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  • 2 months later...

>From: lynda <lmlr@...>

>Reply-achalasiaegroups

> " achalasiaegroups " <achalasiaegroups>

>Subject: (no subject)

>Date: Sat, 18 Nov 2000 09:42:15 -0500

>

>Hello. My name is Lynda, age 35 and I have had achalsia for

>approximately 10 years. Most recently, I also have developed a

>hypertensive upper esophageal sphincter. The sphincter between the

>esophagus and the stomach is only slightly hypertensive. There is no

>peristaltic activity in the body of the esophagus. I was told that this

>is achalsia but with a twist. Anybody out there have any comments on

>this unusual pattern of an unusual disorder? Also, does anyone know of

>any relationship between fibromyalgia and achalasia? Thanks!!

>lmlr@...

>

> Hello Lynda.. My name is Ray, we live in northern Michigan. My wife,

>Nell, has been having problems with Achalasia for over 12 years, whatever

>has been wrote on the subject, I think we have read it. I don't know what

>you're asking really when asking about the similiarities between achalasia

>and Fibromyalgia, but check out this site I was in a while ago. You may

>find your answers there, ot use that as a jump to other links. Hope this

>helps.\

Ray

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Hi, Lynda!

Just when you think you've heard it all, along comes somebody with a new

twist on this horrible disease. I haven't done an extensive search through

the articles I've kept on file over the years, so I don't know if there's

any current research that I could recommend to you. As far as I can

remember, most of the papers on achalasia have concentrated on the LES

muscle; yours is the first I've come across with the upper muscle. Logic

would tell me, however, that if it could affect one muscle, it could affect

the other. Also have not heard of any correlations with fibromyalgia.

How are you managing both or either condition?

Sorry this isn't more helpful - I'll keep looking for you!

Take care -

Carol

(no subject)

> Hi Ray.

>

> Thanks for your response. My story is a long one, too long for

> me to type right now. I have been recently diagnosed with

> fibromyalsia. While researching this new diagnosis, I found that

> esophageal dysmotility is a common symptom. I found that interesting.

> Achalasia is difficult enough without the added burden of what my body

> is handing me this time. Maybe I missed it, but I could not find the

> address to the web site that you referred to in your message. From your

> readings, is the hypertensive upper esophageal sphincter characteristic

> of achalasia? It was not present initially, but began 8 years after

> onset. It was preceded by the same terrible pain (spasms) that I

> initially experienced in the chest area. Hello to your wife, hope she is

> doing well.

>

> Lynda

>

>

>

>

>

>

>

_____NetZero Free Internet Access and Email______

http://www.netzero.net/download/index.html

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  • 3 months later...

Good luck today. Sometimes it takes more than one dilation for any long-term relief to be achieved, due in most part to the varying sizes of tubes used during the actual stretching. It's sort of like Goldilocks and the 3 Bears since there are primarily 3 sizes of dilators - some are too small, others are too large, and the trick is finding the one that is just right. Most doctors will err on the side of conservatism and do the first procedure at the smallest size they think will work. This is only good sense since there is a risk of perforating the esophagus if the muscles are over-stretched.

Achalasia is a very scary disease - the feeling of having your mouth and throat close up when full of food or liquid makes you think you're going to choke or asphixiate. And then that panic only makes matters worse. Hopefully, you'll be helped by what happens today.

Let us know how you're feeling and how the procedure works to relieve some of these conditions.

Carol

(no subject)

Hi everyone its been awhile Im going Tuesday 2/27/01 for another ballon done my swallowing is not good my food wont go down very fast and I feel that it just stays in my throat. All I do is burp and fell like im going to throwup. If I drink alot of water the food goes down but it comes right back up ln my throat and stays allday Here we go again!!!!!!!!! sometimes I get scared about this Achalasia.Does anyone ever fell like they are going to throwup from it?This is my second ballon . Jpink94948

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  • 3 weeks later...
Guest guest

Would you let me know the procedure to get off the achalasia@groups email dist.

Thank you, Dan Mead

(no subject)

Hi everyone its been awhile Im going Tuesday 2/27/01 for another ballon done my swallowing is not good my food wont go down very fast and I feel that it just stays in my throat. All I do is burp and fell like im going to throwup. If I drink alot of water the food goes down but it comes right back up ln my throat and stays allday Here we go again!!!!!!!!! sometimes I get scared about this Achalasia.Does anyone ever fell like they are going to throwup from it?This is my second ballon . Jpink94948

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  • 5 months later...

would someone please tell me how i can subscribe to this group? i was a

member but i changed to a different internet service. my email was usit.net

now it is volfirst.net i would appreciate it if someone could tell me thank

you patricia hinch@...

(no subject)

>

>

> > Hi Ray.

> >

> > Thanks for your response. My story is a long one, too long for

> > me to type right now. I have been recently diagnosed with

> > fibromyalsia. While researching this new diagnosis, I found that

> > esophageal dysmotility is a common symptom. I found that interesting.

> > Achalasia is difficult enough without the added burden of what my body

> > is handing me this time. Maybe I missed it, but I could not find the

> > address to the web site that you referred to in your message. From your

> > readings, is the hypertensive upper esophageal sphincter characteristic

> > of achalasia? It was not present initially, but began 8 years after

> > onset. It was preceded by the same terrible pain (spasms) that I

> > initially experienced in the chest area. Hello to your wife, hope she is

> > doing well.

> >

> > Lynda

> >

> >

> >

> >

> >

> >

> >

>

>

> _____NetZero Free Internet Access and Email______

> http://www.netzero.net/download/index.html

>

>

>

>

>

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  • 10 years later...
Guest guest

Dr.Burzynski's antineoplastons continue to show remarkable success.

June 6, 2012Dear Burzynski Movie subscribers:

Only three clicks to vote for this film:

The first annual "Alive NYC" has nominated this film for "Best Documentary". Please simply [click here] and then click on "Burzynski Movie" and "vote" and you are done! No registration or anything else needed whatsoever. The winners will be announced in New York City on June 29th and 30th, 2012. If the above link doesn't work, click here: http://www.alivenewyork.com/alive-documentary-award.html

Two U.K. patients currently doing well on Antineoplastons:

Hymas and Hannah Bradley from England continue to do very well on Antineoplaston therapy. has a very deadly brain cancer known as a Glioblastoma Multiforme, and Hannah has an inoperable Anaplastic Astrocytoma. See 's progress by [clicking here], and Hannah's progress by [clicking here].

New Burzynski Documentary in production:

We are currently in production on the new documentary about Burzynski and his patients. This new film will be focused primarily on the personal journeys of cancer patients who are currently undergoing this therapy. While fighting terminal cancer is difficult enough for these patients, they face a constant barrage of harassment and intimidation from those who do not want them to receive this therapy. This sad situation makes the fight against their cancer secondary to the personal fight against them for simply choosing this method of cancer therapy.

New book, "Love and Grit: Kicking Cancer Our Way":

The story of Glioblastoma brain cancer survivor Treadwell, written by his wife . I interviewed Mr. Treadwell and his wife for the first documentary, their interview can be viewed by [clicking here]. This interview is now on the 2nd disk of the "2 DVD set Extended Edition".

"Love and Grit" has just been released and is now available on paperback or Kindle. Click here to purchase this book on Amazon.

United Kingdom brainstem glioma patient loses her fight:

As most of you know, never before in the history of medicine has any medication ever produced a single cure for a childhood diffuse intrinsic brainstem glioma. Antineoplastons hold the first and only cures in medical history in 30% of patients with this condition, as demonstrated in Phase 2 FDA clinical trials. As with any deadly cancer, and the limited treatment options for them, not everyone can be saved. On June 1, 2012, Billie Bainbridge from Exeter, England lost her fight with brainstem glioma even after being treated with Antineoplastons. A 30% cure rate is better than a 0% cure rate—but it still leaves 70% of children with this condition treated using Antineoplastons without a cure. To add to Billie's deadly "incurable" brain tumor, her mother Terri has been battling her own breast cancer at the same time.

The Bainbridge family faced a massive onslaught of harassment and intimidation from "the opposition" during their fight for Billie's life. We hope now that those who oppose medical freedom, and oppose medical progress, and prefer watching cancer patients die at the hands of chemotherapy and radiation that has never once cured this type of tumor—we hope those people will leave this family in peace, and stop harassing them. [Learn more about Billie's cancer battle by clicking here].

The new documentary about Burzynski and his patients will directly address those parties involved in their ongoing intimidation and harassment.

More to come… In solidarity,Burzyski Movie TeamBuy the 2-DVD Extended Edition Set, [click here].

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