Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 You may not need anything after the first months. that is exciting.Gee... and thanks for the reminder about how many weeks it is till Christmas.With the apple picking and grape harvest going on, it's hard not to think about snow coming. My two older boys got to [press] grapes this year, pretty exciting. The wineries are bottling Zin this years. They got to schlep the grapes by the buckets into the wine press (done with muscle power, the old way) and the juices of the fermenting grapes goes into the barrels, all made with the special woods. It is funny how old the process is, yet there is a chemist there to get the right mixes of grapes and apple or cherry essences... Cameron and came home PURPLE from head to toe. only took a week to wear off their bodies! ROFL!When Cameron is active, he feels so very good. He also knows the difference when he catches a cold, is tired, or is dehydrated. I will send you a picture of him... such a cutie!CarolynPippa <kevin.brown150@...> wrote: Carolyn, (I think I have been speeling you name wrong haven't I sorry)Yep the Doctor has put me on omezprozole 20mg once a day for the first month.I was on Nexium 40mg a day before the surgery.Was Cameron put on nutritional drinks like ensure after surgery or did the docotrs feel that now he could eat a mushy diet that there wasn't the need for the drinks?I was on Fortisips before surgery and am due to go back to the doctors on Friday and not sure if I will be told to contiue the drinks or not.Just thinks its only 11 weeks (TODAY) till Christmas Day gonna have to think about all those presents I need to get for the kids and maybe while I'm off work start writing those christmas cards.> >> > Ok, on the NO chocolate?> > It really means no caffiene. Chocolate, Coffee, and Black > tea ... no caffiene. Your body needs to replenish the fluid > content -Inside- and you dont want your stomach cramping from > caffiene.> > Ok, now let see.... see below> > > > I can't stand up straight because the incision won't let me> > It will take some time... don't be disappointed if it is 6 > months. Scar tissue on this level is tough.> > > > I haven't sneezed yet and don't intend to I just hold on to my > nose > > praying that I don't.> > > > If you feel like you need to sneeze... grab something.. > anything. roll up in a ball, grab a book, lean into a soft chair, > anything.. Oh and cross your legs, "mom" at the same time.... Ha ha > ha... : )> > > > but its very difficult when you have'nt eaten for so long and > now > > you can you just want to eat everything.> > > > Alright, loo at it this way this will give you time... start > planning your holidays.. You don't do Thanksgiving, (American gig) > but you can start planning all those wonderful things you will be > able to eat for Christmas!...> > > > DO NOT push your capacity... If you had a fundo. > > It is probably only about 1 cup..eesch.. metric equivilant... > um... 250-300 mL This will take quite awhile, small quantities, eat > frequently.> > > > Its lovely to feel the food go down and stay down I sometimes > get a > > feeling a short while after I have eaten upto about an hour when I > > can feel something in my esophagus and wonder weather its going to > > come back up but is goes down > > > > With this statement I dont think you have a fundo... but drink > lots of water, this serves 2 purposes, > > 1. lubrication> > 2. dilutes your HCL, (acid) in your stomach. > > NEVER eat within 3-4 hours before bed.. and elevate your bed or > pillows. > > You want gravity to be your friend. > > You now have a surgically created GERD. > > How is Cameron how long ago did he have his surgery?> > Cameron had his surgery May of 2005. He actually had an > emergency open. His incision goes from 3 inches below the belly > button to just below the sternum. If you read my note about the Lap > vs Open, this is exactly why I said I would want a supreme surgeon > doing a Lap,> > "for such a time as this". > > Cameron lost so much weight, so rapidly, 84 lbs in 5 months > which is 6 stones? When they went in to do the Lap, with no muscle > tone, they accidently nicked the femoral artery and so they had to > zip him open... > > > > Did he have other surgery before i.e. botoux or dialtions first?> > No, it wasn't recommended by Dr. Patti.. a few of the other > s we saw wanted to try it. We said no, as we were running out > the door : )> > > > So you were told that open surgery was more sucessful that key > hole > > thats what my surgeon said also> > Yes, it is because they can SEE what they are doing. It is just > more invasive and so it is harder on the body.> > > > Have you been told that this is a permanent solution to Achalasia > or > > could Cameron end up having more surgery in years to come?> > > > Cameron is 15, so the likelyhood is YES he may very well. He > has a special stitch inside that allows him to grow. There is NO > permanent solution, although some of Dr. Patti's patients are +20 > years with no problems. And keep this in mind, Children everyday > have fundo's for severe gerd and failure to thrive. They grow to > adulthood. The fundo has now been around along time. > > > > Once again I appreciate all the advice you can give me It is most > > welcome anything else you can think of will be much appreciated.> > It was very hard to go ahead and make the decision to have the > surgery. You wait and think that surely medical technology will > discover the cause and fix it, and maybe you can wait just a little > longer. But, some of the Achalasians on this group would surely die > with out having the surgery. You are Blessed, and you will be ok. > It doesnt go away, you will have it forever. But Take GREAT care > not to endanger your esophagus, now. Be vigilent, and attentive. > Go slow, forever more. Enjoy your life, and your children. > > Carolyn mother of Kilt-wearing boys. > > and Cameron, one of the boys... preparing for the next Highland > games and Haggis toss! > > > > http://www.aboutgerd.org/ Might have info that will help > you > > > > > > > > need ideas to promote your fundraiser or business?> > check out our new website!> > wicked cat promotional products> > www.wickedcatpromos.com> > > > > > > > > > > > ---------------------------------> > Get your email and more, right on the new .com> >> > > > > > > > Quote Link to comment Share on other sites More sharing options...
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