Re: Achalasia Open Forum Group

[Guest guest]

Thank you Jan. So, does this mean we can post questions, comments and success stories about alternative treatments for achalasia on this forum? I personally think it's a good idea. We can all learn from each other. My husband was diagnosed a couple of days ago and I want to learn about every single option available to educate ourselves about achalasia.

Peace,

Sayydah

New Jersey

Achalasia Open Forum Group

This group is for those individuals, family members and friends of people who have been diagnosed with the rare disorder Achalasia. All types of discussions on the subject are welcome here including, but not limited to, conventional treatments, alternative treatments, mental/emotional health, research, awareness, and all issues that are pertinent to this disorder. This group aims to be tolerant of all ideas and aspects relating to treatment options.Jan

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[Guest guest]

wipperwillow wrote:

> ... This group aims to be tolerant of all ideas

> and aspects relating to treatment options. ...

>

Does that mean I could go there and not have to worry about people

criticizing my opinions as some kind of defensiveness about surgery?

Does it mean I can go there and voice my concern about certain treatment

options and not be criticized as not being open minded. Just wondering

if my view would be tolerated.

notan

[Guest guest]

I'd tolerate your view, hey, let's all go there?

S> > ... This group aims to be tolerant of all ideas > > and aspects relating to treatment options. ...> > > > Does that mean I could go there and not have to worry about people > criticizing my opinions as some kind of defensiveness about surgery? > Does it mean I can go there and voice my concern about certain treatment > options and not be criticized as not being open minded. Just wondering > if my view would be tolerated.> > notan>

[Guest guest]

I am totally confused as to what is ACTUALLY going on.

Is Jan disgruntled?

Has she started or joined another group as letting us know in a

sideways way?

What is going on?

Anyone know?

I have always thought this WAS an open minded, respectful, supportive

group.

Australia

>

> This group is for those individuals, family members and friends of

> people who have been diagnosed with the rare disorder Achalasia. All

> types of discussions on the subject are welcome here including, but

not

> limited to, conventional treatments, alternative treatments,

> mental/emotional health, research, awareness, and all issues that are

> pertinent to this disorder. This group aims to be tolerant of all

ideas

> and aspects relating to treatment options.

>

>

> Jan

>

[Guest guest]

Jan

In reference to your comment:

This group is for those individuals, family members and friends of people who have been diagnosed with the rare disorder Achalasia. All types of discussions on the subject are welcome here including, but not limited to, conventional treatments, alternative treatments, mental/emotional health, research, awareness, and all issues that are pertinent to this disorder. This group aims to be tolerant of all ideas and aspects relating to treatment options.

Wow! I thought this described "this" group well. Have I been wrong for the past 8 years?

Good luck with the clone.

Maggie

Delicious ideas to please the pickiest eaters. Watch the video on AOL Living.

[Guest guest]

This group has always been open and straight forward. Everyone is different and treatments do not work the same for each individual. People need to take everything in and make their own informed decision. We know what has worked for a majority of us Achalasians, but it might not be the right thing for everyone

Notan and pepto Debbie have been excellent leaders in this group. Notan has a tremendous ability to filter BS and succinctly communicate what is on our of our minds but we just can't get it out that good!

When I read Jan's post I thought, did I miss something?

I then thought of that Queen song, Another one bites the dust.

in Pittsburgh.

Delicious ideas to please the pickiest eaters. Watch the video on AOL Living.

[Guest guest]

Jan,

Is this a new group that you've formed? We couldn't tell by the

way you wrote this post.

in Michigan

>

> This group is for those individuals, family members and friends of

> people who have been diagnosed with the rare disorder Achalasia. All

> types of discussions on the subject are welcome here including, but not

> limited to, conventional treatments, alternative treatments,

> mental/emotional health, research, awareness, and all issues that are

> pertinent to this disorder. This group aims to be tolerant of all ideas

> and aspects relating to treatment options.

>

>

> Jan

>

[Guest guest]

Jan,

Is what we guess now correct? Did you start another group? Are your serious? If that's the case, I'm out of words for a bit now...

Jan, I didn't interfere in the discussion that has been going on between you and the others lately, though I must admit my fingers itched to type an answer. Yet, I didn't have the energey to do so, as I am low on energy these days due to my achalasia. But now I cannot stop my fingers anymore...

Why did you start a new group? What do you expect to find there? Are you trying to find the answers you want to hear instead of those you need to hear? Do you want honesty or do you just want to put your head under the sand?

I shut eyes and ears for things myself for years and years, untill I wasn't able to anymore. I am now awaiting my -ectomy and I thank God for giving me the strength to read and listen to those who went through the same thing I did.

The group here, the board here, is one big family. We welcome everyone here on the board and for as far as I have seen things everyone is accepted on the board immediately. One finds care, information, friendship, understanding and most of all I think one finds honesty here, especially when it comes to sharing experiences concerning treatments etc. We discuss things here and discussion means differing from opinion too. Having a different opinion doesn't mean you cannot share your opinion and for me a different opinion is never a reason to feel insulted.

What's the use of starting a new group? Do you really think the answers in a new group are different from the answers you find here? Let me tell you this: I am from The Netherlands and I am on a Dutch forum and a German forum as well (only because these achalasian live so nearby, that I am able to meet them real life, which is important too). These forums give the same answers as this board. So unless it's a board where people are thus soft that they don't dare to tell one another the truth, but rather sell sweety pies, you're not going to get the board you wish for.

That being said, I think I have said more than enough to this subject.

So I can only wish you the best of luck with your new board...

Love,

Isabella

Achalasia Open Forum Group

This group is for those individuals, family members and friends of people who have been diagnosed with the rare disorder Achalasia. All types of discussions on the subject are welcome here including, but not limited to, conventional treatments, alternative treatments, mental/emotional health, research, awareness, and all issues that are pertinent to this disorder. This group aims to be tolerant of all ideas and aspects relating to treatment options.Jan

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[Guest guest]

Standing ovation for Isabella!!!!!

I couldn't agree more - thanks for finding the words to express what

many of us have been thinking. ly, this back and forth with her

was getting kind of old and for a couple of weeks I was just avoiding

it and deleting my messages. I would never wish anyone away, as we ARE

a very supportive group of people that accepts everyone and differing

opinions very openly. However, when a member becomes disruptive to the

group and offends others, then I have issues.

Good job! Hope you are hanging in there!

Love,

in NY

----- Original Messaoge -----

From: Isabella Arnold <arnoldisabella@...>

Date: Saturday, February 23, 2008 6:48 am

Subject: Re: Achalasia Open Forum Group

achalasia

> Jan,

>

> Is what we guess now correct? Did you start another group? Are

> your serious? If that's the case, I'm out of words for a bit now...

>

> Jan, I didn't interfere in the discussion that has been going on

> between you and the others lately, though I must admit my fingers

> itched to type an answer. Yet, I didn't have the energey to do so,

> as I am low on energy these days due to my achalasia. But now I

> cannot stop my fingers anymore...

>

> Why did you start a new group? What do you expect to find there?

> Are you trying to find the answers you want to hear instead of

> those you need to hear? Do you want honesty or do you just want to

> put your head under the sand?

>

> I shut eyes and ears for things myself for years and years, untill

> I wasn't able to anymore. I am now awaiting my -ectomy and I thank

> God for giving me the strength to read and listen to those who

> went through the same thing I did.

>

> The group here, the board here, is one big family. We welcome

> everyone here on the board and for as far as I have seen things

> everyone is accepted on the board immediately. One finds care,

> information, friendship, understanding and most of all I think one

> finds honesty here, especially when it comes to sharing

> experiences concerning treatments etc. We discuss things here and

> discussion means differing from opinion too. Having a different

> opinion doesn't mean you cannot share your opinion and for me a

> different opinion is never a reason to feel insulted.

>

> What's the use of starting a new group? Do you really think the

> answers in a new group are different from the answers you find

> here? Let me tell you this: I am from The Netherlands and I am on

> a Dutch forum and a German forum as well (only because these

> achalasian live so nearby, that I am able to meet them real life,

> which is important too). These forums give the same answers as

> this board. So unless it's a board where people are thus

> soft that they don't dare to tell one another the truth, but

> rather sell sweety pies, you're not going to get the board you

> wish for.

>

> That being said, I think I have said more than enough to this

subject.

>

> So I can only wish you the best of luck with your new board...

>

> Love,

> Isabella

>

>

> Achalasia Open Forum Group

>

> This group is for those individuals, family members and friends of

> people who have been diagnosed with the rare disorder Achalasia.

> All

> types of discussions on the subject are welcome here including,

> but not

> limited to, conventional treatments, alternative treatments,

> mental/emotional health, research, awareness, and all issues that

> are

> pertinent to this disorder. This group aims to be tolerant of all

> ideas

> and aspects relating to treatment options.

>

> Jan

>

>

>

>

>

>

>

_______________________________________________________________________

_____________Be a better friend, newshound, and

> know-it-all with Mobile. Try it now.

> http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

>

[Guest guest]

There is not much one can add to the recent posts from members who have given so much to this Board.

Jan said:

"This group aims to be tolerant of all ideas and aspects relating to treatment options."

How ironic that we opened our arms to her, but she could not be tolerant of our ideas.

Achalasia Open Forum Group> > This group is for those individuals, family members and friends of > people who have been diagnosed with the rare disorder Achalasia. > All > types of discussions on the subject are welcome here including, > but not > limited to, conventional treatments, alternative treatments, > mental/emotional health, research, awareness, and all issues that > are > pertinent to this disorder. This group aims to be tolerant of all > ideas > and aspects relating to treatment options.> > Jan> > >

> > > > ____________ _________ _________ _________ _________ _________ _____________ _Be a better friend, newshound, and > know-it-all with Mobile. Try it now. > http://mobile. / ;_ylt=Ahu06i62sR 8HDtDypao8Wcj9tA cJ >

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[Guest guest]

Here you go my fellow friends and family this is the answer you were

looking for

AchalasiaOpenForum/

I say no more for fear of being possibly shouted at!!!!

Pippa x

>

> There is not much one can add to the recent posts from members who

have given so much to this Board.

>

> Jan said:

>

> " This group aims to be tolerant of all ideas and aspects relating

to treatment options. "

>

> How ironic that we opened our arms to her, but she could not be

tolerant of our ideas.

>

>

>

>

>

> Achalasia Open Forum Group

> >

> > This group is for those individuals, family members and friends

of

> > people who have been diagnosed with the rare disorder Achalasia.

> > All

> > types of discussions on the subject are welcome here including,

> > but not

> > limited to, conventional treatments, alternative treatments,

> > mental/emotional health, research, awareness, and all issues that

> > are

> > pertinent to this disorder. This group aims to be tolerant of all

> > ideas

> > and aspects relating to treatment options.

> >

> > Jan

> >

> >

> >

> >

> >

> >

> >

> ____________ _________ _________ _________ _________ _________ _

> ____________ _Be a better friend, newshound, and

> > know-it-all with Mobile. Try it now.

> > http://mobile. / ;_ylt=Ahu06i62sR 8HDtDypao8Wcj9tA cJ

> >

>

>

>

>

>

______________________________________________________________________

______________

> Be a better friend, newshound, and

> know-it-all with Mobile. Try it now.

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

>

[Guest guest]

Your welcome Andy I just did a search on with the name

Achalasia in them there were only 11.

I hope that my message didn't sound like I was endorsing the new

group I was just trying to say that I had found it and didn't want to

say any more for fear of saying something that I later might or might

not regret.

Glad to see that you are continuing to do so well Roast chicken did

that come with roast tatties too?

Love

Pippa x

> >

> > >

> > > There is not much one can add to the recent posts from members

who

> > have given so much to this Board.

> > >

> > > Jan said:

> > >

> > > " This group aims to be tolerant of all ideas and aspects

relating

> > to treatment options. "

> > >

> > > How ironic that we opened our arms to her, but she could not be

> > tolerant of our ideas.

> > >

> > >

> > >

> > >

> > >

> > > Achalasia Open Forum Group

> > > >

> > > > This group is for those individuals, family members and

friends

> > of

> > > > people who have been diagnosed with the rare disorder

Achalasia.

> > > > All

> > > > types of discussions on the subject are welcome here

including,

> > > > but not

> > > > limited to, conventional treatments, alternative treatments,

> > > > mental/emotional health, research, awareness, and all issues

that

> > > > are

> > > > pertinent to this disorder. This group aims to be tolerant of

all

> > > > ideas

> > > > and aspects relating to treatment options.

> > > >

> > > > Jan

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > ____________ _________ _________ _________ _________ _________ _

> > > ____________ _Be a better friend, newshound, and

> > > > know-it-all with Mobile. Try it now.

> > > > http://mobile. / ;_ylt=Ahu06i62sR 8HDtDypao8Wcj9tA cJ

> > > >

> > >

> > >

> > >

> > >

> > >

> >

> >

______________________________________________________________________

> > ______________

> >

> > > Be a better friend, newshound, and

> > > know-it-all with Mobile. Try it now.

> >

> > http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

> > >

> >

> >

> >

> >

> >

> >

[Guest guest]

Yes, Sayydah- you can discuss anything you want. I did not mean to

cause such a hubbub...simply wanted to be able to discuss more

freely. On the one hand....I had the alternative site telling me not

to post anything alternative on the other site, and that site was

constantly telling me that alternatives were simply available to

manage the symptoms....which I agree with......and for the record...I

am not completely opposed to surgery.... it is an option... I may end

up there too..... but first I must learn everything I can. I have

said several times that I know I am in shock at being diagnosed with

A....and I do not want to make any decision when I am in shock..... I

simply must gain more information first. I have always been more

interested in alternative medicine...it is a natural choice for me...

whether it be to use herbs, Chinese medicine, yoga, meditation,

fasting, naturopathy & homeopathy.... I do not look for the " answers

I want to hear " .... I look for all of the options I can find. I am

talking to Western physicians also. Nothing has been ruled out yet.

Jan

>

> Thank you Jan. So, does this mean we can post questions, comments

and success stories about alternative treatments for achalasia on

this forum? I personally think it's a good idea. We can all learn

from each other. My husband was diagnosed a couple of days ago and I

want to learn about every single option available to educate

ourselves about achalasia.

>

> Peace,

>

> Sayydah

> New Jersey

>

>

>

>

> Achalasia Open Forum Group

>

> This group is for those individuals, family members and friends of

> people who have been diagnosed with the rare disorder Achalasia.

All

> types of discussions on the subject are welcome here including, but

not

> limited to, conventional treatments, alternative treatments,

> mental/emotional health, research, awareness, and all issues that

are

> pertinent to this disorder. This group aims to be tolerant of all

ideas

> and aspects relating to treatment options.

>

> Jan

>

>

>

>

>

>

______________________________________________________________________

______________

> Be a better friend, newshound, and

> know-it-all with Mobile. Try it now.

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

>