Guest guest Posted August 17, 2002 Report Share Posted August 17, 2002 I would like to know if any of you have had a cough related to Achalasia. If so what did you treat it with, how did you deal with it? One of my first symptoms of A was a horrible cough that lasted for several months. It finally went away. At that time I would sometimes wake up during the night knowing that something had gotten into my windpipe. The cough is worse at night, but does occur during the day also. The cough has returned, except this time if I have fluid or food items getting into the windpipe I don't know it. I sleep now on an adjustable bed and have it raised to an angle that this should not happen. I went to my family doctor, he x-rayed my lungs and they were clear. He found no congestion or reason for the cough. He does know that I have Achalasia but he has not had experience in it's treatment and like many general practitioners he doesn't know a lot about it. My throat has become irritated and I have some hoarseness and at time difficulty in breathing. I have been using an Albuterol Inhaler for the breathing and this helps the cough, but I wonder if I am over using it. The doctor who treats my Achalasia is 100 miles away and I have not yet talked to him about this cough. I plan to do that next week, but in the meantime would like to know if any of you have had this problem, what you have done for it etc. I will appreciate any input you guys have. Magg Alabama Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2002 Report Share Posted August 17, 2002 Hi, I no longer have my cough since I had my surgery on The seventh. I used to cough for hours at night, just keeping my lungs clear of fluids. No more. I am feeling so much better. and sleep so good on two soft pillows and another one under that. I used to sleep with a wedge pillow every night. I waited too long for this surgery, but glad I finally had it. I am still on soft food also. I will stay on them for a couple more weeks. Feel safer with that regimen. Good luck to you. Bev. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2002 Report Share Posted August 17, 2002 Hi Magg, yes indeed I know about Achalasia and coughing! Take care to inform Drs if your symptoms deteriorate or even don't go away as you might (I am NOT saying you have!) aspirated/inhaled something. I am at present making a very very slow recovery from pneumonia ........ a total and utter nightmare! Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2002 Report Share Posted August 18, 2002 Thanks to you who responded to my question about the cough. I had not seen that discussed on this group and was beginning to feel like I was the only one who had experienced this. I also know what a nightmare pneumonia can be. I spent 4 days in the hospital in January and had reached the point that I was grasping for breath. That is why when the coughing started this time, I went to my GP to get my lungs x-rayed. I I thought I would never recoup from that. Magg Alabama Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2002 Report Share Posted August 18, 2002 I had a bad cough once and I thought I was getting a bad cold or the flu. A few days later I was admitted to the hospital with pneumonia. I hadn't felt that sick just had the cough and then I was getting really short of breath but it came on gradually and I didn't realize what was happening. I had gone to urgent care on a Saturday and they told me it was a cold and on the next Monday I saw my regular doctor who knew instantly it was pneumonia. I was admitted on the following day so I could be put on IV antibiotics. Just be careful - if you get any other symptoms - fever, shortness of breath - get it checked out. > I would like to know if any of you have had a cough related to > Achalasia. If so what did you treat it with, how did you deal with > it? > > One of my first symptoms of A was a horrible cough that lasted > for several months. It finally went away. At that time I would > sometimes wake up during the night knowing that something > had gotten into my windpipe. The cough is worse at night, but > does occur during the day also. > > The cough has returned, except this time if I have fluid or > food items getting into the windpipe I don't know it. I sleep > now on an adjustable bed and have it raised to an angle that > this should not happen. I went to my family doctor, he x-rayed > my lungs and they were clear. He found no congestion or reason > for the cough. He does know that I have Achalasia but he has > not had experience in it's treatment and like many general > practitioners he doesn't know a lot about it. > > My throat has become irritated and I have some hoarseness and > at time difficulty in breathing. I have been using an Albuterol > Inhaler for the breathing and this helps the cough, but I wonder > if I am over using it. > > The doctor who treats my Achalasia is 100 miles away and I > have not yet talked to him about this cough. I plan to do that > next week, but in the meantime would like to know if any of > you have had this problem, what you have done for it etc. I > will appreciate any input you guys have. > > Magg > Alabama Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2002 Report Share Posted August 18, 2002 -Hi Magg - add me to the list of " coughers " . When I think back I had a dry cough for probably a year or so before I started with the swallowing problems. I always put it down to post-nasal drip, but could never get a definite answer. Since I was diagnosed with Achalasia, I read somewhere that coughing can indeed be a symptom, but am not sure why. My cough was very deep and very irritating to the throat. All I did for some comfort was to suck on a cough losenge.A lot of people told me that my voiced changed too and it sounded like I might have a cold. Anyway since my surgery almost three years ago, I very seldom experience the coughing or for that matter any of the other achalasia symptoms I used to have...thank goodness!! Just to let you know - you are not alone..... All the best......, Vancouver Canada -- In achalasia@y..., MaggWho@a... wrote: > I would like to know if any of you have had a cough related to > Achalasia. If so what did you treat it with, how did you deal with > it? > > One of my first symptoms of A was a horrible cough that lasted > for several months. It finally went away. At that time I would > sometimes wake up during the night knowing that something > had gotten into my windpipe. The cough is worse at night, but > does occur during the day also. > > The cough has returned, except this time if I have fluid or > food items getting into the windpipe I don't know it. I sleep > now on an adjustable bed and have it raised to an angle that > this should not happen. I went to my family doctor, he x-rayed > my lungs and they were clear. He found no congestion or reason > for the cough. He does know that I have Achalasia but he has > not had experience in it's treatment and like many general > practitioners he doesn't know a lot about it. > > My throat has become irritated and I have some hoarseness and > at time difficulty in breathing. I have been using an Albuterol > Inhaler for the breathing and this helps the cough, but I wonder > if I am over using it. > > The doctor who treats my Achalasia is 100 miles away and I > have not yet talked to him about this cough. I plan to do that > next week, but in the meantime would like to know if any of > you have had this problem, what you have done for it etc. I > will appreciate any input you guys have. > > Magg > Alabama Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2002 Report Share Posted August 18, 2002 , when you first had your surgery, did you have trouble getting some food down, even soft foods? I still have trouble getting some things down, but if I drink water, it helps a lot. I am twelve days post-surgery. The pain in my shoulders is starting to go away and I still sleep a lot. I am planning to return to work on Wed. maybe just four hours. Very little pain in the five small incisions. I do sleep so much better without the reflux. If I wake up now it is do to minor pain in shoulder or restroom call. Otherwise, I sleep on very few pillows, almost flat, and sleep very well. So glad you are posting so that we can ask you questions. Thanks. Bev. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2002 Report Share Posted August 18, 2002 I too, have a cough. What I thought was post-nasal drip, since I have allergies, I went to my ear, nose and throat doctor who gave me atrovent for rhinitis (a runny nose.) He knew about " A " and said my coughing is associaed with achalasia. Sometimes when I cough, I bring up phlem or saliva. My voice also changes at times and sounds like I have a cold. When that happens, I have a harder time talking and my voice seems lower. It seems to be a strain on my throat. The coughing happens a few times a day. Mass >From: " natvancouver2002 " <natvancouver2002@...> >Reply-achalasia >achalasia >Subject: Re: Cough related to Achalasia >Date: Sun, 18 Aug 2002 06:28:43 -0000 > >-Hi Magg - add me to the list of " coughers " . When I think back I had >a dry cough for probably a year or so before I started with the >swallowing problems. I always put it down to post-nasal drip, but >could never get a definite answer. Since I was diagnosed with >Achalasia, I read somewhere that coughing can indeed be a symptom, >but am not sure why. My cough was very deep and very irritating to >the throat. All I did for some comfort was to suck on a cough >losenge.A lot of people told me that my voiced changed too and it >sounded like I might have a cold. Anyway since my surgery almost >three years ago, I very seldom experience the coughing or for that >matter any of the other achalasia symptoms I used to have...thank >goodness!! Just to let you know - you are not alone..... >All the best......, Vancouver Canada > -- In achalasia@y..., MaggWho@a... wrote: > > I would like to know if any of you have had a cough related to > > Achalasia. If so what did you treat it with, how did you deal with > > it? > > > > One of my first symptoms of A was a horrible cough that lasted > > for several months. It finally went away. At that time I would > > sometimes wake up during the night knowing that something > > had gotten into my windpipe. The cough is worse at night, but > > does occur during the day also. > > > > The cough has returned, except this time if I have fluid or > > food items getting into the windpipe I don't know it. I sleep > > now on an adjustable bed and have it raised to an angle that > > this should not happen. I went to my family doctor, he x-rayed > > my lungs and they were clear. He found no congestion or reason > > for the cough. He does know that I have Achalasia but he has > > not had experience in it's treatment and like many general > > practitioners he doesn't know a lot about it. > > > > My throat has become irritated and I have some hoarseness and > > at time difficulty in breathing. I have been using an Albuterol > > Inhaler for the breathing and this helps the cough, but I wonder > > if I am over using it. > > > > The doctor who treats my Achalasia is 100 miles away and I > > have not yet talked to him about this cough. I plan to do that > > next week, but in the meantime would like to know if any of > > you have had this problem, what you have done for it etc. I > > will appreciate any input you guys have. > > > > Magg > > Alabama > _________________________________________________________________ MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2002 Report Share Posted August 18, 2002 Thanks Sandy for writing. You have described my cough better than I could myself. You have also made me realize something that I had not before. I said in my first email on this subject that my symptoms started with a cough and then later it left. You are right, it left after I reached the point that I could not swallow. My cough is dry in that I have no sputum, but it sounds like something is breaking loose in my chest or lungs. I had a dilatation in September of 2001. I am just now beginning to have problems with swallowing again, but it is not bad enough yet that I wanted another dilatation or surgery. If you are right about it stopping as the swallowing gets worse, and I am betting you are, then I can look forward to my swallowing getting really bad in the next few months. I had a horrible cough with the pneumonia and would wind up not being able to breath. My oxygen count when I went to the hospital was 53. I think this cough was due to the pneumonia and not the Achalasia. Thanks to all who have written. I will call my Gastroenterologist this week. Magg Alabama Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2002 Report Share Posted August 18, 2002 Before my symptoms got severe and I was diagnosed I would get a normal cold and end up with a cough for MONTHS. Very severe dry coughing starting with a tickle in my throat. I carried around a bottle of cough syrup all the time. Never could really trace it to an infection or any normal complication from a cold. I too have allergies and thought it was related to that. I went to a Tina concert and had an attack and swigged on a bottle of cough syrup the whole concert. Seems like once the swallowing problems got worse the other symptoms lightened up, like the spasms and the day cough. The night cough got much worse however. My doctor told me that I had to do something once the night coughing started, the risk of aspirating is very serious and is not to be taken lightly. Worse than coughing at night is not to cough (maybe because you are so asleep?) and wake up not able to breath and choking. That happened to me several times and was pretty scary. Personally I think the saliva sits in your esophagus and causes the coughing problems, makes sense to me that when you are asleep the saliva gets into your lungs and bronchia. As I've said before I think the white foam problem we have all had is saliva mixed with air. > I would like to know if any of you have had a cough related to > Achalasia. If so what did you treat it with, how did you deal with > it? > > One of my first symptoms of A was a horrible cough that lasted > for several months. It finally went away. At that time I would > sometimes wake up during the night knowing that something > had gotten into my windpipe. The cough is worse at night, but > does occur during the day also. > > The cough has returned, except this time if I have fluid or > food items getting into the windpipe I don't know it. I sleep > now on an adjustable bed and have it raised to an angle that > this should not happen. I went to my family doctor, he x-rayed > my lungs and they were clear. He found no congestion or reason > for the cough. He does know that I have Achalasia but he has > not had experience in it's treatment and like many general > practitioners he doesn't know a lot about it. > > My throat has become irritated and I have some hoarseness and > at time difficulty in breathing. I have been using an Albuterol > Inhaler for the breathing and this helps the cough, but I wonder > if I am over using it. > > The doctor who treats my Achalasia is 100 miles away and I > have not yet talked to him about this cough. I plan to do that > next week, but in the meantime would like to know if any of > you have had this problem, what you have done for it etc. I > will appreciate any input you guys have. > > Magg > Alabama Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 Funny thing about this disease is that until you figure out what you have you don't put the symptoms together. Do you suppose that coughing was our poor old esophagus' just dying away? It was the strangest cough and so CONSTANT. I swear it took at leat 4 if not 6 months to go away. They didn't make a cough syrup bottle large enough for me. I had a dilation in Feb 2002 and now see the symptoms returning slightly. I can live with it but anticipate a problem in a year or so. Until I get night coughs I think I'll ignore it. My doctor said it takes years and years for an esophagus to stretch and mine isn't yet.... Another interesting symptom, my father was in the hospital in November and I wanted to give platelets, similar to giving blood, but takes a couple of hours hooked on a machine. They test your blood before they do it because of all the time and expense involved. I felt fine, hadn't been sick other than couldn't swallow, was losing weight, had night coughs but no other problems and my white count was so hugely elevated they thought I was the one with leukemia and they couldn't take my platelets or let me give blood. I couldn't figure out why, although I apparently have gall stones but they aren't doing anything. I never really did anything about it and didn't have any more tests, but I happened to file away some test results from my first endoscopy where there was indications of infection in the esophagus. Do you suppose that infection caused the white count to be so high? Is that maybe why I get tired or is it age? Grosses me out to thing food sits there so long it causes infection. I have no reflux problem so that shouldn't be it. Maybe there are so good things we don't know about achalasia, maybe it stops alzheimers or keeps us from getting certain cancers. With so many strange parts to it surely some of them are beneficial besides losing weight. That was great for me for a while, but when I could eat the pounds just came back on like gangbusters, my metabolism just couldn't handle the food, it was used to starving. I've finally evened out but that part is discouraging, I didn't need that weight back. sandy > Thanks Sandy for writing. You have described my cough better > than I could myself. You have also made me realize something > that I had not before. I said in my first email on this subject that > my symptoms started with a cough and then later it left. You > are right, it left after I reached the point that I could not swallow. > My cough is dry in that I have no sputum, but it sounds like something > is breaking loose in my chest or lungs. > > I had a dilatation in September of 2001. I am just now beginning > to have problems with swallowing again, but it is not bad enough > yet that I wanted another dilatation or surgery. If you are right > about it stopping as the swallowing gets worse, and I am betting > you are, then I can look forward to my swallowing getting really > bad in the next few months. > > I had a horrible cough with the pneumonia and would wind up > not being able to breath. My oxygen count when I went to the > hospital was 53. I think this cough was due to the pneumonia > and not the Achalasia. > > Thanks to all who have written. I will call my Gastroenterologist > this week. > > Magg > Alabama Quote Link to comment Share on other sites More sharing options...
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