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In a message dated 5/25/99 8:44:22 PM Eastern Daylight Time,

musharina73@... writes:

<< how many of these cases have you been successful in? " >>

Not how many, but how many and the percentage of those. You can have an

attorney right away. You don't really need one from LI. Any attorney

anywhere can help, so if there's a better one in NJ or in CA, use them. It

all can be done by fax or phone. My husband even represented a patient (US

citizen) in Iceland!

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Hear ye, hear ye!!!! I just got the word and this list is the first to

know.....'s meeting (she represented the National CFIDS Foundation and

got together the AIDS Act-Up group, the Nation of Islam, and all major US

CFIDS groups to confront Dr. (CEO of Hemispherx) to ask him to fund a

Citizens Advisory Board. It took the whole afternoon and some of the

evening, but it was successful!!!!!! And was appointed to chair the

group until the CAB can be set up and elect officers! This is a HUGE step

forward to find out what the problems are with Ampligen and have the real

truth come out as well as to protect the patients who are already on the

drug. Can you all hear me applauding?

Gail

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In a message dated 5/25/99 9:37:39 PM Eastern Daylight Time,

TCraig1@... writes:

<< my hearing is next week >>

If you're at the hearing level, you should already have an attorney. Did you

mean the reapplication level (2nd try)? If you already have an attorney, you

can be helped with your application. Never, never, never go to the LTD

stage without one. One LTD judge sent the patient home and told her not to

come back without one because she'll definately lose.

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ann, you must have been very lucky to have one during the first time

around! But my advice stays....never, ever go beyond the level 2 without an

attorney. If you lose then, an appeal will cost you so much more up-front

money (the other takes money only if you are successful) and you can't go

back and undo any mistakes or add anything. The key to remember is to do it

right from the beginning. We have a guidebook that takes you through the

process step by step. We don't get any money from it (in fact, when postage

went up, we figured out we're losing a few cents on each one) and it costs

what it costs us ($5.00). You're welcome to send for it. But you must have

objective proof now. (You didn't need that years ago.) Don't lose what

you're entitled to. Too many have and there aren't enough safety nets in

place for all those who have the illess and become destitute.

Gail

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I didnt realize your husband was an attorney!! I know

you offered someone on the list his phone number, but

I didnt know why....haha!!

I keep hearing of someone by the name of Proto

who is an " advocate " in Florida on the disinissues

list. He is really the only referral I have, besides

other attorneys whom my Mom knows (but they havent

handled CFS cases).

Ill assume your husband knows about CFS and Fibro :)

Is this his specialty?

Please feel free to write to me personally. I dont

want to bother the list with this!!

Thanks - Michele

--- GAILRONDA@... wrote:

> From: GAILRONDA@...

>

> In a message dated 5/25/99 8:44:22 PM Eastern

> Daylight Time,

> musharina73@... writes:

>

> << how many of these cases have you been successful

> in? " >>

> Not how many, but how many and the percentage of

> those. You can have an

> attorney right away. You don't really need one from

> LI. Any attorney

> anywhere can help, so if there's a better one in NJ

> or in CA, use them. It

> all can be done by fax or phone. My husband even

> represented a patient (US

> citizen) in Iceland!

>

>

------------------------------------------------------------------------

> ONElist: the best source for group communications.

>

> Join a new list today!

>

------------------------------------------------------------------------

> This list is intended for patients to share personal

> experiences with each other, not to give medical

> advice. If you are interested in any treatment

> discussed here, please consult your doctor.

>

_________________________________________________________

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Christa,

Don't waste your time on an attorney .....remember,they take about 1/3 to

1/2 of your settlement $$$$......just fill in the application describing,in

detail what a typical day is for you. Being an RN, I can tell you what SSI

" looks for " ...for example if you have pain....on a scale of 1-10 (10 being

the worst) what is your pain level, what helps it,does anything help it,is

it burning,cramping,aching,stabbing....does it wake you up @ night,where is

it located,how does it inhibit your " typical " day....etc.....feel free to

e-mail me...I " won " my SSI 1st time around......when it got to the hearing

level before a judge....believe me, just be truthful, this thing is a

nightmare in and of itself....the truth is the truth, no attorney

needed....good luck! Ann

off topic -- Soc. Sec. Attorney

>From: Christa <TCraig1@...>

>

>Message text written by INTERNET:onelist

>>I know this is off-topic, but I wanted to ask a

>question.......

>

>I just received the green application from SS to apply

>for the first time. I was wondering, from those that

>have applied, do you recommend getting an attorney

>right away or wait until you get denied?

>

>Also, when " interviewing " attorneys, what should I be

>asking (besides " are you familiar with CFS/Fibro? " and

>how many of these cases have you been successful in?<

>

>Funny I'm answering this as my hearing is next week and it looks bad. I

>think the first try is without an attorney, same with second because it

>seems the turndown rate is just screaming. After that, you get one. Also,

>Get a referral from your local support group. Who knows better than those

>who've been there? they can also help with the app process, it's hard.

>

>Christa

>

>------------------------------------------------------------------------

>With more than 17 million e-mails exchanged daily...

>

>...ONElist is THE place where the world talks!

>------------------------------------------------------------------------

>This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

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Hi,

I got attorney after first turndown. You need a lawyer who specialized in

SSD cases, but can't help with NY attorney. Did you sub to DISINISSUES

list. That is excellent source of information.

Take care,

Christie

At 05:46 PM 5/25/99 -0700, you wrote:

>From: Michele Umbach <musharina73@...>

>

>I know this is off-topic, but I wanted to ask a

>question.......

>

>I just received the green application from SS to apply

>for the first time. I was wondering, from those that

>have applied, do you recommend getting an attorney

>right away or wait until you get denied?

>

>Also, when " interviewing " attorneys, what should I be

>asking (besides " are you familiar with CFS/Fibro? " and

>how many of these cases have you been successful in? "

>

>Anyone know of a good attorney for this on Long

>Island?

>

>Sorry this was off-topic! -- Michele

>

>

>--- GAILRONDA@... wrote:

>> From: GAILRONDA@...

>>

>> If you'd like to have your attorney call my husband

>> (he's had hundreds of

>> patients), you can have him call him at (office)

>> 617-227-2020 or (home)

>> 781-925-5336.

>> Gail

>>

>>

>------------------------------------------------------------------------

>> ONElist: where the world talks!

>>

>> Join a new list today.

>>

>------------------------------------------------------------------------

>> This list is intended for patients to share personal

>> experiences with each other, not to give medical

>> advice. If you are interested in any treatment

>> discussed here, please consult your doctor.

>>

>

>_________________________________________________________

>

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RE: The SSI.....I guess everyone has their own opinion about involving

lawyers or not ...whatever works I say. If I'm in the minority re:not having

a lawyer, I believe in our great democracy of the US of A (LOL!) so.....if

majority rules....get the shark....errr..I mean lawyer....just get the

benefits your entilted to....now if I were president.......

Re: off topic -- Soc. Sec. Attorney

>From: GAILRONDA@...

>

>ann, you must have been very lucky to have one during the first time

>around! But my advice stays....never, ever go beyond the level 2 without

an

>attorney. If you lose then, an appeal will cost you so much more up-front

>money (the other takes money only if you are successful) and you can't go

>back and undo any mistakes or add anything. The key to remember is to do

it

>right from the beginning. We have a guidebook that takes you through the

>process step by step. We don't get any money from it (in fact, when

postage

>went up, we figured out we're losing a few cents on each one) and it costs

>what it costs us ($5.00). You're welcome to send for it. But you must

have

>objective proof now. (You didn't need that years ago.) Don't lose what

>you're entitled to. Too many have and there aren't enough safety nets in

>place for all those who have the illess and become destitute.

>Gail

>

>------------------------------------------------------------------------

>Looking to expand your world?

>

>ONElist has over 150,000 e-mail communities from which to chose!

>------------------------------------------------------------------------

>This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

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