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Re: The Letter of Intent: Advice for the Future Team | Loud and Clear: A Special Needs Conversation

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I used to tie updating ours to the period around Mother’s Day (when, as a good

mother, I should do things like this!). Later though, I’ve tied reviewing and

updating it to anytime we are about to leave in the care of another (once

a year vacation time, for example) and it goes onto the clipboard of info to

leave with the caregiver.

Every year, I find changes to make. Once it’s on your computer, though, the

changes are simple to make.

Our son, Mark, who is ’s only sib, gets one. The executor of our estate,

and the two wonderful ladies who agreed to serve as co-guardians with Mark, get

their copies. Oh, yes, and an updated copy always goes to my husband’s law

firm, to our estate/special needs trust guy, to include in his files, too.

Ellen and are right; these documents are so very important. IPADD Files

has some templates to get you started. If anyone wants to see the one I did for

, I can upload that, too. Start with the emergency contact information &

just go from there.

I remember telling my hairdresser once about doing this, and she got quite

offended when she asked me if HER name was in there...and honestly I hadn’t

thought of listing the person who cuts ’s hair...and she was like

“WELL! I think you need to add me in there!!â€. And of course I did.

From: ELLEN BRONFELD

Sent: Monday, January 23, 2012 11:13 PM

IPADDUnite

Subject: The Letter of Intent: Advice for the Future Team | Loud

and Clear: A Special Needs Conversation

This is a really important piece from Rubin. It reminds me that I have not

updated my son's letter of intent in well over a year. It is enormously time

consuming but very comforting to have this in place for when it is needed.

Ellen

http://blog.specialneedsalliance.org/2012/01/the-letter-of-intent-advice-for-the\

-future-team/

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