Guest guest Posted January 27, 2006 Report Share Posted January 27, 2006 Dearest Tonia... I implore you to go see one of the specialists. The issue here is .... not what you can do to correct it... but WHAT IS CAUSING IT?? There could be any number of things. So again I urge you to get him soon to a SPECIALIST to see what is happening... I cannot imagine there will be school, sports, a social life... if he cannot heal correctly. Before looking for drugs to mask it, or relieve it... find out what is causing the problems... PLEASE! I can only imagine the depression he is going through, and the thoughts that are invading his pre-hormone, pre adolescent mind about what life is going to hold for him. I DONT KNOW WHAT YOUR DOCTOR IS GOING TO SAY... BUT WHAT DOES THE SPECIALIST IN THIS FIELD SAY... Does it seem like I am yelling ... I am sorry... But what your current doctor has to say.. would not be important, if you child is not improving drastically!! You have read what others who have had the Myo/fundo say, you know how it should be... what more do you need to hear to let you know that you should go get a second opinion asap. Even before your monday appt. If you dont have the money... call your church, or a local church and ask them for help.... they will Go go go... Carolyn mom of Cameron... in CAtoniasdogsandi <toniasdogsandi@...> wrote: Ihave heard back from a few Drs and they are also saying my son should not be having these problems.(as we all knew)When I go Monday I will be sure to let this Dr know that other DRs are even saying its unusual and is not normal.What kinda come back can he possibly say after that?? I have already warned my husband that the police will have to carry me out of there if they dont find the problem! He has had 3 horrible spasms this week and has vomited 3 x yesterday.Question- How many of you take meds to help with the E spams?If so what do you take? The first time the drinking water actually helped but nothing eased up on the other 2 but time.I want to find out about a med or something that he will be able to have with him when hes away from home and should have a spell.Whats he to do when he goes back to school?Sports? I did read about the caratafe liquid .Iknow its no cure out there but something should be available to help ease the pain. I have read that some take nitroglycerin,muscle relaxers,antidepressents etc..Any one here-Thanks Tonia Quote Link to comment Share on other sites More sharing options...
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