Guest guest Posted January 8, 2006 Report Share Posted January 8, 2006 Pattie, WOW! I am so happy for you! What a great dr. he must be. Just don't drink a Starbucks hot chocolate too late and end up wide awake until 2 o'clock in the morning like I did last night!! LOL Becki YES! Can you believe he emailed me on a SUNDAY!? I'm seriously on cloud nine...I think this calls for a trip to Starbucks. Here's his email...of course I seriously doubt I am ahead of the curve...I feel like I am always lagging behind. I've got to call a friend to celebrate! I hope you and your family have a special and blessed new year. As always, you are ahead of the curve. I am most supportive of your efforts on behalf of the boys. Regarding the subQ IgG, as you know most of the experience has been in Europe for many years. I wonder about at some point, after starting sc therapy, checking levels, so as to objectively monitor the therapy (I am sure you know that the kinetics of the drug may be different).This could be done via a " finger stick " at a time blood counts and other tests are done. Please let me know when NuFactor is to contact us and keep me posted on other concerns you may have. +JMJ+ Peace Be With You, ><>Pattie Piedmont Triad, NC Mom to , age 11 & healthy; age 9, Shwachman-Diamond Syndrome; and ph age 8, Shwachman-Diamond Syndrome. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2006 Report Share Posted January 8, 2006 " This could be done via a " finger stick " at a time blood counts and other tests are done " Can quantitative immunoglobins be checked via finger stick? Does anyone use this method for monitoring levels? Thanks. (mom to 4 year old with low immunoglobin) Pattie Curran <catholicmomof3@...> wrote: Can you believe he emailed me on a SUNDAY!? I'm seriously on cloud nine...I think this calls for a trip to Starbucks. Here's his email...of course I seriously doubt I am ahead of the curve...I feel like I am always lagging behind. I've got to call a friend to celebrate! I hope you and your family have a special and blessed new year. As always, you are ahead of the curve. I am most supportive of your efforts on behalf of the boys. Regarding the subQ IgG, as you know most of the experience has been in Europe for many years. I wonder about at some point, after starting sc therapy, checking levels, so as to objectively monitor the therapy (I am sure you know that the kinetics of the drug may be different).This could be done via a " finger stick " at a time blood counts and other tests are done. Please let me know when NuFactor is to contact us and keep me posted on other concerns you may have. +JMJ+ Peace Be With You, ><>Pattie Piedmont Triad, NC Mom to , age 11 & healthy; age 9, Shwachman-Diamond Syndrome; and ph age 8, Shwachman-Diamond Syndrome. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2006 Report Share Posted January 9, 2006 NO, we don't use finger stick due to the amount of blood that they like to get....typically 3-5 ml... Re: YES! " This could be done via a " finger stick " at a time blood counts and other tests are done " Can quantitative immunoglobins be checked via finger stick? Does anyone use this method for monitoring levels? Thanks. (mom to 4 year old with low immunoglobin) Pattie Curran <catholicmomof3@...> wrote: Can you believe he emailed me on a SUNDAY!? I'm seriously on cloud nine...I think this calls for a trip to Starbucks. Here's his email...of course I seriously doubt I am ahead of the curve...I feel like I am always lagging behind. I've got to call a friend to celebrate! I hope you and your family have a special and blessed new year. As always, you are ahead of the curve. I am most supportive of your efforts on behalf of the boys. Regarding the subQ IgG, as you know most of the experience has been in Europe for many years. I wonder about at some point, after starting sc therapy, checking levels, so as to objectively monitor the therapy (I am sure you know that the kinetics of the drug may be different).This could be done via a " finger stick " at a time blood counts and other tests are done. Please let me know when NuFactor is to contact us and keep me posted on other concerns you may have. +JMJ+ Peace Be With You, ><>Pattie Piedmont Triad, NC Mom to , age 11 & healthy; age 9, Shwachman-Diamond Syndrome; and ph age 8, Shwachman-Diamond Syndrome. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2008 Report Share Posted January 10, 2008 I so hope they can get you scheduled in April! That would be great !!!!!!!!! Its the waiting thats the worst.Just think THOUGH....soon it will all be a thing of the past. : ) No more worries, no more troubleS, NO MORE SPASMS WOO HOOOOOO A normal life again- That you deserve to enjoy with that lil guys of yours. Hugs Isabella- tOnia > > Hi guys, > > Finally mental relief again. My surgeon called today and I explained what I had been told concerning the growing waiting lists and my surgery eventually being postponed. I explained the mental stress I am under, but I needn't do that at all. The surgeon completely understood my situation and all fears, doubts, waiting and testings I went through these last couple of years. He understood that any uncertainty whatsoever concerning the -ectomy was one uncertainty too many. > > He promised me to do his utmost to get me scheduled at least in April. As he's head of the dept. I don't foresee any trouble now anymore. > > Guys, would this really finally be the last uncertainty? I hope so, because a new one really would be one too many... > > For the moment: relief. > > Love, > Isabella > > > _____________________________________________________________________ _______________ > Never miss a thing. Make your home page. > http://www./r/hs > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2008 Report Share Posted January 10, 2008 Isabella, That is wonderful news! I'm so happy things sound encouraging and that you will be dealing with this sooner rather than later. You are definitely ready to get it over with and look to a healthy and happy future, free of achalasia! Love, in NY YES! Achalasia <achalasia > > Hi guys, > > Finally mental relief again. My surgeon called today and I > explained what I had been told concerning the growing waiting > lists and my surgery eventually being postponed. I explained the > mental stress I am under, but I needn't do that at all. The > surgeon completely understood my situation and all fears, doubts, > waiting and testings I went through these last couple of years. He > understood that any uncertainty whatsoever concerning the -ectomy > was one uncertainty too many. > > He promised me to do his utmost to get me scheduled at least in > April. As he's head of the dept. I don't foresee any trouble now > anymore. > Guys, would this really finally be the last uncertainty? I hope > so, because a new one really would be one too many... > > For the moment: relief. > > Love, > Isabella > > > > _______________________________________________________________________ _____________Never miss a thing. Make your home page. > http://www./r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2008 Report Share Posted January 10, 2008 Hi Isabella Thats great news I am sure that with the information that you gave him today you wont be waiting for much longer. Roll on April!!!!!!! Go and relax tonight with a glass of wine with Romeo you deserve it. Love Pippa > > Hi guys, > > Finally mental relief again. My surgeon called today and I explained what I had been told concerning the growing waiting lists and my surgery eventually being postponed. I explained the mental stress I am under, but I needn't do that at all. The surgeon completely understood my situation and all fears, doubts, waiting and testings I went through these last couple of years. He understood that any uncertainty whatsoever concerning the -ectomy was one uncertainty too many. > > He promised me to do his utmost to get me scheduled at least in April. As he's head of the dept. I don't foresee any trouble now anymore. > > Guys, would this really finally be the last uncertainty? I hope so, because a new one really would be one too many... > > For the moment: relief. > > Love, > Isabella > > > ______________________________________________________________________ ______________ > Never miss a thing. Make your home page. > http://www./r/hs > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2008 Report Share Posted January 10, 2008 Isabella That’s great news. Hope all goes well when the time comes. My Myotomy is due next Friday and I would normally be getting rather stressed by now but with our recent loss things don’t seem to be very ‘real’ at the moment – no doubt they will when I am in the hospital bed!! Fingers crossed in little over a week it will be all over and I will be able to look forward to eating again and not making excuses to friends when offered meals and such like. It will be like a new life although I would be much rather sharing it with my Son as he went through it as well, if you know what I mean, coping with an Achalasian... and our strange eating habits. Andy Yorkshire, England From: Isabella Arnold [mailto:arnoldisabella@...] Sent: 10 January 2008 11:55 Achalasia Subject: YES! Hi guys, Finally mental relief again. My surgeon called today and I explained what I had been told concerning the growing waiting lists and my surgery eventually being postponed. I explained the mental stress I am under, but I needn't do that at all. The surgeon completely understood my situation and all fears, doubts, waiting and testings I went through these last couple of years. He understood that any uncertainty whatsoever concerning the -ectomy was one uncertainty too many. He promised me to do his utmost to get me scheduled at least in April. As he's head of the dept. I don't foresee any trouble now anymore. Guys, would this really finally be the last uncertainty? I hope so, because a new one really would be one too many... For the moment: relief. Love, Isabella Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 Hi Isabella, Great to hear you have spoken with the surgeon and that it looks like the op will be in April. In the meantime, keep your eye on the long term outcome of a much better life, of a life where you no longer have to worry about what you'll eat, where you go to, where the toilets are in case you need them etc. etc. We have a whole new social life and we're loving it. Deb from Melbourne Australia. YES! Hi guys, Finally mental relief again. My surgeon called today and I explained what I had been told concerning the growing waiting lists and my surgery eventually being postponed. I explained the mental stress I am under, but I needn't do that at all. The surgeon completely understood my situation and all fears, doubts, waiting and testings I went through these last couple of years. He understood that any uncertainty whatsoever concerning the -ectomy was one uncertainty too many. He promised me to do his utmost to get me scheduled at least in April. As he's head of the dept. I don't foresee any trouble now anymore. Guys, would this really finally be the last uncertainty? I hope so, because a new one really would be one too many... For the moment: relief. Love, Isabella Be a better friend, newshound, and know-it-all with Mobile. Try it now. Make the switch to the world's best email. Get the new 7 Mail now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 Isabella, I am so happy that things are beginning to look better for you concerning your surgery date. You will be so happy when this is done and moving on to a happier way of eating and enjoying the things you have not been able to. is doing wonderful. We are so happy with his progress. He is eating small meals as he can't eat a lot at one time but is working his way up to where one day he can enjoy a full meal. You will be in my prayers. BarbaraIsabella Arnold <arnoldisabella@...> wrote: Hi guys, Finally mental relief again. My surgeon called today and I explained what I had been told concerning the growing waiting lists and my surgery eventually being postponed. I explained the mental stress I am under, but I needn't do that at all. The surgeon completely understood my situation and all fears, doubts, waiting and testings I went through these last couple of years. He understood that any uncertainty whatsoever concerning the -ectomy was one uncertainty too many. He promised me to do his utmost to get me scheduled at least in April. As he's head of the dept. I don't foresee any trouble now anymore. Guys, would this really finally be the last uncertainty? I hope so, because a new one really would be one too many... For the moment: relief. Love, Isabella Be a better friend, newshound, and know-it-all with Mobile. Try it now. Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 Thanks every every everyone for your understanding and kind reactions! I feel more and more confident and relieved. Where 's counting stopped, mine began...(and I don't mind! I look forward to it to be over and done with). Love, Isabella YES! Hi guys, Finally mental relief again. My surgeon called today and I explained what I had been told concerning the growing waiting lists and my surgery eventually being postponed. I explained the mental stress I am under, but I needn't do that at all. The surgeon completely understood my situation and all fears, doubts, waiting and testings I went through these last couple of years. He understood that any uncertainty whatsoever concerning the -ectomy was one uncertainty too many. He promised me to do his utmost to get me scheduled at least in April. As he's head of the dept. I don't foresee any trouble now anymore. Guys, would this really finally be the last uncertainty? I hope so, because a new one really would be one too many... For the moment: relief. Love, Isabella Be a better friend, newshound, and know-it-all with Mobile. Try it now. Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
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