Guest guest Posted February 5, 2006 Report Share Posted February 5, 2006 Pelligrini, Caroyln? Please put a simple English Girl out of her misery. (Think I need to do some research on The United States and its mysterious words).> > >> > > ,> > > I have never really responded directly to you, but I have been > > > following your posts for the past few months. As someone who is > > > currently facing the decision of having an esophogectomy or not, > all I > > > can say is this: > > > > > > Given the rarity of your husband's disorder, and the struggles > you > > > have both faced with it over the past few months, and the big > decision > > > that lies ahead....the bottom line is that you owe it to > yourselves > > > (BOTH of you) to explore ALL the options out there. That's it. > End of > > > story. You will not know what is best unless you check out all > the > > > options. > > > > > > If Dr. Patti has more experience with this disease or with the > > > specific surgery that has better outcomes, than no harm will come > from > > > going to see him. You already have the trip booked, so just stick > to > > > your plan and see what comes of it. The alternative is convincing > > > yourself that the Cleveland Clinic is the best choice, and then > trying > > > to keep your mind from nagging you the whole time your husband is > in > > > surgery with Dr. Rice. (I'm not trying to sound harsh here, but I > > > really believe that you need to see Dr. Patti from what you have > > > shared with us). Best case, you meet Dr. Patti and it ends up > being > > > the best decision you have made so far. Worst case, you take the > trip > > > and still decide to go with TCC - then you can chalk it up to a > > > Valentine's Day vacation with your hubby, but at least you will > rest > > > easy and know that you checked it out and really made a decision > based > > > on all the facts. > > > > > > OK, enough said. I wish you MUCH luck. > > > in upstate NY> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2010 Report Share Posted February 5, 2010 Hi, Dr. Patti doesn't do extraneous stuff... you will find that he is very succinct in what he does. He has incredible knowledge. Feel freee to ask him every thing and anything.. He will certainly tell you. also be sure to ask for your reports to keep on hand. Cameron was one of his challenges... so he knows him well.! When do you go? Carolyn... mom to Cameron... From: stradivarius423 <stradivarius423@...> Subject: To Carolyn achalasia Date: Thursday, February 4, 2010, 5:43 PM  Hi Carolyn, Thanks again for sharing. Has Cameron ever had the " timed Barium swallow " like mentioned in her note #57152? I will definitely say Hi to Dr. Patti for you. --YJ > > > > > > From: stradivarius423 <stradivarius423@ ...> > > Subject: What Prompts You to Have Dilatation or Another Surgery after Heller myotomy > > achalasia@grou ps.com > > Date: Tuesday, February 2, 2010, 7:26 PM > > > > > >  > > > > > > > > It seems to me that a lot of you have more procedures dons after a Heller myotomy. What triggers the needs for more to be done? How soon did the symtomes come back? > > > > I don't know how much I should worry about the way my 15-year-old daughter, Jessie, is experiencing and if we should consider to have a dilatation or another surgery if the doctor is recommending to do so. We're going to see Dr. Patti in March. > > > > --YJ > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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