Re: seeking advise on manometry...EVITA

[Guest guest]

Evita--- Just how is this one other person a " local superstar " ?

Elaborate if you could....

Dawn in Ohio

In achalasia , " Evita Van Goethem "

<evitavangoethem@...> wrote:

>

> Dear Ann,

>

> You are the only ones I know that have A, where I come from

(Belgium), I

> only know 1 person that has it, and he is kind of a local

superstar, so I

> can't go to him and says : he dude, what's up?

> I would like to get in touch with him, but I don't even know how.

>

> I know that my experience probably was one of the worst kind, I

had a

> gastroscopy last week (thinking about have a lap band), but having

A doesn't

> make things simpler.

> Anyway, I asked to be sedated, and they did, and I was scared over

nothing.

>

> If I have to have it a second time, I most probably will (what

else can I

> do?), but I will focus on my breathing and not so much on the tube

in my

> nose and throat.

>

> The fact that A is still farely unknown here, also plays a big

role, I

> think.

>

> I wasn't guided as good as most of you guys were.

>

> Thanks anyway for the remark.

>

> Evita from Belgium

>

>

> >From: Ann Higgs <lilac_blossom_lady@...>

> >Reply-achalasia

> >achalasia

> >Subject: Re: seeking advise on manometry

> >Date: Mon, 14 Aug 2006 09:29:26 +0100 (BST)

> >

> >Dear Evita,

> > I just want to make you aware that this test (manometry) seems

to differ

> >widely as an experience. I know that Notan thought it was not

too bad and

> > (NY) thought it was dreadful. Although my test had to be

> >ultimately regarded as unsuccessful as 2 very competent doctors

were unable

> >to get the probe/scope through the LES, and consequently the

whole thing

> >took 90 minutes, I found it copeable (sorry if I made that word

up)

> >

> > I got through it by relaxation techniques, deep breaths,

closing my

> >eyes, anything that was necessary to take me out of the procedure

as much

> >as possible, except for the times when my co-operation was

needed, which in

> >itself is distracting, as you have to concentrate on the

instructions.

> >

> > What I am trying to say, is that if you do not allow yourself

to get too

> >worked up about the test, you have more chance of getting through

it

> >without too much trauma.

> >

> > Others may beg to differ, but those are my feelings about

manometry.

> >

> > Best Wishes from Ann in England XX

> >

> >Evita Van Goethem <evitavangoethem@...> wrote:

> >

> >Mukesh Shah wrote:

> > >

> > > > Is it good to get Manometry done now ??,

> > > > If I am planning for surgery in November'06 or I should get

it done

> > > > only just before the surgery ??

> > > > Is it very painful ? Troublesome ?

> > > > Can it be done under anesthaesia?

> >

> >Now would be a good time to have it done.

> >They do it to see where the problem lies.

> >

> >I had it done and it was my worst nightmare. In the beginning it

was not

> >that bad, but the whole procedure takes about 30 minutes, in the

end I

> >panicked and wanted to get up and pull the tube out of my nose,

but the

> >nurse was able to calm me down and said that is I stopped it

would have

> >been

> >for nothing. So I relaxed.

> >I also threw up all the water I had swallowed, it looked more

like slimey

> >mucus.

> >

> >I was happy that I did it, I was proud of myself, but now I say :

never

> >again.

> >

> >But there are people, like Notan, that undergo it without any

major

> >problems.

> >

> >

> >

> >

> >

> >

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