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I have just learned about Achalasia this past year, as my sister was

very vague about her diagnosis many years ago. Many in the medical

profession and others don't quite understand what all of you are

enduring. While I was in Pittsburgh and staying at the Family

House, a facility for traveling patients and families, I witnessed

many ailments and patients in recovery. One such lady was there for

a follow-up on her condition. She truly was an inspiration.

Somehow a " staph " bacteria had invaded her organs, and she had

undergone a tri-transplant. I know we asked her many questions on

her condition, as it seemed almost impossible of her medical

history. She said she was in surgery for 18 hours. She had had a

total digestive transplant, which included an e-ectomy; a pancreas

transplant, where she now had two as they had left the old one so

the new one would not be rejected. She was full of life and smiled

as she was fixing her dinner plate.

I can surely see how important it is to seek a medical professional

who specializes and researches in these areas. I am also very

thankful that a had the help and advice from this group to

guide her where she is today.

Debra

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