Guest guest Posted January 12, 2008 Report Share Posted January 12, 2008 Maggie, thank you for the update. Please send my best wishes to for a speedy recovery. Anita from Pa. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2008 Report Share Posted January 13, 2008 Thanks so much, Maggie I was in ICU for the first four days and then 10 days in a private room. I can't believe is sitting up and going into a room already! What a strong lady! 8 hours is the same length as mine, so it must be extremely long for the Doctor's. It's not like they can go for a coffee break! I was at the hospital at 5:30 A.M and rolling toward the operation room by 6:30. I remember watching every minute go by on the clock in the hallway. It seemed like every minute was an hour. I remember being scared and cold as ice, but not much more until a few days later. I'm still waiting for someone to answer 's question regarding the thoracotomy. It hurt way more than my neck incision and my stomach incision. My husband and girls told me that I was also talking while in ICU, but I can't remember very much. The silliest thing I remember was being embarrassed about having a catheter and I remember my daughter crying because she wasn't told about the NG tube in my nose. She is 17 and ran into the hall after bursting into tears. It's very difficult for everyone. My husband kept phoning and I was to drugged up to answer. I could hear the ringing, but couldn't reach to lift the phone. So many memories I hope to forget!!! My girls (16 & 17) skipped a lot of School and sat at the hospital for hours watching me sleep. My poor husband was only off work for the first 4 days, and felt really guilty for returning to work, but the bills don't stop because of an operation, right? My girls are awesome. I wish 's kids were older. It's going to be a lot more difficult for her because her kids have no concept of four to 6 months of healing time. We all wish the very best, Lots of Love & Best Wishes, Thunder Bay, Ontario achalasia From: LunaIam2@...Date: Sat, 12 Jan 2008 10:54:46 -0500Subject: Report on 's surgery went well but was long, approximately 8 hours. They ran into a lot of scar tissue which complicated the surgery. They had to remove more of the esophagus than they first thought, as a matter of fact he said they were not able to leave any of it. She is doing well though, sitting up this morning and talking. They expect to put her in a room maybe later today. So it sounds like she is doing exceptional well after a difficult surgery. Will report more as I hear. Maggie AL Start the year off right. Easy ways to stay in shape in the new year. Books, DVD's, gadgets, music and more. Shop online with Sympatico / MSN Shopping today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2008 Report Share Posted January 13, 2008 Hi Maggie thanks for the update. She won't know herself in the near future. Deb Report on 's surgery went well but was long, approximately 8 hours. They ran into a lot of scar tissue which complicated the surgery. They had to remove more of the esophagus than they first thought, as a matter of fact he said they were not able to leave any of it. She is doing well though, sitting up this morning and talking. They expect to put her in a room maybe later today. So it sounds like she is doing exceptional well after a difficult surgery. Will report more as I hear. Maggie AL Start the year off right. Easy ways to stay in shape in the new year. Make the switch to the world's best email. Get the new 7 Mail now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2010 Report Share Posted August 23, 2010 I was wondering if I should respond to your ridiculous accusations and I really don't want to but its too silly to let it go, so here goes. I have no idea who you are because you do not have the decency to sign your message. I do not need a public tongue lashing from you or anyone else. I am happy for and I did write that had you read my mail carefully instead of jumping to conclusions and attacking me. This was a public statement and I have every right to be concerned about that. It is not that she explained that she was participating in some kind of trial, had she said that I would not have had any questions, instead she chose to say that she wanted to keep her treatment private and might share it 'some' day. So I don't KNOW that she will share it. Of course it's her full right to keep that private but it does raise questions and I think I am allowed to ask them. I'm not fighting for the rest of the world I'm fighting to keep myself alive and if my questioning makes other people feel uncomfortable than so be it. There is no one else who will stand up for me and fight to get a treatment. After living in hell with this illness for 30 years my time is running out and I will use all that I have to gain access to promising treatments and maybe I have some quality of life left. As for posting the same question on my Facebook page(which is my private area, not public property) probably means you have access(so far for knowing who your friends are) to it and with that you should also know that I personally have asked this question a few times but that she just ignores me. This is NOT about Whittemore as a person, she could have been a total stranger who's interview I have read, if I hear and see that someone is on his way to recovery and is been asked what caused this and the answer is that they won't tell I will have the same questions and the same reaction. I'm not sure where you see the mudslinging, the only one who is mudslinging is you towards me who asks a question that is in many people's minds. My posting was respectful and honest IMO. As far as Mike Dessin is concerned I really don't care what your opinion is on him, again it doesn't matter who it is, the result is a lot of frustration and confusion for people who are desperate for a tiny step of improvement and who are willing to try any treatment. You obviously have some decent quality of life otherwise you would understand this all. I'm not out to 'bring the WPI down' it's a bit melodramatic don't you think? If I was I would not be donating a large amount of money every month to the WPI now would I? And please, stop telling me to have faith because I have none. Living with severe ME for 30 years does that to you, it makes me cynical, sarcastic and the last year events have taught me to look out for myself, which is what I intend to do. Portland, OR Oh and please, as good internet etiquette requires, next time try not to yell at me in your emails, I really don't appreciate it. On Aug 23, 2010, at 1:44, bodieangels <bodieangels@...> wrote: > Dear , > > We already KNOW has been on Ampligen.. that's not " news " > Maybe they added or spiked her dosage with a 2nd drug like the > HIV " cocktails " or some such thing... she might be part of a trial > and she may not even know yet what the 2nd drug is... > > Please do NOT even mention her Name in the same paragraph > with Dessin... is nothing if not ethical and WILL tell us > when she is allowed to, unless the scientists reveal it FIRST. > > Can you " choose " to be Happy instead for her and KNOW > that she WILL share when she is allowed to if the trial works out.. > Mudl-slinging is not constructive or informative, and neither is > posting the same thing in multiple places... > KNOWS the WORLD is watching and Listening to > HER every word........ she MUST be careful when she is privy > to anything that has not been given the Green Light to be made > Public yet.. we KNOW " how many " are waiting to tear down WPI. > > Please have a little Faith while you are also grieving..... > Many of us are also in the same situation but we also TRUST . > " Friends " don't talk like that " about other Friends " on other forums....IMHO > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2010 Report Share Posted August 23, 2010 gotta say i kind of agree with christine on this one. ________________________________ From: Tink <tink.belle@...> " " < > Sent: Mon, August 23, 2010 8:46:14 AM Subject: Re: Report on  I was wondering if I should respond to your ridiculous accusations and I really don't want to but its too silly to let it go, so here goes. I have no idea who you are because you do not have the decency to sign your message. I do not need a public tongue lashing from you or anyone else. I am happy for and I did write that had you read my mail carefully instead of jumping to conclusions and attacking me. This was a public statement and I have every right to be concerned about that. It is not that she explained that she was participating in some kind of trial, had she said that I would not have had any questions, instead she chose to say that she wanted to keep her treatment private and might share it 'some' day. So I don't KNOW that she will share it. Of course it's her full right to keep that private but it does raise questions and I think I am allowed to ask them. I'm not fighting for the rest of the world I'm fighting to keep myself alive and if my questioning makes other people feel uncomfortable than so be it. There is no one else who will stand up for me and fight to get a treatment. After living in hell with this illness for 30 years my time is running out and I will use all that I have to gain access to promising treatments and maybe I have some quality of life left. As for posting the same question on my Facebook page(which is my private area, not public property) probably means you have access(so far for knowing who your friends are) to it and with that you should also know that I personally have asked this question a few times but that she just ignores me. This is NOT about Whittemore as a person, she could have been a total stranger who's interview I have read, if I hear and see that someone is on his way to recovery and is been asked what caused this and the answer is that they won't tell I will have the same questions and the same reaction. I'm not sure where you see the mudslinging, the only one who is mudslinging is you towards me who asks a question that is in many people's minds. My posting was respectful and honest IMO. As far as Mike Dessin is concerned I really don't care what your opinion is on him, again it doesn't matter who it is, the result is a lot of frustration and confusion for people who are desperate for a tiny step of improvement and who are willing to try any treatment. You obviously have some decent quality of life otherwise you would understand this all. I'm not out to 'bring the WPI down' it's a bit melodramatic don't you think? If I was I would not be donating a large amount of money every month to the WPI now would I? And please, stop telling me to have faith because I have none. Living with severe ME for 30 years does that to you, it makes me cynical, sarcastic and the last year events have taught me to look out for myself, which is what I intend to do. Portland, OR Oh and please, as good internet etiquette requires, next time try not to yell at me in your emails, I really don't appreciate it. On Aug 23, 2010, at 1:44, bodieangels <bodieangels@...> wrote: > Dear , > > We already KNOW has been on Ampligen.. that's not " news " > Maybe they added or spiked her dosage with a 2nd drug like the > HIV " cocktails " or some such thing... she might be part of a trial > and she may not even know yet what the 2nd drug is... > > Please do NOT even mention her Name in the same paragraph > with Dessin... is nothing if not ethical and WILL tell us > when she is allowed to, unless the scientists reveal it FIRST. > > Can you " choose " to be Happy instead for her and KNOW > that she WILL share when she is allowed to if the trial works out.. > Mudl-slinging is not constructive or informative, and neither is > posting the same thing in multiple places... > KNOWS the WORLD is watching and Listening to > HER every word........ she MUST be careful when she is privy > to anything that has not been given the Green Light to be made > Public yet.. we KNOW " how many " are waiting to tear down WPI. > > Please have a little Faith while you are also grieving..... > Many of us are also in the same situation but we also TRUST . > " Friends " don't talk like that " about other Friends " on other forums....IMHO > > Quote Link to comment Share on other sites More sharing options...
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