Guest guest Posted April 25, 2002 Report Share Posted April 25, 2002 Cathey, yes, I too get that incredible painful feeling on the roof of my mouth, towards the back of my throat. Before I was diagnosed with A I told the doctors about this and they were convinced that it was acid reflux, burining my mouth, but I just knew that it wasn't. I don't get heartburn, ever. It just didn't make sense. I believe we've had conversations on this in this group before, a long time ago, and other people felt the same thing too. You may want to look back in the archives. After my myotomy, I hardly ever get that feeling. But when I do, I cannot continue to eat, my mouth waters, it just hurts so bad it is unreal. --- Cathey Hartwig <catorjon@...> wrote: > Im curious to know if anyone ever gets a " weird " > kind > of pain, usually during eating for me and I think > with > things like sausage or, well I dont really know Im > still trying to pin it down, but its on the roof of > my > mouth, I would compair it to sucking on a lemon it > seems that I will begin to salavate, and then Im at > a > stand still with my mouth watering and I can hardly > swallow saliva,,, actually I dont want to because of > the pain, the lemon feeling??? Milk has always been > my salvation with my A..I can be having a beer while > out to dinner and still I always order a milk with > my > meal!!! Thank you ahead of time! Cathey > --- Wemyss <charles@...> wrote: > > , > > > > Your cure for 'jaw-ache' is a bit different to > mine. > > I get this at > > least twice per day. In general, anything to eat > > will cure it fairly > > immediately. Typically I'll have a packet of > crisps > > or a boiled sweet. > > Something to drink sometimes does the trick but > it's > > not my immediate > > reaction. [i'll try the milk tomorrow] My > > impression is that if I > > don't eat anything and the pain increases that it > > starts spreading to my > > chest. Again, food is the cure. When I first had > > these pains I was > > very worried but the consultant and my GP couldn't > > really help. The > > symptoms would disappear apparently at random; > now, > > I realize, it was at > > mealtimes. I associate my first jaw ache with my > > third dilatation and > > my chest pain with early onset of 'A'. Anyone > else > > out there with a > > similar experience? > > > > Kind Regards, > > > > > > Wemyss > > Aylesbury, UK > > > > Re: Re: More spasms and white > > foam!() > > > > Hiya Jen, > > Like yourself I get really bad pain > in > > my jaw(always have > > had > > from the very start of my " A " ).Now I don't know if > > this will help you(As > > you > > know one persons cure is anothers nightmare)anyway > I > > find that very cold > > milk gulped and slurped(I know this sounds > gross)and > > this makes me belch > > and > > the pain goes away almost immediately,Yet if I > drink > > anything cold > > without > > the pain it is very painful(Very strange I know > but > > as I have always > > said > > when you get a bad attack you will try anything)I > > hope this works for > > you > > and don't get to down hearted(Even though I did > when > > my Hellers > > failed,And I > > know from experience It Is easier said than > > done).Hope this helps take > > care > > (South Wales U.K.) > > > > > ___________________________________________________ > > This email has been > > scanned for all known viruses by our Virus > > Protection System in > > association with Cyber Sentry and Trend Micro. For > > more information > > please visit http://www.bucks.net > > > ___________________________________________________ > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2002 Report Share Posted April 25, 2002 , I get pain in the roof of my mouth sometimes. The only way I can describe it is it feels like my mouth had been burned. Almost like it has blistered. It hurts so bad I can't even stand to drink water. I don't know what other symptoms you have, but I went to see a Rheumatologist. He is the first doctor that didn't give me the "look". I had a bunch of blood work done to test for Sjogren Syndrom. I won't find out for about 3 weeks. I am very nervous. At my next visit I will ask if he knows what causes the pain in the roof of the mouth. Hopefully I will get a answer. Re: Re: More spasms and white> foam!()> > Hiya Jen,> Like yourself I get really bad pain in> my jaw(always have> had> from the very start of my"A").Now I don't know if> this will help you(As> you> know one persons cure is anothers nightmare)anyway I> find that very cold> milk gulped and slurped(I know this sounds gross)and> this makes me belch> and> the pain goes away almost immediately,Yet if I drink> anything cold> without> the pain it is very painful(Very strange I know but> as I have always> said> when you get a bad attack you will try anything)I> hope this works for> you> and don't get to down hearted(Even though I did when> my Hellers> failed,And I> know from experience It Is easier said than> done).Hope this helps take> care> (South Wales U.K.)> > ___________________________________________________> This email has been> scanned for all known viruses by our Virus> Protection System in> association with Cyber Sentry and Trend Micro. For> more information> please visit http://www.bucks.net> ___________________________________________________> __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2002 Report Share Posted April 26, 2002 I too occasionally have pain in the roof of my mouth. It seems to happen just as I begin eating; however, I have not been able to determine the cause or anything in particular that helps. The pain is very intense like a cramp in the roof of my mouth. I can relate. -Betsy > > , > > > > Your cure for 'jaw-ache' is a bit different to mine. > > I get this at > > least twice per day. In general, anything to eat > > will cure it fairly > > immediately. Typically I'll have a packet of crisps > > or a boiled sweet. > > Something to drink sometimes does the trick but it's > > not my immediate > > reaction. [i'll try the milk tomorrow] My > > impression is that if I > > don't eat anything and the pain increases that it > > starts spreading to my > > chest. Again, food is the cure. When I first had > > these pains I was > > very worried but the consultant and my GP couldn't > > really help. The > > symptoms would disappear apparently at random; now, > > I realize, it was at > > mealtimes. I associate my first jaw ache with my > > third dilatation and > > my chest pain with early onset of 'A'. Anyone else > > out there with a > > similar experience? > > > > Kind Regards, > > > > > > Wemyss > > Aylesbury, UK > > > > Re: Re: More spasms and white > > foam!() > > > > Hiya Jen, > > Like yourself I get really bad pain in > > my jaw(always have > > had > > from the very start of my " A " ).Now I don't know if > > this will help you(As > > you > > know one persons cure is anothers nightmare)anyway I > > find that very cold > > milk gulped and slurped(I know this sounds gross)and > > this makes me belch > > and > > the pain goes away almost immediately,Yet if I drink > > anything cold > > without > > the pain it is very painful(Very strange I know but > > as I have always > > said > > when you get a bad attack you will try anything)I > > hope this works for > > you > > and don't get to down hearted(Even though I did when > > my Hellers > > failed,And I > > know from experience It Is easier said than > > done).Hope this helps take > > care > > (South Wales U.K.) > > > > ___________________________________________________ > > This email has been > > scanned for all known viruses by our Virus > > Protection System in > > association with Cyber Sentry and Trend Micro. For > > more information > > please visit http://www.bucks.net > > ___________________________________________________ > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2002 Report Share Posted April 29, 2002 although I remain stumped, and yes I do remember that we had talked about this a while ago, just thought with so many new people I may get more of a clue....I appreciate so much everyones input. Thank you Cathey --- brgrusin <brgrusin@...> wrote: > I too occasionally have pain in the roof of my > mouth. It seems to > happen just as I begin eating; however, I have not > been able to > determine the cause or anything in particular that > helps. The pain > is very intense like a cramp in the roof of my > mouth. I can relate. > -Betsy > > > > > , > > > > > > Your cure for 'jaw-ache' is a bit different to > mine. > > > I get this at > > > least twice per day. In general, anything to > eat > > > will cure it fairly > > > immediately. Typically I'll have a packet of > crisps > > > or a boiled sweet. > > > Something to drink sometimes does the trick but > it's > > > not my immediate > > > reaction. [i'll try the milk tomorrow] My > > > impression is that if I > > > don't eat anything and the pain increases that > it > > > starts spreading to my > > > chest. Again, food is the cure. When I first > had > > > these pains I was > > > very worried but the consultant and my GP > couldn't > > > really help. The > > > symptoms would disappear apparently at random; > now, > > > I realize, it was at > > > mealtimes. I associate my first jaw ache with > my > > > third dilatation and > > > my chest pain with early onset of 'A'. Anyone > else > > > out there with a > > > similar experience? > > > > > > Kind Regards, > > > > > > > > > Wemyss > > > Aylesbury, UK > > > > > > Re: Re: More spasms and > white > > > foam!() > > > > > > Hiya Jen, > > > Like yourself I get really bad pain > in > > > my jaw(always have > > > had > > > from the very start of my " A " ).Now I don't know > if > > > this will help you(As > > > you > > > know one persons cure is anothers > nightmare)anyway I > > > find that very cold > > > milk gulped and slurped(I know this sounds > gross)and > > > this makes me belch > > > and > > > the pain goes away almost immediately,Yet if I > drink > > > anything cold > > > without > > > the pain it is very painful(Very strange I know > but > > > as I have always > > > said > > > when you get a bad attack you will try > anything)I > > > hope this works for > > > you > > > and don't get to down hearted(Even though I did > when > > > my Hellers > > > failed,And I > > > know from experience It Is easier said than > > > done).Hope this helps take > > > care > > > (South Wales U.K.) > > > > > > > ___________________________________________________ > > > This email has been > > > scanned for all known viruses by our Virus > > > Protection System in > > > association with Cyber Sentry and Trend Micro. > For > > > more information > > > please visit http://www.bucks.net > > > > ___________________________________________________ > > > > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2002 Report Share Posted May 9, 2002 I get this but it also includes my 2 back teeth ( for along time I thought it was my teeth) I get it when I have not eaten for a long time, but also with and as a part of the chest spasms. I usually find between 1-3 soup spoons of plain yogurt will completely releave either. Though sometimes not with out considerable burping or throwing up. My theory on this one is that it is part of the nerve line and when you get a spasm it does not always hurt where the problem is. If I eat something that I should not it will cause this a great deal. But if I do not eat at all, I think that the very little bit of signal that my valve gets when I do eat is absent and that it starts to block normal opening and then saliva etc starts to build up and become a problem. If I remember correctly the whole natural digestion prossess actually starts with the smell of food and then goes through each successive phase until we have finished swallowing. Unfortunately with us the process gets interupted at one point. That does not mean our bodies dont need to work out the other points of the process. So I just take it as a signal that I have left not eating too long. After all those of us who cant eat much at a time cant afford to skip meals or forget to eat. Aili --- Cathey Hartwig <catorjon@...> wrote: > although I remain stumped, and yes I do remember > that > we had talked about this a while ago, just thought > with so many new people I may get more of a > clue....I > appreciate so much everyones input. Thank you > Cathey > --- brgrusin <brgrusin@...> wrote: > > I too occasionally have pain in the roof of my > > mouth. It seems to > > happen just as I begin eating; however, I have not > > been able to > > determine the cause or anything in particular that > > helps. The pain > > is very intense like a cramp in the roof of my > > mouth. I can relate. > > -Betsy > > > > > > > > , > > > > > > > > Your cure for 'jaw-ache' is a bit different to > > mine. > > > > I get this at > > > > least twice per day. In general, anything to > > eat > > > > will cure it fairly > > > > immediately. Typically I'll have a packet of > > crisps > > > > or a boiled sweet. > > > > Something to drink sometimes does the trick > but > > it's > > > > not my immediate > > > > reaction. [i'll try the milk tomorrow] My > > > > impression is that if I > > > > don't eat anything and the pain increases that > > it > > > > starts spreading to my > > > > chest. Again, food is the cure. When I first > > had > > > > these pains I was > > > > very worried but the consultant and my GP > > couldn't > > > > really help. The > > > > symptoms would disappear apparently at random; > > now, > > > > I realize, it was at > > > > mealtimes. I associate my first jaw ache with > > my > > > > third dilatation and > > > > my chest pain with early onset of 'A'. Anyone > > else > > > > out there with a > > > > similar experience? > > > > > > > > Kind Regards, > > > > > > > > > > > > Wemyss > > > > Aylesbury, UK > > > > > > > > Re: Re: More spasms and > > white > > > > foam!() > > > > > > > > Hiya Jen, > > > > Like yourself I get really bad > pain > > in > > > > my jaw(always have > > > > had > > > > from the very start of my " A " ).Now I don't know > > if > > > > this will help you(As > > > > you > > > > know one persons cure is anothers > > nightmare)anyway I > > > > find that very cold > > > > milk gulped and slurped(I know this sounds > > gross)and > > > > this makes me belch > > > > and > > > > the pain goes away almost immediately,Yet if I > > drink > > > > anything cold > > > > without > > > > the pain it is very painful(Very strange I > know > > but > > > > as I have always > > > > said > > > > when you get a bad attack you will try > > anything)I > > > > hope this works for > > > > you > > > > and don't get to down hearted(Even though I > did > > when > > > > my Hellers > > > > failed,And I > > > > know from experience It Is easier said than > > > > done).Hope this helps take > > > > care > > > > (South Wales U.K.) > > > > > > > > > > > ___________________________________________________ > > > > This email has been > > > > scanned for all known viruses by our Virus > > > > Protection System in > > > > association with Cyber Sentry and Trend Micro. > > For > > > > more information > > > > please visit http://www.bucks.net > > > > > > > ___________________________________________________ > > > > > > > > > > > > > > __________________________________________________ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2002 Report Share Posted May 14, 2002 yah i getz that too....funny thing is though when i get the jaw ache its kinda pre-spasm..kinda like a warning system that im justa about to get spasms..then i drink freeeeeeezing water (to the point my tongue goes numb) and it subsides..im no expert on this subject...i lurk alot here..i should really get more into the conversations!..and help other people out!..ive just got a new specialist..she says that i should be fine for my older years now...the spasms have wierdly not been as painful as they used to when i was younger...but this is just me...let me stress that!..well im off..have alot of blueberry picking to do (well not really, but it sounds cool!) BEn - crazy buffy fan and 'A' sufferer > > > > > , > > > > > > > > > > Your cure for 'jaw-ache' is a bit different to > > > mine. > > > > > I get this at > > > > > least twice per day. In general, anything to > > > eat > > > > > will cure it fairly > > > > > immediately. Typically I'll have a packet of > > > crisps > > > > > or a boiled sweet. > > > > > Something to drink sometimes does the trick > > but > > > it's > > > > > not my immediate > > > > > reaction. [i'll try the milk tomorrow] My > > > > > impression is that if I > > > > > don't eat anything and the pain increases that > > > it > > > > > starts spreading to my > > > > > chest. Again, food is the cure. When I first > > > had > > > > > these pains I was > > > > > very worried but the consultant and my GP > > > couldn't > > > > > really help. The > > > > > symptoms would disappear apparently at random; > > > now, > > > > > I realize, it was at > > > > > mealtimes. I associate my first jaw ache with > > > my > > > > > third dilatation and > > > > > my chest pain with early onset of 'A'. Anyone > > > else > > > > > out there with a > > > > > similar experience? > > > > > > > > > > Kind Regards, > > > > > > > > > > > > > > > Wemyss > > > > > Aylesbury, UK > > > > > > > > > > Re: Re: More spasms and > > > white > > > > > foam!() > > > > > > > > > > Hiya Jen, > > > > > Like yourself I get really bad > > pain > > > in > > > > > my jaw(always have > > > > > had > > > > > from the very start of my " A " ).Now I don't know > > > if > > > > > this will help you(As > > > > > you > > > > > know one persons cure is anothers > > > nightmare)anyway I > > > > > find that very cold > > > > > milk gulped and slurped(I know this sounds > > > gross)and > > > > > this makes me belch > > > > > and > > > > > the pain goes away almost immediately,Yet if I > > > drink > > > > > anything cold > > > > > without > > > > > the pain it is very painful(Very strange I > > know > > > but > > > > > as I have always > > > > > said > > > > > when you get a bad attack you will try > > > anything)I > > > > > hope this works for > > > > > you > > > > > and don't get to down hearted(Even though I > > did > > > when > > > > > my Hellers > > > > > failed,And I > > > > > know from experience It Is easier said than > > > > > done).Hope this helps take > > > > > care > > > > > (South Wales U.K.) > > > > > > > > > > > > > > > ___________________________________________________ > > > > > This email has been > > > > > scanned for all known viruses by our Virus > > > > > Protection System in > > > > > association with Cyber Sentry and Trend Micro. > > > For > > > > > more information > > > > > please visit http://www.bucks.net > > > > > > > > > > ___________________________________________________ > > > > > > > > > > > > > > > > > > > __________________________________________________ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2002 Report Share Posted May 14, 2002 I have the same pre-spasm warning in the jaw and also in my ear which sometimes gets burning hot. That's how I know I'm about to have a spasm in my esophagus. Funny how we figured out that drinking extremely cold water subsides the spasm. I had an endoscopy for the first time in April. After it was over and I awoke, I had spasm. I was begging the nurse to give me ice cold water, and she kept insisting I'd throw up. It wasn't until the doctor came over and explained to her that I have "A" and to get me the ice, that she finally gave in. I then managed to down 3 cups of ice. I have also discovered that getting my back adjusted by a chiropractor on a weekly basis has aleviated the frequency of my spasms. Before I discovered that I had "A" , I was chewing on Tums like there was no tomorrow. One day I ran out of Tums and only had a cup of ice water. That was how I discovered the ice water trick. I was experiencing intense spasms 3+ times a week. Now I get one maybe once every other month if that. I don't know if any of this would work for you, but it has helped me. Kathy Re: Re: More spasms and> > > white> > > > > foam!()> > > > > > > > > > Hiya Jen,> > > > > Like yourself I get really bad> > pain> > > in> > > > > my jaw(always have> > > > > had> > > > > from the very start of my"A").Now I don't know> > > if> > > > > this will help you(As> > > > > you> > > > > know one persons cure is anothers> > > nightmare)anyway I> > > > > find that very cold> > > > > milk gulped and slurped(I know this sounds> > > gross)and> > > > > this makes me belch> > > > > and> > > > > the pain goes away almost immediately,Yet if I> > > drink> > > > > anything cold> > > > > without> > > > > the pain it is very painful(Very strange I> > know> > > but> > > > > as I have always> > > > > said> > > > > when you get a bad attack you will try> > > anything)I> > > > > hope this works for> > > > > you> > > > > and don't get to down hearted(Even though I> > did> > > when> > > > > my Hellers> > > > > failed,And I> > > > > know from experience It Is easier said than> > > > > done).Hope this helps take> > > > > care> > > > > (South Wales U.K.)> > > > > > > > > >> > >> > ___________________________________________________> > > > > This email has been> > > > > scanned for all known viruses by our Virus> > > > > Protection System in> > > > > association with Cyber Sentry and Trend Micro.> > > For> > > > > more information> > > > > please visit http://www.bucks.net> > > > >> > >> > ___________________________________________________> > > > > > > > > > > > > > > > >> > __________________________________________________> > > > Quote Link to comment Share on other sites More sharing options...
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