Guest guest Posted January 2, 2003 Report Share Posted January 2, 2003 Mark When our son was first diagnosed he had become quite frail from lack of nutriton. When we finally figured out the problem, he had basically gone a year without putting on any weight or growing. We had to act fast. The GI specialist here at Children's Hospital in Boston took him in right away and did the dilitation ( an endoscopic, not a surgical procedure) and he improved dramatically. He just recently began having symptoms again and needed to go in for another procedure. Unfortunately, this problem does not seem to go away by itself...how we wish it could! 11 year olds are on th brink of puberty ( the horror the horror ! ) their bodies are growing and changing every day and they need all the nutrition they can get. I think we will relax a little more about this condition once his body has fully grown. Do you have a Children's Hospital nearby? What does your pediatrician think? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2003 Report Share Posted January 2, 2003 , Our pediatrician doesn't know anything about this problem (and luckily will admit so) but also doesn't have anyone to recommend. We've been to see 1 ped. GI but found his demeanor didn't inspire confidence. My girl also has lost about 10 pounds (weighs 65 now). She's always been trim but this is just a little too much so. Just being aware of the problem has helped alot and she's starting to eat more wisely and perk up again. There is a highly rated Children's Hospital in Detroit but they excel in general pediatrics. For Gastroenterology there are other more highly rated choices. Mark > Mark > When our son was first diagnosed he had become quite frail from lack > of nutriton. When we finally figured out the problem, he had > basically gone a year without putting on any weight or growing. We > had to act fast. The GI specialist here at Children's Hospital in > Boston took him in right away and did the dilitation ( an endoscopic, > not a surgical procedure) and he improved dramatically. He just > recently began having symptoms again and needed to go in for another > procedure. Unfortunately, this problem does not seem to go away by > itself...how we wish it could! 11 year olds are on th brink of > puberty ( the horror the horror ! ) their bodies are growing and > changing every day and they need all the nutrition they can get. I > think we will relax a little more about this condition once his body > has fully grown. Do you have a Children's Hospital nearby? What does > your pediatrician think? > Quote Link to comment Share on other sites More sharing options...
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