Re : Mycoplasma >Nelly

[Guest guest]

Dianne

> BTW my son tested negative for it and he has schizophrenia. I

> still think he may have it. Drugs and some herbs can make the Myco hide so

> it cannot be detected.

I guess you know about people with " schizophrenia " who have improved

dramatically when treated with doxycycline for Rickettsia. Was your son

treated along with the rest of you who tested positive? Yes, mycoplasma and

rickettsia do hide in sanctuary sites and are not always circulating freely

in the blood. Nicolson told me that I could easily test PCR neg if I had the

test 2 months after having been on Abx (for 2 weeks).

>

> Also, my niece (20 yrs. old) called me two days ago and told me she was just

> dx'd with Fibromyalgia. The interesting thing about all this is FM, if it is

> hereditary how did my husband get it, and how did my brother's wife get it

> (my brother has it)?

> It has to be infectious.

At least when it manifests like this! I am personally convinced that we are

not all sufferring from the same thing. I'm sure some of us are sufferring

from smthng infectious, and pbly some of us are indeed contagious, more or

less, depending on the specific agent that ails us. Whether some of us are

originally more prone to falling ill when in contact with these bugs, or

whether environmental factors make us more vulnerable remains to be

discussed. The important thing is trying to " get to " whatever is the main

culprit is at the present time. I don't know if Abx, immunocal, TF,

kutapressin, interferon etc. taken separately or in combination, are the

answer but I definitely think they're the kind of approach we need.

>

> I did get another doctor, one I was told was very sympathetic to FMS. She

> not only wouldn't give me the ABx she sent me to an infectious disease

> specialist who belittled me and told me it was " all in my head " and that I

> was responsible for the mass hysteria of my family and all the people in my

> group who believed me. Also, Drs and labs make up illnesses to get money.

> The last time I saw my new doctor, she agreed with Infectious disease dr.

> When I mentioned I still believed in it because I was better for 9 months on

> the ABX, she told me I needed a psychiatrist and that it was all " placebo

> effect " .

I thought these attitudes were on the way out, especially in the US. I

thought Simon Wessely had retreated to NZ for a year off to lick his wounds.

Obviously not quite out yet. Gee, you must really radiate to be able to

" convince " so many people around you that not only are YOU sick but that

THEY are also all sick with the same thing! You should go into politics.

>

> There is one dr here in Monterey Co. that will treat for it, but even he

> won't go over a year. And if you don't get better within 3 months he will

> take you off. I am going to wait for the research results that Dr. Nicolson

> and others are doing before I make more drs mad at me. There aren't many

> left in this county that will even deal with me anymore.

Yes, that's HUGE pb. And doctors are SOOOOOO conservative and SOOOOOO

sheeplike they just hate to think for themselves(most of them that is), so

once you've been labelled by one it's very hard to get them to contradict

each other, sort of safety in numbers. They don't care about being right or

wrong as long as they are not at odds with their crowd. What their peers

think is what matters, not the truth, and as they almost all think this way

it goes round in circles nobody daring to move until the others do. Being

chronically ill is already so hard without having to battle the very people

who should be helping you.

Don't give up

Nelly

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