It's been a long time....

[Guest guest]

Well I havent been on here since March, I went for my 3rd Myotomy in

April of 07 at s Hopkins w/ Surgeon Marohn ref'd by

Ravich GI (both are awesome), it worked really well for a

couple months 1st time in years that I could eat ANYTHING. I since

developed a stricture had one dialation here in FL by my local GI. I

just cant get a break, it looks like the next step for me is an

esophagectomy but my local GI really thinks any surgery in my

condition will kill me. I catch every bug that passes. I guess I am

one of you super rare folks that no number of surgeries, dilatations

or procedures work, I am one scarred chick inside. I have decided to

just do the best I can force the food and wait until it falls. I

developed clinical depression, panic attacks and general anxiety

disorder from this disease ~ so with all the meds I am on I pretty

much stay numb, so I have been to numb to get on this board and

talk.

I was wondering if anyone else feels completely useless now because

of the inability to live a normal life. I am so weak that IF I could

get a job I wouldnt last long, being sick weekly, the meds I am on

flat knock me out. SSD has denied my twice now we go for the hearing

this go )I even had letters from my Senator, Congressman & Governor

to SSD). I just dont know what to do Achalasia has changed my life

forever and nothing is going to change that, just wish the government

would understand that. Believe me I wish I could lead a more

productive life, I have muliple bachelors degrees and love to go to

school and work, so this has been a rough few years.

Just needed to vent, wondered if other people had any tips on how to

get SSD to understand Achalasia. Also wondered how other people cope

with not being able to live life like they used to.

Regards - Steph