stupid NOT to give you neupo if you need it,, and while you are at it, you should stay away from crowds and little kids and they are germ factories, lolSHARON CROSBY <csharonxoxomsn> wrote: I'm gonna talk to him about boosting my white cell count. I'm worn down with all the secondary things. If he won't consider that, I have another gastro/hep doc in the wings that I can talk to about it. Sharon Jackie Ahhh...imagining that irresistible "new car" smell?Check out new cars at Autos. Jackie Ahhh...imagining that irresistible "new car" smell? Check out new cars at Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2007 Report Share Posted April 28, 2007 well it truely sounds like "negligence" and THAT IS a litigation issue...Kerri Landress <kerrilandress@...> wrote: It just really irritates me because I HAD a px for neupo, and he told me I DID NOT NEED IT ANYMORE!!! So now, I am having to go to an oncology office today (Saturday) and tomorrow (Sunday) to get more shots of Neuopo... what an inconvenience!! But I have been sick (very sick) twice recently and have had to go on antibiotics. I have two young kids so it is very hard for me to "stay away from germs and illness"... Jackie on <redjaxjm > wrote: sounds like you might need to file a 'formal' complaint with the AMA against your gastro,, he really dropped the ball,, Im glad your PCP stepped in,, mine did the same and he saved me Im sure!Kerri Landress <kerrilandress > wrote: my WBC were 1.3 and Neutro# .70- My PCP FREAKED OUT when she saw this lab and it was done two weeks after I HAVE STOPPED TX!! My GI doctor said that my counts have risen.... so I guess at a few points during tx they were EXTREMELY low, because I got Neuopgen several times throughout my tx. My GI doc told me my counts would just continue to rise on their own, however, my PCP said that was unacceptable... I have been getting too many infections... she INSISTED I go to a hematologist, who ordered more Neupo...SHARON CROSBY <csharonxoxomsn> wrote: WBC's is 2.8 and neutrophils are 72. Re: good news Good,, its totally stupid NOT to give you neupo if you need it,, and while you are at it, you should stay away from crowds and little kids and they are germ factories, lolSHARON CROSBY <csharonxoxomsn> wrote: I'm gonna talk to him about boosting my white cell count. I'm worn down with all the secondary things. If he won't consider that, I have another gastro/hep doc in the wings that I can talk to about it. Sharon Jackie Ahhh...imagining that irresistible "new car" smell?Check out new cars at Autos. Jackie Ahhh...imagining that irresistible "new car" smell?Check out new cars at Autos. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2007 Report Share Posted April 28, 2007 some docs should really NOT be treating this disease...Kerri Landress <kerrilandress@...> wrote: Again, he must have waited until I was on death's door to give me the neupo... the few times he did px it.Lee <leecuatemsn> wrote: Wow Kerri... I'm glad you finished, but its awful that your Gastro let you white cells get so low. It shows how important it is for you to get copies of ALL of your tesy results.After mine came in my Gasros nurse would call and say something like "Well your counts are a little low, but continue treatment", then I would read them myself and see where they really were.I hope you feel better soon.Lee I'm gonna talk to him about boosting my white cell count. I'm worn down with all the secondary things. If he won't consider that, I have another gastro/hep doc in the wings that I can talk to about it.> > Sharon> > > > > > > > > > > Jackie > > > > > > ---------------------------------> Ahhh...imagining that irresistible "new car" smell?> Check outnew cars at Autos.> Ahhh...imagining that irresistible "new car" smell?Check out new cars at Autos. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2007 Report Share Posted April 28, 2007 thanks Lee for posting this,, but there is a formula for figuring out what the number of neuts are,, you take the WBC's and multiply them by 1000,, then take THAT number times the neut count and THAT number needs to be above 750... Lee <leecuate@...> wrote: here is neutrophil count:Neutropenia (1500 < ANC < 2000) — slight risk of infection Mild neutropenia (1000 < ANC < 1500) — minimal risk of infection Moderate neutropenia (500 < ANC < 1000) — moderate risk of infection Severe neutropenia (ANC < 500) — severe risk of infection. I'm gonna talk to him about boosting my white cell count. I'm worn down with all the secondary things. If he won't consider that, I have another gastro/hep doc in the wings that I can talk to about it.> > Sharon> > > > > > > > > > > Jackie > > > > > > Jackie>Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2007 Report Share Posted April 28, 2007 I have two listings for neutrophils, one is 72 and in the next colomn the % sign appears. The other with (absoluts) in parens is 2.0. Neither of these seem to have any relation to the numbers you list. Are there different ways to read this? Both are listed as within range of normal. Re: good news here is neutrophil count:Neutropenia (1500 < ANC < 2000) - slight risk of infection Mild neutropenia (1000 < ANC < 1500) - minimal risk of infection Moderate neutropenia (500 < ANC < 1000) - moderate risk of infection Severe neutropenia (ANC < 500) - severe risk of infection. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2007 Report Share Posted April 28, 2007 Sounds like your PCP is a good doc and your GI a little slow .... Re: good news Good,, its totally stupid NOT to give you neupo if you need it,, and while you are at it, you should stay away from crowds and little kids and they are germ factories, lolSHARON CROSBY <csharonxoxomsn> wrote: I'm gonna talk to him about boosting my white cell count. I'm worn down with all the secondary things. If he won't consider that, I have another gastro/hep doc in the wings that I can talk to about it. Sharon Jackie Ahhh...imagining that irresistible "new car" smell?Check out new cars at Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2007 Report Share Posted August 13, 2007 Pat, at least some good news, best of luck with your hospital stay, praying that works for you! Hugs, Sheena Pat D <dunhams03@...> wrote: Well my liver bx was good. I rated 1 on scarring and 1 on inflamation. Me being as sick as I have been and a 2.1 albmin level is all caused from my gastric bypass surgery and malnutrition. I am going into the hospital tomorrow and get infused with protein for 3 to 4 days. Then try to continue orally if I can absorb enough protein with rx supplements. Otherwise will have to have my bypass reversed.. Be a better Globetrotter. Get better travel answers from someone who knows. Answers - Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2007 Report Share Posted August 13, 2007 Wow , good biopsy but bad on the malnutrion . Malnutrition can kill you quicker than the hep c sweety . I pray you get better quickly and all goes well in the hospital . Please keep us updated on how your doing ? Good News Well my liver bx was good. I rated 1 on scarring and 1 on inflamation. Me being as sick as I have been and a 2.1 albmin level is all caused from my gastric bypass surgery and malnutrition. I am going into the hospital tomorrow and get infused with protein for 3 to 4 days. Then try to continue orally if I can absorb enough protein with rx supplements. Otherwise will have to have my bypass reversed.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2007 Report Share Posted August 13, 2007 thats great Pat,, the biopsy that is,, I am always fighting a lower albumen too, my last one was 3.3 which is almost 'normal'.. I have a huge problem eating enough and because I want to lose more weight, its hard to increase my intake, so what I've done is to find a good whey protein and am using that a bit more to see if using that will help raise my albumen..Pat D <dunhams03@...> wrote: Well my liver bx was good. I rated 1 on scarring and 1 on inflamation. Me being as sick as I have been and a 2.1 albmin level is all caused from my gastric bypass surgery and malnutrition. I am going into the hospital tomorrow and get infused with protein for 3 to 4 days. Then try to continue orally if I can absorb enough protein with rx supplements. Otherwise will have to have my bypass reversed..Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2007 Report Share Posted August 13, 2007 thats great Pat,, the biopsy that is,, I am always fighting a lower albumen too, my last one was 3.3 which is almost 'normal'.. I have a huge problem eating enough and because I want to lose more weight, its hard to increase my intake, so what I've done is to find a good whey protein and am using that a bit more to see if using that will help raise my albumen..Pat D <dunhams03@...> wrote: Well my liver bx was good. I rated 1 on scarring and 1 on inflamation. Me being as sick as I have been and a 2.1 albmin level is all caused from my gastric bypass surgery and malnutrition. I am going into the hospital tomorrow and get infused with protein for 3 to 4 days. Then try to continue orally if I can absorb enough protein with rx supplements. Otherwise will have to have my bypass reversed..Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2007 Report Share Posted September 7, 2007 <<Feeling giddy right now and had to share my happiness.>> , I am so happy for you. Happy Birthday!!! I too would like to share out success. My 10 yo dd is doing fantastic right now too. Things that were impossible for her to do just months ago are now becoming easier and easier. She is mostly back to her happy self.with a bit of anxiety thrown in here and there but it's not running our lives. I just went to our last scheduled appointment with our psychologist (who I am so happy to have found) and we left it that I would make an apt. as needed or email for support. My dd was SO HAPPY about that. Shaw <mailto:game-enthusiast@...> game-enthusiast@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2007 Report Share Posted September 7, 2007 <<Feeling giddy right now and had to share my happiness.>> , I am so happy for you. Happy Birthday!!! I too would like to share out success. My 10 yo dd is doing fantastic right now too. Things that were impossible for her to do just months ago are now becoming easier and easier. She is mostly back to her happy self.with a bit of anxiety thrown in here and there but it's not running our lives. I just went to our last scheduled appointment with our psychologist (who I am so happy to have found) and we left it that I would make an apt. as needed or email for support. My dd was SO HAPPY about that. Shaw <mailto:game-enthusiast@...> game-enthusiast@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2007 Report Share Posted September 7, 2007 , It's so great to hear your news! I remember reading your posts only a couple of months ago with tears in my eyes while you were described the horrible toll OCD took on Noah and the rest of your family. There's no greater gift for your birthday than to have your son back! Happy Birthday and thanks for sharing your success! Judi On Sep 7, 2007, at 1:07 PM, lisa fishman wrote: > Feeling giddy right now and had to share my happiness. Tomorrow > will be my 50th birthday, and I get to celebrate my son's great > progress in managing his OCD. > Three weeks into school, Noah is doing great. He is keeping up with > and even getting ahead in his homework, getting great grades, and > maintaining his social life. He came home today and told me he > declared his intention to run for Secretary of the Student Council. > He's also diligent in doing his OCD therapy work, with a little > reminder here and there. > > Honestly, this is about the best birthday present I could ask for. > We should all come to see our children succeed in OCD management > and in their lives. > > > > --------------------------------- > Moody friends. Drama queens. Your life? Nope! - their life, your > story. > Play Sims Stories at Games. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2007 Report Share Posted September 7, 2007 , It's so great to hear your news! I remember reading your posts only a couple of months ago with tears in my eyes while you were described the horrible toll OCD took on Noah and the rest of your family. There's no greater gift for your birthday than to have your son back! Happy Birthday and thanks for sharing your success! Judi On Sep 7, 2007, at 1:07 PM, lisa fishman wrote: > Feeling giddy right now and had to share my happiness. Tomorrow > will be my 50th birthday, and I get to celebrate my son's great > progress in managing his OCD. > Three weeks into school, Noah is doing great. He is keeping up with > and even getting ahead in his homework, getting great grades, and > maintaining his social life. He came home today and told me he > declared his intention to run for Secretary of the Student Council. > He's also diligent in doing his OCD therapy work, with a little > reminder here and there. > > Honestly, this is about the best birthday present I could ask for. > We should all come to see our children succeed in OCD management > and in their lives. > > > > --------------------------------- > Moody friends. Drama queens. Your life? Nope! - their life, your > story. > Play Sims Stories at Games. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2007 Report Share Posted September 7, 2007 Happy birthday, ! Congrats on Noah's sailing!! It's encouraging!!! AKIKO > > Feeling giddy right now and had to share my happiness. Tomorrow will be my 50th birthday, and I get to celebrate my son's great progress in managing his OCD. > Three weeks into school, Noah is doing great. He is keeping up with and even getting ahead in his homework, getting great grades, and maintaining his social life. He came home today and told me he declared his intention to run for Secretary of the Student Council. He's also diligent in doing his OCD therapy work, with a little reminder here and there. > > Honestly, this is about the best birthday present I could ask for. We should all come to see our children succeed in OCD management and in their lives. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2007 Report Share Posted September 7, 2007 Happy birthday, ! Congrats on Noah's sailing!! It's encouraging!!! AKIKO > > Feeling giddy right now and had to share my happiness. Tomorrow will be my 50th birthday, and I get to celebrate my son's great progress in managing his OCD. > Three weeks into school, Noah is doing great. He is keeping up with and even getting ahead in his homework, getting great grades, and maintaining his social life. He came home today and told me he declared his intention to run for Secretary of the Student Council. He's also diligent in doing his OCD therapy work, with a little reminder here and there. > > Honestly, this is about the best birthday present I could ask for. We should all come to see our children succeed in OCD management and in their lives. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2007 Report Share Posted September 7, 2007 Oh , That is wonderful!!! Isn't it you who is in KY and went to Florida for an intense program? Where is it again that you went? Congratulations!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!11 lisa fishman <noahfsmom@...> wrote: Feeling giddy right now and had to share my happiness. Tomorrow will be my 50th birthday, and I get to celebrate my son's great progress in managing his OCD. Three weeks into school, Noah is doing great. He is keeping up with and even getting ahead in his homework, getting great grades, and maintaining his social life. He came home today and told me he declared his intention to run for Secretary of the Student Council. He's also diligent in doing his OCD therapy work, with a little reminder here and there. Honestly, this is about the best birthday present I could ask for. We should all come to see our children succeed in OCD management and in their lives. --------------------------------- Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Games. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2007 Report Share Posted September 7, 2007 Happy Birthday!! And really glad to hear Noah is still doing so well! Tomorrow is YOUR day! > > Feeling giddy right now and had to share my happiness. Tomorrow will be my 50th birthday, and I get to celebrate my son's great progress in managing his OCD. > Three weeks into school, Noah is doing great. He is keeping up with and even getting ahead in his homework, getting great grades, and Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2007 Report Share Posted September 7, 2007 Happy Birthday!! And really glad to hear Noah is still doing so well! Tomorrow is YOUR day! > > Feeling giddy right now and had to share my happiness. Tomorrow will be my 50th birthday, and I get to celebrate my son's great progress in managing his OCD. > Three weeks into school, Noah is doing great. He is keeping up with and even getting ahead in his homework, getting great grades, and Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2007 Report Share Posted September 7, 2007 , That is fantastic news about Noah! What an amazing turn-around. Here's to a great school year. Congrats to you all - and HAPPY BIRTHDAY Mom! Sinead good news Feeling giddy right now and had to share my happiness. Tomorrow will be my 50th birthday, and I get to celebrate my son's great progress in managing his OCD. Three weeks into school, Noah is doing great. He is keeping up with and even getting ahead in his homework, getting great grades, and maintaining his social life. He came home today and told me he declared his intention to run for Secretary of the Student Council. He's also diligent in doing his OCD therapy work, with a little reminder here and there. Honestly, this is about the best birthday present I could ask for. We should all come to see our children succeed in OCD management and in their lives. ------------ --------- --------- --- Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Games. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2007 Report Share Posted September 7, 2007 , That is fantastic news about Noah! What an amazing turn-around. Here's to a great school year. Congrats to you all - and HAPPY BIRTHDAY Mom! Sinead good news Feeling giddy right now and had to share my happiness. Tomorrow will be my 50th birthday, and I get to celebrate my son's great progress in managing his OCD. Three weeks into school, Noah is doing great. He is keeping up with and even getting ahead in his homework, getting great grades, and maintaining his social life. He came home today and told me he declared his intention to run for Secretary of the Student Council. He's also diligent in doing his OCD therapy work, with a little reminder here and there. Honestly, this is about the best birthday present I could ask for. We should all come to see our children succeed in OCD management and in their lives. ------------ --------- --------- --- Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Games. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2007 Report Share Posted September 7, 2007 CONGRATULATIONS It is so good to hear of your sons accomplishments, it has been a long road for you and him and your family! Congratulations to you for hanging in there! And it is good to hear of a residential program that can be helpful!! Enjoy your birthday! cathy in MA > > Feeling giddy right now and had to share my happiness. Tomorrow will be my 50th birthday, and I get to celebrate my son's great progress in managing his OCD. > Three weeks into school, Noah is doing great. He is keeping up with and even getting ahead in his homework, getting great grades, and maintaining his social life. He came home today and told me he declared his intention to run for Secretary of the Student Council. He's also diligent in doing his OCD therapy work, with a little reminder here and there. > > Honestly, this is about the best birthday present I could ask for. We should all come to see our children succeed in OCD management and in their lives. > > > > > --------------------------------- > Moody friends. Drama queens. Your life? Nope! - their life, your story. > Play Sims Stories at Games. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2007 Report Share Posted September 7, 2007 Happy Birthday, . The big 5-0. That's coming for me in a few years too. Great news about Noah. So glad he is doing well. BJ > > Feeling giddy right now and had to share my happiness. Tomorrow will be my 50th birthday, and I get to celebrate my son's great progress in managing his OCD. > Three weeks into school, Noah is doing great. He is keeping up with and even getting ahead in his homework, getting great grades, and maintaining his social life. He came home today and told me he declared his intention to run for Secretary of the Student Council. He's also diligent in doing his OCD therapy work, with a little reminder here and there. > > Honestly, this is about the best birthday present I could ask for. We should all come to see our children succeed in OCD management and in their lives. > > > > > --------------------------------- > Moody friends. Drama queens. Your life? Nope! - their life, your story. > Play Sims Stories at Games. > > Quote Link to comment Share on other sites More sharing options...
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