Re: re.Going downhill fast

[Guest guest]

I had my doctor prescribe the liquid form of antibotic when I had infections so

you may

want to try that avenue.

Peggy

>

> Hello to everyone in the group and first I must apologise for not

> answering all your wonderful messages sooner but the day after the

> meeting with my consultant I contracted a nasty flu-like infection

> which concentrated on my chest making my cough 10 times worse and

> the miseries of 'A' even harder to deal with. This is what I'd been

> dreading since being diagnosed.

>

> Anyway, my GP put me on antibiotics which was fine until I tried

> swallowing a capsule with water and the darned thing refused to

> enter my stomach. I think it might be the plastic coating because I

> take 2 smaller blood pressure pills every morning with no problem.

>

> So I can't be sure how much antibiotic I'm getting into my system at

> any one time.

>

> Dear God, is there no end to the list of complications you can

> experience with this disease. If I hadn't discovered this club I

> don't know how I would have coped. My family are trying their best

> to support me but unless you are an Achalasian you can never

> understand what we are going through.

>

> I've had the worse symptoms of 'A' for just a few months and I know

> that many of you have had this for a much longer period of time. So

> I should be ashamed of myself - maybe its because of my weakened

> state. I think any illness you get combined with 'A' is a whole lot

> worse than it would have been otherwise.

>

> Oh, I will be able to have a pneumonia jab when this clears up so

> that'll be one less problem to worry about.

>

> I hope in time I will be able to contribute more to this group

> through my own experience because in the few weeks I've been in I've

> received more info, advice & helpful tips than all the medical

> establishments in this area.

>

> Thanks again to you all.

>

> in Essex xxx

>

[Guest guest]

Dear ,

I was going to say exactly the same as Peggy. Antibiotics are available for children routinely in liquid form, so you wouldn't be asking for anything obscure. I know what you mean about the tablets and the lack of control you feel, because antibiotics need to be absorbed regularly to work properly as a course.

So now it's your turn to be up in the night. Why is it always 3.30 ish? Was it Dave who suggested we changed out chat room time to that? I am beginning to think he has a good idea there. Talking about the Chat Room, i noticed that Nate was feeling very lonely there the other night. I would quite enjoy to have an online chat, but my problem is that I don't know what time 6pm Pacific Time is (duh!). C'mon , sort me out. You are the best American/British link we have on this Board.

I do understand what you say about being ashamed but actually I think you have more problems at the start of this condition because you are more frightened and are still sorting out how to manage it. In my experience, the longer things go on, the more confident and in control and knowledgable you will feel. My biggest problem for a long time was the loneliness and now I DO NOT HAVE THAT PROBLEM - YEAHH !!!

Love from your Cybersister in the North xxxxxxx>> Hello to everyone in the group and first I must apologise for not > answering all your wonderful messages sooner but the day after the > meeting with my consultant I contracted a nasty flu-like infection > which concentrated on my chest making my cough 10 times worse and > the miseries of 'A' even harder to deal with. This is what I'd been > dreading since being diagnosed.> > Anyway, my GP put me on antibiotics which was fine until I tried > swallowing a capsule with water and the darned thing refused to > enter my stomach. I think it might be the plastic coating because I > take 2 smaller blood pressure pills every morning with no problem.> > So I can't be sure how much antibiotic I'm getting into my system at > any one time.> > Dear God, is there no end to the list of complications you can > experience with this disease. If I hadn't discovered this club I > don't know how I would have coped. My family are trying their best > to support me but unless you are an Achalasian you can never > understand what we are going through.> > I've had the worse symptoms of 'A' for just a few months and I know > that many of you have had this for a much longer period of time. So > I should be ashamed of myself - maybe its because of my weakened > state. I think any illness you get combined with 'A' is a whole lot > worse than it would have been otherwise.> > Oh, I will be able to have a pneumonia jab when this clears up so > that'll be one less problem to worry about.> > I hope in time I will be able to contribute more to this group > through my own experience because in the few weeks I've been in I've > received more info, advice & helpful tips than all the medical > establishments in this area.> > Thanks again to you all.> > in Essex xxx>

[Guest guest]

-If I remember right Maggie sent a web contact for the time zones

back in Nov or Dec. I needed to find it again as well so I can at one

time or two try to be in the chat room too.

I am afraid I am hopless at this so I will be days before I scroll

through and find it again. Maybe there is a short cut to find it.

-- In achalasia , " Ann " <lilac_blossom_lady@...> wrote:

>

>

> Dear ,

>

> I was going to say exactly the same as Peggy. Antibiotics are

available

> for children routinely in liquid form, so you wouldn't be asking for

> anything obscure. I know what you mean about the tablets and the

lack of

> control you feel, because antibiotics need to be absorbed regularly

to

> work properly as a course.

>

> So now it's your turn to be up in the night. Why is it always 3.30

ish?

> Was it Dave who suggested we changed out chat room time to that?

I am

> beginning to think he has a good idea there. Talking about the Chat

> Room, i noticed that Nate was feeling very lonely there the other

night.

> I would quite enjoy to have an online chat, but my problem is that

I

> don't know what time 6pm Pacific Time is (duh!). C'mon ,

sort me

> out. You are the best American/British link we have on this Board.

>

> I do understand what you say about being ashamed but actually I

think

> you have more problems at the start of this condition because you

are

> more frightened and are still sorting out how to manage it. In my

> experience, the longer things go on, the more confident and in

control

> and knowledgable you will feel. My biggest problem for a long time

was

> the loneliness and now I DO NOT HAVE THAT PROBLEM - YEAHH !!!

>

> Love from your Cybersister in the North xxxxxxx

>

> >

> > Hello to everyone in the group and first I must apologise for not

> > answering all your wonderful messages sooner but the day after the

> > meeting with my consultant I contracted a nasty flu-like infection

> > which concentrated on my chest making my cough 10 times worse and

> > the miseries of 'A' even harder to deal with. This is what I'd

been

> > dreading since being diagnosed.

> >

> > Anyway, my GP put me on antibiotics which was fine until I tried

> > swallowing a capsule with water and the darned thing refused to

> > enter my stomach. I think it might be the plastic coating because

I

> > take 2 smaller blood pressure pills every morning with no problem.

> >

> > So I can't be sure how much antibiotic I'm getting into my system

at

> > any one time.

> >

> > Dear God, is there no end to the list of complications you can

> > experience with this disease. If I hadn't discovered this club I

> > don't know how I would have coped. My family are trying their best

> > to support me but unless you are an Achalasian you can never

> > understand what we are going through.

> >

> > I've had the worse symptoms of 'A' for just a few months and I

know

> > that many of you have had this for a much longer period of time.

So

> > I should be ashamed of myself - maybe its because of my weakened

> > state. I think any illness you get combined with 'A' is a whole

lot

> > worse than it would have been otherwise.

> >

> > Oh, I will be able to have a pneumonia jab when this clears up so

> > that'll be one less problem to worry about.

> >

> > I hope in time I will be able to contribute more to this group

> > through my own experience because in the few weeks I've been in

I've

> > received more info, advice & helpful tips than all the medical

> > establishments in this area.

> >

> > Thanks again to you all.

> >

> > in Essex xxx

> >

>