Guest guest Posted January 19, 2012 Report Share Posted January 19, 2012 > >http://www.nytimes.com/2012/01/20/health/research/new-autism-definition-would-e\ xclude-many-study-suggests.html?partner=rss & emc=rss > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2012 Report Share Posted January 20, 2012 The article, no. The DSM revisions, yes. You can search the DSM-5 draft here: http://www.dsm5.org/Pages/Default.aspx In the words of Wise, listowner for Autinet Forum, " Get diagnosed using a tight diagnosis and everyone knows where they stand! " -Gail ________________________________ From: e Gabb <kristinegabb@...> " IPADDUnite " <IPADDUnite > Sent: Thursday, January 19, 2012 6:59 PM Subject: anyone seen this? > >http://www.nytimes.com/2012/01/20/health/research/new-autism-definition-would-e\ xclude-many-study-suggests.html?partner=rss & emc=rss > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2012 Report Share Posted January 20, 2012 Hi e: I did see the article about the change in how autism will be defined...could be problematic for many higher functioning folks. Ellen Ellen Garber Bronfeld egskb@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2012 Report Share Posted January 20, 2012 Was on the channel 7 news. I think this may be quite a problem for people on the spectrum; Aspergers/PDD-NOS etc. Bedard, PLA Ricky, andra and 's Mom Mothers on a Mission, Inc. 6515 Stanley Avenue #4 Berwyn, IL 60402 708-217-3196 www.mothersonamission.net www.noewait.net I thought I would have to teach my children about the world, but instead I have to teach the world about my children~~ Unknown CONFIDENTIALITY NOTICE: This e-mail message, including any attachments, is for the sole use of the intended recipients(s) and may contain confidential and privileged information. Any unauthorized review, use, disclosure, or distribution is prohibited. If you have received this e-mail and are not the intended recipient, please contact the sender by reply e-mail and destroy all copies of the original message. ________________________________ From:ELLEN BRONFELD <egskb@...> To:IPADDUnite Sent: Fri, January 20, 2012 3:55:56 PM Subject: Re: anyone seen this? Hi e: I did see the article about the change in how autism will be defined...could be problematic for many higher functioning folks. Ellen Ellen Garber Bronfeld egskb@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2012 Report Share Posted January 20, 2012 According to what I just saw on the news at 5:30p.m. If the DSM changes, many of our children will not qualify for services. Aspergers will be removed????? Bedard, PLA Ricky, andra and 's Mom Mothers on a Mission, Inc. 6515 Stanley Avenue #4 Berwyn, IL 60402 708-217-3196 www.mothersonamission.net www.noewait.net I thought I would have to teach my children about the world, but instead I have to teach the world about my children~~ Unknown CONFIDENTIALITY NOTICE: This e-mail message, including any attachments, is for the sole use of the intended recipients(s) and may contain confidential and privileged information. Any unauthorized review, use, disclosure, or distribution is prohibited. If you have received this e-mail and are not the intended recipient, please contact the sender by reply e-mail and destroy all copies of the original message. ________________________________ From: Bedard <cathybedard@...> To:IPADDUnite Sent: Fri, January 20, 2012 5:21:12 PM Subject: Re: Re: anyone seen this? Was on the channel 7 news. I think this may be quite a problem for people on the spectrum; Aspergers/PDD-NOS etc. Bedard, PLA Ricky, andra and 's Mom Mothers on a Mission, Inc. 6515 Stanley Avenue #4 Berwyn, IL 60402 708-217-3196 www.mothersonamission.net www.noewait.net I thought I would have to teach my children about the world, but instead I have to teach the world about my children~~ Unknown CONFIDENTIALITY NOTICE: This e-mail message, including any attachments, is for the sole use of the intended recipients(s) and may contain confidential and privileged information. Any unauthorized review, use, disclosure, or distribution is prohibited. If you have received this e-mail and are not the intended recipient, please contact the sender by reply e-mail and destroy all copies of the original message. ________________________________ From:ELLEN BRONFELD <egskb@...> To:IPADDUnite Sent: Fri, January 20, 2012 3:55:56 PM Subject: Re: anyone seen this? Hi e: I did see the article about the change in how autism will be defined...could be problematic for many higher functioning folks. Ellen Ellen Garber Bronfeld egskb@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2012 Report Share Posted January 20, 2012 Saw it all over the news today. Sounds very scary. Especially annoying that we spend years helping individuals overcome some of the symptoms and now that very help could work against them as they may not have all of the visible signs. The internal issues are still there and are the need for services and socialization and job assistance, potentially assisted living. I think this is another result of the economy. Let's find what we can cut from those that have the least voices - or so THEY may believe. The battle never ends. Problem is many of the " soldiers " who fought on the front lines of this battle are themselves getting older. The younger ones may not realize how much they take for granted because it was fought for by those who came before. We need to keep active and involved and help others to get activated. I think we have many medical battles coming ahead as the nation tries to cut healthcare costs. Gloria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2012 Report Share Posted January 21, 2012 I think it will affect the young children more than our older young adults. I've seen parents beg for the autism label to get services because they were encouraged to do so by anyone who knew anything about getting services. I tried forever to stay away from that " dreaded " label and we got services all through elementary school without it. I was very afraid that would get pigeon holed by the autism label with less expectations. H. Re: anyone seen this? Saw it all over the news today. Sounds very scary. Especially annoying hat we spend years helping individuals overcome some of the symptoms nd now that very help could work against them as they may not have all f the visible signs. The internal issues are still there and are the eed for services and socialization and job assistance, potentially ssisted living. I think this is another result of the economy. Let's ind what we can cut from those that have the least voices - or so THEY ay believe. The battle never ends. Problem is many of the " soldiers " ho fought on the front lines of this battle are themselves getting lder. The younger ones may not realize how much they take for granted ecause it was fought for by those who came before. We need to keep ctive and involved and help others to get activated. I think we have any medical battles coming ahead as the nation tries to cut healthcare osts. Gloria ----------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2012 Report Share Posted January 21, 2012 My reaction is 'don't panic'. Schools/IEPS look at ability to access the general education curriculum, not at labels per se, so long as parents understand and advocate for their child's rights, all should be ok. And in adult services, they base eligibility on ability to perform activities of daily living, behaviors, ability to sustain gainful employment, etc. Again, not on a label. Not all people with autism, even today, meet the criteria for adult services. Remember several years ago when we had to push the state folks to not automatically reject services based on IQ scores higher than 70? That seems to have resolved, for the most part, through parent education and greater understanding of our childrens' needs. I know many of us have struggled through the years to get or maintain appropriate services for our loved ones. That said, I don't see where this automatically changes things. My two cents... L. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2012 Report Share Posted January 21, 2012 labels are important. My son was denied services from Turning Point, here in town, specializing in treating his symptoms/behaviors/issues, because he doesn't have " the label " . In a message dated 1/21/2012 9:36:36 A.M. Central Standard Time, jeruefamily@... writes: My reaction is 'don't panic'. Schools/IEPS look at ability to access the general education curriculum, not at labels per se, so long as parents understand and advocate for their child's rights, all should be ok. And in adult services, they base eligibility on ability to perform activities of daily living, behaviors, ability to sustain gainful employment, etc. Again, not on a label. Not all people with autism, even today, meet the criteria for adult services. Remember several years ago when we had to push the state folks to not automatically reject services based on IQ scores higher than 70? That seems to have resolved, for the most part, through parent education and greater understanding of our childrens' needs. I know many of us have struggled through the years to get or maintain appropriate services for our loved ones. That said, I don't see where this automatically changes things. My two cents... L. ------------------------------------ Groups Links Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2012 Report Share Posted January 21, 2012 Remember that those adults who do not qualify for services through the Department of Human Services (DHS) Division of Developmental Disabilities (DDD), may still qualify for services through DHS DRS, and/or DHS DMH. Also remember that the PUNS is only for DHS DDD. Rubin<mailto:brian@...> * [cid:image004.jpg@...] www.rubinlawcorp.com<http://www.rubinlawcorp.com/> brian@...<mailto:brian@...> * Member by invitation of SNA, the Special Needs Alliance. SNA is the national non-profit association of experienced " SpecialNeeds Planning " Attorneys. Rubin is a member of SNA's Board of Directors. Click for more information.<http://www.specialneedsalliance.org/> * Member, Special Needs Law Steering Committee of NAELA, the National Academy of Elder Law Attorneys. * Was a Charter Member of the Academy of Special Needs Planners * Rubin is the President of the Arc of Illinois [cid:image003.jpg@...]<http://www.youtube.com/watch?v=Ql6ZKlxws0s> Rubin has been awarded the AV Preeminent Rating. Please click on the above " red " link for more information. Notices: This message does not create an attorney-client relationship, and is not legal advice absent such a relationship with the recipient. This message may contain confidential information protected by the attorney-client and/or work product privilege. The information is only for the use of the intended recipient. If you are not such recipient, disclosure, copying, distribution or reliance upon this e-mail is strictly prohibited. If you have received this transmission in error, please notify Rubin Law, a professional corporation, by e-mail and destroy the original message and all copies. IRS CIRCULAR 230 NOTICE: TO THE EXTENT THAT THIS MESSAGE OR ANY ATTACHMENT CONCERNS TAX MATTERS, IT IS NOT INTENDED TO BE USED AND CANNOT BE USED BY A TAXPAYER FOR THE PURPOSE OF AVOIDING PENALTIES THAT MAY BE IMPOSED BY LAW. Disclaimer Regarding Electronic Signature. If this communication concerns negotiation of a contract or agreement, electronic signature rules do not apply to this communication: contract formation in this matter shall occur only with manually-affixed original signatures on original documents. The Signature given hereon is not an electronic signature and is provided only for the purposes of providing information as to the identity of the sender and for no other purpose(s) whatsoever. From: IPADDUnite [mailto:IPADDUnite ] On Behalf Of misslaur57 Sent: Saturday, January 21, 2012 9:37 AM IPADDUnite Subject: Re: anyone seen this? My reaction is 'don't panic'. Schools/IEPS look at ability to access the general education curriculum, not at labels per se, so long as parents understand and advocate for their child's rights, all should be ok. And in adult services, they base eligibility on ability to perform activities of daily living, behaviors, ability to sustain gainful employment, etc. Again, not on a label. Not all people with autism, even today, meet the criteria for adult services. Remember several years ago when we had to push the state folks to not automatically reject services based on IQ scores higher than 70? That seems to have resolved, for the most part, through parent education and greater understanding of our childrens' needs. I know many of us have struggled through the years to get or maintain appropriate services for our loved ones. That said, I don't see where this automatically changes things. My two cents... L. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2012 Report Share Posted January 21, 2012 What I worry about, and I run into everyday at Mothers on a Mission, Inc., is the young parents who do not know, or understand the system at all. Where I live the families are already underserved and 60% are Limited English Proficient. The educational system is already " messing " with these families. When I see something like this; my stomach turns because I know what is going to happen to our families that are entering in the system and the underserved, who are already struggling. When I present at the local high school I am still stunned at the amount of families who are not on the PUNS and should have been a long time ago. I still feel that PUNS is not an accurate measure, by no means, of the number of families in Illinois waiting for services. Bedard, PLA Ricky, andra and 's Mom Mothers on a Mission, Inc. 6515 Stanley Avenue #4 Berwyn, IL 60402 708-217-3196 www.mothersonamission.net www.noewait.net I thought I would have to teach my children about the world, but instead I have to teach the world about my children~~ Unknown CONFIDENTIALITY NOTICE: This e-mail message, including any attachments, is for the sole use of the intended recipients(s) and may contain confidential and privileged information. Any unauthorized review, use, disclosure, or distribution is prohibited. If you have received this e-mail and are not the intended recipient, please contact the sender by reply e-mail and destroy all copies of the original message. ________________________________ From: N Rubin <brian@...> " IPADDUnite " <IPADDUnite > Sent: Sat, January 21, 2012 1:41:29 PM Subject: RE: Re: anyone seen this? Remember that those adults who do not qualify for services through the Department of Human Services (DHS) Division of Developmental Disabilities (DDD), may still qualify for services through DHS DRS, and/or DHS DMH. Also remember that the PUNS is only for DHS DDD. Rubin<mailto:brian@...> * [cid:image004.jpg@...] www.rubinlawcorp.com<http://www.rubinlawcorp.com/> brian@...<mailto:brian@...> * Member by invitation of SNA, the Special Needs Alliance. SNA is the national non-profit association of experienced " SpecialNeeds Planning " Attorneys. Rubin is a member of SNA's Board of Directors. Click for more information.<http://www.specialneedsalliance.org/> * Member, Special Needs Law Steering Committee of NAELA, the National Academy of Elder Law Attorneys. * Was a Charter Member of the Academy of Special Needs Planners * Rubin is the President of the Arc of Illinois [cid:image003.jpg@...]<http://www.youtube.com/watch?v=Ql6ZKlxws0s> Rubin has been awarded the AV Preeminent Rating. Please click on the above " red " link for more information. Notices: This message does not create an attorney-client relationship, and is not legal advice absent such a relationship with the recipient. This message may contain confidential information protected by the attorney-client and/or work product privilege. The information is only for the use of the intended recipient. If you are not such recipient, disclosure, copying, distribution or reliance upon this e-mail is strictly prohibited. If you have received this transmission in error, please notify Rubin Law, a professional corporation, by e-mail and destroy the original message and all copies. IRS CIRCULAR 230 NOTICE: TO THE EXTENT THAT THIS MESSAGE OR ANY ATTACHMENT CONCERNS TAX MATTERS, IT IS NOT INTENDED TO BE USED AND CANNOT BE USED BY A TAXPAYER FOR THE PURPOSE OF AVOIDING PENALTIES THAT MAY BE IMPOSED BY LAW. Disclaimer Regarding Electronic Signature. If this communication concerns negotiation of a contract or agreement, electronic signature rules do not apply to this communication: contract formation in this matter shall occur only with manually-affixed original signatures on original documents. The Signature given hereon is not an electronic signature and is provided only for the purposes of providing information as to the identity of the sender and for no other purpose(s) whatsoever. From: IPADDUnite [mailto:IPADDUnite ] On Behalf Of misslaur57 Sent: Saturday, January 21, 2012 9:37 AM IPADDUnite Subject: Re: anyone seen this? My reaction is 'don't panic'. Schools/IEPS look at ability to access the general education curriculum, not at labels per se, so long as parents understand and advocate for their child's rights, all should be ok. And in adult services, they base eligibility on ability to perform activities of daily living, behaviors, ability to sustain gainful employment, etc. Again, not on a label. Not all people with autism, even today, meet the criteria for adult services. Remember several years ago when we had to push the state folks to not automatically reject services based on IQ scores higher than 70? That seems to have resolved, for the most part, through parent education and greater understanding of our childrens' needs. I know many of us have struggled through the years to get or maintain appropriate services for our loved ones. That said, I don't see where this automatically changes things. My two cents... L. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2012 Report Share Posted January 21, 2012 All good points. Thanks, . From: N Rubin Sent: Saturday, January 21, 2012 1:41 PM IPADDUnite Subject: RE: Re: anyone seen this? Remember that those adults who do not qualify for services through the Department of Human Services (DHS) Division of Developmental Disabilities (DDD), may still qualify for services through DHS DRS, and/or DHS DMH. Also remember that the PUNS is only for DHS DDD. Quote Link to comment Share on other sites More sharing options...
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