Re: CFIDS seven page protocol

[Guest guest]

Gail,

Is it possible that the protocol could be posted on the National CFIDS

Foundation's web site? That would be the easiest access for all of us.

Barb

<< n, there really is no charge....the donation was going to go to them,

but their lab is now closed. If you feel like sending a donation, you're

always welcome to...we never turn down money for research, but it's really

not necessary. Our main goal is to get out the truth and try to help

PWCs....and they don't happen to live ALL in the US!!!

Gail

>>

[Guest guest]

n, if we posted all our information there, it would be a lot easier for

patients who are online, but it could very well kill off our webmaster!

We're an all-volunteer group and our webmaster is a very severe patient who

is basically bedridden. He can only be on the computer for a few minutes at

a time, so we have to take that into consideration every time we put

something up there. But we're a patiently patient group, so we understand!!

Gail

p.s. Yours will be in the mail tomorrow.

[Guest guest]

could i also get a copy of the CFIDS protocol?

thanks,

dwanna

[Guest guest]

In a message dated 5/16/99 10:35:44 PM Eastern Daylight Time,

TheFez062@... writes:

<< could i also get a copy of the CFIDS protocol? >>

Which one?

Gail

[Guest guest]

Gail,

That was not my suggestion in fact, but I think it is a good one. I do

understand though about the effort and volounteer groups. If I ever get my

act into gear to learn how to do a web site myself, I'll put such things on

it ... with permission of course.

Thank you very much for sending it to me, it is greatly appreciated.

n

At 11:24 17/05/99 , you wrote:

>From: GAILRONDA@...

>

>n, if we posted all our information there, it would be a lot easier for

>patients who are online, but it could very well kill off our webmaster!

>We're an all-volunteer group and our webmaster is a very severe patient who

>is basically bedridden. He can only be on the computer for a few minutes at

>a time, so we have to take that into consideration every time we put

>something up there. But we're a patiently patient group, so we understand!!

>Gail

>p.s. Yours will be in the mail tomorrow.

>

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n

Tel/Fax +61-2-6239 6226

Canberra, Australia

[Guest guest]

protocol; I'd love of a copy if you can manaage,,,

Thanks so much

Christa R

TCraig1@...