Guest guest Posted January 12, 2008 Report Share Posted January 12, 2008 Hello , I would let the doctors do all the test they want to and hope there is enough information found to find a treatment. Pain can be hard to figure out. You may want to talk to a pain specialist. I am not sure where you would go for that. I find your history interesting. You say you have DES so there must have been a test at one time that indicated that. Was it a manometry? Dr. Rice said your last manometry was " perfect " so there is a conflict in the information. How can you have a perfect manometry and DES? Did he see the test results that lead to the DES diagnosis? I think you have to question the DES diagnosis. If you have conflicting manometries then I would want an expert to look at both side by side and explain what they mean. Did the last manometry just test the lower esophagus or did it also test the upper esophagus? Sometimes they only test the lower part and you could still have a problem with the upper part. Now that you know you have the Zenker's it may be worth refocusing attention to the upper portion and rethink the tests. DES would have explained the chest pain and the problem swallowing, but I think you have to question the whole DES thing now. Chest pain in particular and pain in general can be hard to explain. It is possible that the pain and swallowing problems are not connected. For most of us in this group they would be very connected, but no one can say that with certainty about you yet. You may know otherwise if the pain is only related to eating. If the pain can't be successfully treated by connecting it with some specific problem such as reflux, motility or neurological then you may want to look into treating chronic pain of unknown origin, NCCP in your case. There are drugs from anticonvulsents and antidepressants to what you have now that can help for different types of chronic pain. It may be worth trying a change in pain meds. There are some support groups that may help. I don't know if they are any good or not. chronic_pain/ ChronicPainHelp/ Chronic_Pain_Assistance/ notan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2008 Report Share Posted January 12, 2008 Notan,What do you think of the pH-MII test? Have you heard of this??kk Kris Kovalcikmkovalci@...caringbridge.org/visit/elliegallery.mac.com/kovalciks/100016www.umdf.org On Jan 12, 2008, at 1:29 PM, notan ostrich wrote:Hello ,I would let the doctors do all the test they want to and hope there is enough information found to find a treatment. Pain can be hard to figure out. You may want to talk to a pain specialist. I am not sure where you would go for that.I find your history interesting. You say you have DES so there must have been a test at one time that indicated that. Was it a manometry? Dr. Rice said your last manometry was "perfect" so there is a conflict in the information. How can you have a perfect manometry and DES? Did he see the test results that lead to the DES diagnosis? I think you have to question the DES diagnosis. If you have conflicting manometries then I would want an expert to look at both side by side and explain what they mean.Did the last manometry just test the lower esophagus or did it also test the upper esophagus? Sometimes they only test the lower part and you could still have a problem with the upper part. Now that you know you have the Zenker's it may be worth refocusing attention to the upper portion and rethink the tests.DES would have explained the chest pain and the problem swallowing, but I think you have to question the whole DES thing now. Chest pain in particular and pain in general can be hard to explain. It is possible that the pain and swallowing problems are not connected. For most of us in this group they would be very connected, but no one can say that with certainty about you yet. You may know otherwise if the pain is only related to eating. If the pain can't be successfully treated by connecting it with some specific problem such as reflux, motility or neurological then you may want to look into treating chronic pain of unknown origin, NCCP in your case. There are drugs from anticonvulsents and antidepressants to what you have now that can help for different types of chronic pain. It may be worth trying a change in pain meds. There are some support groups that may help. I don't know if they are any good or not.chronic_pain/ChronicPainHelp/Chronic_Pain_Assistance/notan Quote Link to comment Share on other sites More sharing options...
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