Guest guest Posted August 24, 2000 Report Share Posted August 24, 2000 Dear Carolyn, "Now today's outcome. The neuro has ordered another choke test since I'm having more problems oftener and worse." Are you on any anti myolconic medications like clonzaepam? "He says that we have to get aggressive with the MG. He is saying large doses of Imuran or massive doses of Prednisone." I thought you could not tolerate imuran? "What can I do? He is really trying to help me, He will consult with my PC who will consult with her husband who is a immunrologist and they will come up with something that I won't like." LMAO ... they always come up with something you wont like. They spend years training for that very reason! LOL. Would you like me to ask my Dr? (He is an immunologist.) "I was also waarned again that I cannot be sedated or put to sleep without the risk of not waking up. Also I must not get pneumonia from asperating, I would not live through it either" Asperating what? "Not a promising picture is it?" It sounds rather scary hon? How are you coping? "He's concerned about my eyes and vision." Is that cause of neurological interaction? "He wants to fix my carparl tunnel with local but I'm not getting cut on again if I can get by." You are not supposed to have any surgery or even dental work when you are on immune suppressants like Imuran or Prednisone hon. "Well that's about all of it for today." Did it wear you out? Could you do the stairs? How are you dealing with it all? How is jared? Sid? etc .... How do you feel about all of this sweetie? "What's happening with all of you?" Had my monthly pathology tests today. So will tell you results as soon as I know. Thats it. No news LOL. Gwydion has started working on renovating our new house so we will prolly move in 6-8 weeks. Unfortunaly the lady who takes my blood (and has done so for 2 years - knows my veins etc) will be unable to do so at the new suburb ... sux ... anyhow thats all the news I have. Love you Carolyn! xox Aisha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2000 Report Share Posted August 25, 2000 Anne Hi This is the perfect explanation of what Iam going through. It is worse at night,just after supper. I appreciate you finding this for us. Carolyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2000 Report Share Posted August 25, 2000 "I was also waarned again that I cannot be sedated or put to sleep without the risk of not waking up. Also I must not get pneumonia from asperating, I would not live through it either" Asperating what? Aspiration Pneumonia is caused by putting something into you lungs, that belongs in your stomach. The worst & most common thing that cause Aspiration Pneumonia is stomach acid, which due to it being acid burns and does major damage to the lung tissue! According to HealthGate... http://uswest.snap.com/main/page/pcp/0,3,-3978,00.html?st.sn.sr.8.2_3978 http://www3.healthgate.com/default.asp?docid=/factsheets/Pneumonia/occur Aspiration pneumonia occurs when gastrointestinal (GI) problems cause stomach contents to back up into the esophagus and trachea. From there they are breathed into the lungs. The normal bacteria that live in the the mouth if breathed into the lungs can also cause pneumonia. The doctor will suspect aspiration pneumonia if you: have a disease of the central nervous system are intoxicated with drugs or alcohol have stomach problems. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2000 Report Share Posted August 25, 2000 I was on Rantidine until June. She took me off of it. When I was on the real strong heart meds she started it because they damaged my stomach. I don't know if she will start it again. I have the choke test Sept.5 and I see her Sept 8. The neuro said he would talk to me after the choke test. I'm on hold for now. Love and hugs Carolyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2000 Report Share Posted August 25, 2000 Faulkncs@... wrote: Anne Hi This is the perfect explanation of what Iam going through. It is worse at night,just after supper. I appreciate you finding this for us. Carolyn You Are Ever So WELCOME!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2000 Report Share Posted August 26, 2000 "Aspiration Pneumonia is caused by putting something into you lungs, that belongs in your stomach. The worst & most common thing that cause Aspiration Pneumonia is stomach acid, which due to it being acid burns and does major damage to the lung tissue! " Carolyn, are you on something like Ranitidine to stop getting reflux from the acidity? *HUGS*xox A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2000 Report Share Posted August 26, 2000 Dear Aisha For now everything is on hold until I have the choke test and see my PC. I still plan not to take Imuran because of the nausea and weakness and other side affects. You never know what they will make you do though. I am still nervous about being alone for hours on end, but the Dr. seemed alright with me having LIFELINE. He was not happy until then. is doing better with his wrist, but is still having pain with it. He has a wedding and a funeral next week to play for. He is worried about not being able to practice enough. Sid is taking better care of things around here. The change is unbelievable. He is really being nice too. I don't think I'll hold my breath though for it to last forever. If there is any change you will be the first to know. I am doing a lot of resting and reading and getting along fairly well so don't worry. Thanks for asking about me. Love you all dearly Grandma Hen Carolyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2002 Report Share Posted September 6, 2002 In a message dated 9/6/2002 11:11:36 PM Central Daylight Time, pickndaisies2002@... writes: > Do any of you guys choke a lot? On food or just saliva? I'm incredibly careful when chewing (ok, not always, but sometimes I'm in a rush =P) and stay away from my " trigger " foods like lettuce, celery, apples, etc. I can swallow fine in the perfect position which isn't always so easy to find. Does anyone else find swallowing saliva is more difficult than food sometimes? -Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2002 Report Share Posted September 6, 2002 Depends on the food....I can't eat popcorn or nuts at all.........even some tortilla/corn chips send me hacking away. Are there certain foods you're having trouble with or just *general* choking? pickndaisies2002 wrote:Do any of you guys choke a lot? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2002 Report Share Posted September 6, 2002 *nods head up and down* blueyedaze@... wrote:In a message dated 9/6/2002 11:11:36 PM Central Daylight Time, pickndaisies2002@... writes: > Does anyone else find swallowing saliva is more difficult than food sometimes? -Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2002 Report Share Posted September 6, 2002 I mean....do you choke like.....do you airways get blocked off? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2002 Report Share Posted September 6, 2002 Same here, a. Re: Choking Depends on the food....I can't eat popcorn or nuts at all.........even some tortilla/corn chips send me hacking away. Are there certain foods you're having trouble with or just *general* choking? pickndaisies2002 wrote:Do any of you guys choke a lot? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2002 Report Share Posted September 7, 2002 In a message dated Fri, 6 Sep 2002 11:35:24 PM Eastern Standard Time, blueyedaze writes: > Does anyone else find swallowing saliva > is more difficult than food sometimes? Yes and I choke on saliva a lot! My ST tell me to drink more water and even warm drinks seem to help " thin " it out. I just seem to have alot of it in my mouth. ~s, the unique princess~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2002 Report Share Posted September 7, 2002 I take Robinol to dry up my saliva. So do others in this group. Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2002 Report Share Posted September 7, 2002 How can you choke on your saliva??? and when you people choke, do you choke as in....cant breathe....or choke as in...hack cough...etc? what if you go somewhere.....do you bring a suction?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2002 Report Share Posted September 7, 2002 Same here. I'd be dead without my trach. I just love my little " blow hole " ! Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2002 Report Share Posted September 7, 2002 In a message dated 9/7/2002 10:55:35 PM Central Daylight Time, pickndaisies2002@... writes: > why would you be dead????? youre scarying me!!!!!!!! > > People with SMA often do not have the strength to cough to clear their > airway of mucous, food, saliva, or whatever. In fact, many of us cannot > even blow out our birthday candles! Without or trachs to suction out the > food, mucous saliva, etc...we would suffocate by asphyxiation.....or drown > in our own slime! > > Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2002 Report Share Posted September 7, 2002 It would make you vomit Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2002 Report Share Posted September 7, 2002 I have a trach..if I didn't......I'd probably be dead a few times over..... pickndaisies2002 wrote:I mean....do you choke like.....do you airways get blocked off? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2002 Report Share Posted September 7, 2002 In a message dated 9/7/2002 11:20:30 PM Central Daylight Time, pickndaisies2002@... writes: > why cant you suction it out of your throat? Suctioning through your mouth goes to your esophagus, not your " airpipe " (trachea). It also causes you to gag and vomit.....which can cause strangulation. Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2002 Report Share Posted September 7, 2002 why would you probably be dead a few times over if you didnt have a trach????? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2002 Report Share Posted September 7, 2002 Airways get blocked off by aspiration. Food blocking it, mucous, whatever. Rarely, do our tracheas collapse. Usually something blocks them causing choking. Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2002 Report Share Posted September 7, 2002 Well, I wouldn't have had an extra airway to breathe through...... pickndaisies2002 wrote:why would you probably be dead a few times over if you didnt have a trach????? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2002 Report Share Posted September 7, 2002 why? what did you choke on??? do you have aol or messenger? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2002 Report Share Posted September 7, 2002 why would you be dead????? youre scarying me!!!!!!!! Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.