Re: back from Toronto after seeing new specialist

[Guest guest]

and Ken -

I have been thinking of you all week, and now can't tell you how happy I am

to hear from you! All I could thinkof was that you would have a bad

experience and how depressing that would be for you both. Instead, it

sounds like just the opposite has happened. If any two people deserve to

have a positive turn of events, it's you. If nothing else now, you have an

advocate on your side and someone who both understands what you're going

through and is in the position to help you. This sounds soooo encouraging!

Great news!

Carol

back from Toronto after seeing new specialist

> Dear all,

>

> We just arrived home today from Toronto. I was impressed with Dr. Wolman

as

> a person and a specialist.

>

> First and foremost, he read some of my e-mail from this group and

understood

> what my husband and I were going through. He brought up the botox

> injections, as well as other procedures and the medication Levsin.

>

> I was so impressed with this G.I. because he did not realize that we were

> friom out of town, and that his secretary forgot to inform him. He still

> managed to get three tests done the following day on SUCH SHORT NOTICE.

He

> did a scope and dilated my husband with a " bushi " instead of a balloon

(which

> he has had numerous dilations with the balloon). If I spelled that

dilation

> procedure wrong, please do not hesitate to correct me.

>

> He, also, prescribed my husband with Levsin and provecid, and we are to

call

> him in four weeks to see if there is any improvement with what he has

done.

> He is extremely hesitant about anymore surgery as anybody would regarding

the

> previous 2 myotomys that were complete failures.

>

> He was in complete agreement with me when I told him that the previous

> surgeon had told my husband that there is nothing more that he could do

for

> him, and that I was extremely angry. Never say that nothing else can be

> done. I sincerely believe that this comment made Dr. Wolman angry. But

as

> the old adage still holds physicians, specialists, etc. will not say

anything

> bad to a patient about another doctor it's just protocol.

>

> I have extremely good feelings about this specialist, and I know that he

will

> do his best to help my husband.

>

> Thanks all

> I have renewed hope!!

>

>

>

>

>

>

>

>

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[Guest guest]

Dear Carol,

I know it sounded promising, and I still have faith in this doctor,

unfortunately, the Levsin gave Ken severe side effects, dizziness, loss of

balance. He almost fell into one of his dump trucks, but still managed to

bruise his arm and head. If he had fallen in it would have killed him, and

I'm not joking.

Also, with this new dilation procedure, his attacks are back severely.

He says he is worse now than before. I am hoping this will calm down. Today

he scared the hell out of me while eating a nectarine; he choked on it and

couldn't answer me. I was scared! I thought I was going to have to use the

Heimlech manoveur. He eventually got it up himself. Scary stuff.

I am going to have to call Dr. Wolman and discuss what's happening to him and

what else can be done to help him. He had an eospgeal motility test, and the

results were bad; he has some swallowing functions, but beyond that there is

no function at all.

Please stay in touch, I need support

Thanks,

[Guest guest]

To and Ken

I am keeping up with reading all your correspondences, and my heart goes out

to both of you. I can relate to the choking problem as that has happened to

me. Believe me it is scary. You don't know where to put yourself. My husband

has given me the heimlick maneuver a couple of times. I have had several

dilations and for me it works. The last one in Aug. of last year, each time

with a bigger no. It was no.5 something and the biggest is no.6 I believe.

Hope it keeps working for a long time because as I understand it I would not

be a good candidate for the myotomy because of my age 70. My thoughts and

prayers are with you both and hope things will get better.

>From: red57kw05@...

>Reply-achalasiaegroups

>achalasiaegroups

>Subject: Re: back from Toronto after seeing new specialist

>Date: Mon, 2 Oct 2000 20:36:48 EDT

>

>Dear Carol,

>

>I know it sounded promising, and I still have faith in this doctor,

>unfortunately, the Levsin gave Ken severe side effects, dizziness, loss of

>balance. He almost fell into one of his dump trucks, but still managed to

>bruise his arm and head. If he had fallen in it would have killed him, and

>I'm not joking.

>

>Also, with this new dilation procedure, his attacks are back severely.

>

>He says he is worse now than before. I am hoping this will calm down.

>Today

>he scared the hell out of me while eating a nectarine; he choked on it and

>couldn't answer me. I was scared! I thought I was going to have to use

>the

>Heimlech manoveur. He eventually got it up himself. Scary stuff.

>

>I am going to have to call Dr. Wolman and discuss what's happening to him

>and

>what else can be done to help him. He had an eospgeal motility test, and

>the

>results were bad; he has some swallowing functions, but beyond that there

>is

>no function at all.

>

>Please stay in touch, I need support

>

>Thanks,

>

>

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[Guest guest]

Have you considered a Botox injection? It really helps some people. Good

luck! Sincerely, Elena

[Guest guest]

Dear and Ken -

How devastated you must be with these new complications!

I seem to remember some other folks in the group taking Procardia instead of

Levsin. Although they do the same thing, I assume, maybe this would not

produce the same side effects.

It's possible that there is some swelling due to the new dilation that is

causing these new problems. If so, then it should go down over time.

Probably the best thing to do is to eat as soft and liquid a diet as

possible for a few days to give the esophagus time to heal??

Obviously, only Dr. Wolman can tell you for sure what's going on, and you're

doing the right thing by calling him as soon as symptoms appear.

Wish there were more we could do...

Hang in there -

Carol

Re: back from Toronto after seeing new specialist

> Dear Carol,

>

> I know it sounded promising, and I still have faith in this doctor,

> unfortunately, the Levsin gave Ken severe side effects, dizziness, loss of

> balance. He almost fell into one of his dump trucks, but still managed to

> bruise his arm and head. If he had fallen in it would have killed him,

and

> I'm not joking.

>

> Also, with this new dilation procedure, his attacks are back severely.

>

> He says he is worse now than before. I am hoping this will calm down.

Today

> he scared the hell out of me while eating a nectarine; he choked on it and

> couldn't answer me. I was scared! I thought I was going to have to use

the

> Heimlech manoveur. He eventually got it up himself. Scary stuff.

>

> I am going to have to call Dr. Wolman and discuss what's happening to him

and

> what else can be done to help him. He had an eospgeal motility test, and

the

> results were bad; he has some swallowing functions, but beyond that there

is

> no function at all.

>

> Please stay in touch, I need support

>

> Thanks,

>

>

>

>

>

>

>

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