Guest guest Posted April 11, 2003 Report Share Posted April 11, 2003 I know those songssssssssssssssss!!! Hey, how bout Nitzer Ebb?? Did you ever listen to them?? Sunshine > > > > > > > > > --OKay gurl..who did you spend the eighties teathered to a > bus > > with? > > > I know tons of eithties bands....soooo puhleeze tell tell > tell! > > > Kathi (who's just another name) > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2003 Report Share Posted April 13, 2003 OMG how could I ever forget Blister in the Sun!!!!!! never tried Nitzer Ebb. I just turned 32, are you guys around there or is all my old music now retro-cool???? > > > > > > > > > --OKay gurl..who did you spend the eighties teathered to a > bus > > with? > > > I know tons of eithties bands....soooo puhleeze tell tell > tell! > > > Kathi (who's just another name) > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2003 Report Share Posted April 13, 2003 --- No..I am 26 but I have listened to this alternative new wave stuff since I was 8....hoooked I tell ya...HOOKED!!!! Kathi (who's just another name) In , " angie schmith " <angkaren@m...> wrote: > OMG how could I ever forget Blister in the Sun!!!!!! never tried Nitzer Ebb. I just turned 32, are you guys around there or is all my old music now retro-cool???? > > > > > > > > > > > > > > --OKay gurl..who did you spend the eighties teathered to > a > > bus > > > with? > > > > I know tons of eithties bands....soooo puhleeze tell > tell > > tell! > > > > Kathi (who's just another name) > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2006 Report Share Posted September 10, 2006 At my sons' school- their is only him and one child that is blind and that is it. Kristal Mom to Brett- SMA II- 6-1/2 years old Visit Brett's website at: http://www.our-sma-angels.com/brett/index.htm Learn more about SMA: www.fsma.org www.smasupport.com Re: Good point e re: SMA students > w/assistants/ parent perspective > > I'm not attacking ANYONE or any particular idea that has been > expressed. I just want to point out a few things that I don't think are > occuring to most people. First, I'd like to point out that MANY (not all) > of you who have a diagnosis of type 2 walked (or at least stood) > independently for some of your younger years. Even just 10 years ago, > children as weak as Brett, h, B. and the other children who have > parents on this list... well, to be blunt, they just didn't live long > enough to get to jr. high or high school. Remember that the classification > system has changed a bit and now anyone who has stood or walked > independently is diagnosed as a type 3. Many of the type 3 children do NOT > require or have one on one aids. They have more strength, especially upper > body, and don't require as much assistance. h can't even get a notebook > out of her desk without assistance. She also requires a suction machine at > school which must be kept in the one bathroom that is accessible. A student > can't possibly help her with that! Our experience: h has always had a > one on one aide since pre-K (in ECIP at 3 there was a classroom aide that > spent most of her time with h) and to be blunt, could probably not have > survived in school without one. h can write some, but she tires easily > and needs someone to scribe for her. She can't manage her books, papers or > other supplies. She can't open doors or her locker. h sometimes even > requires assistance to eat. This year the school board decided that h > didn't need a one on one aide. She went to school a total of 7 days before > she left for her spinal fusion (Aug 11 was her last day) and after those 7 > days h's teachers and the students (her friends) who were expected to > help her were obviously frustrated which made h feel terrible. h > and the friends who were helping her were getting in trouble for being late > to classes because not only did the girls have to go to their own lockers, > but then to h's and then getting through the halls takes longer because > of h's chair... you get the point. The faculty is expecting the girls > to be able to accomplish doing twice as much in the same amount of time! > It's not fair to put that kind of responsibility on a 10 year old. It's > also not fair that h's friends are so overwhelmed and frustrated by the > situation that they don't really WANT to help anymore. These are the same > girls that have been in class with h for 2 years and have JUMPED to > help whenever h's aide was busy or out of the room for a moment. The > difference is that before they were helping because they WANTED to and now > they are EXPECTED to. I don't feel like it's fair to say that our kids are > going to grow up with " expectations " or to imply that they won't be as > productive or independent as adults because we are babying them now. Just > about everyone here who has known me for anytime at all should know that I > encourage h to do everything she can to the best of her ability. Her > best just may not be the same as y'alls best! She's one of the weaker type > 2's and does well within HER bounderies. I believe Brett and are also > weaker type 2's (correct me if I'm wrong moms!) and like h, probably > couldn't survive and succeed in the school system. Maybe I'm just cranky > because we've spent the past almost 4 weeks in the hospital, but I kind of > feel like y'all are questioning our judgement in making sure our kids have > assistance in school. I seriously hope I've misinterpreted the entire > thread. > > Love and Hugs > Jeni > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2007 Report Share Posted April 2, 2007 Angie: I am sending you this PDF file. It is very detailed. You can also find the file on FSMA web-site. I hope attached. --- Angie <angie@...> wrote: > What are the key elements or nutrients in this AA > diet? Is there a detail > listing? I'd like to compare it to other products > just to see if I can find > something " Angie Consumable. " > > Angie > > On Saturday 31 March 2007 14:57, J wrote: > > If you email me directly at red542000@... I > will send you a pdf > > file with info on the AA diet written by one of > the Mother's that came > > up with the diet for her Type 2 daughter. > > Here also is my grand-daughter's web-site She is 3 > 1/2 with Type 1 > > www.our-sma-angels/elizabeth > > Jeanna > > -- > Angie > > Please visit my favourite websites: > > for Ford Model A enthusiast > http://www.recap.on.ca > > a memorial website of my father > http://www.roybebee.ca > > The Monarchs (50's & 60's band my Uncle plays > in) > http://www.the-monarchs.ca > > a chapter of Model A Owners of Canada Inc > http://www.trilliumchapter.ca > > an electric wheelchair hockey league > http://www.cewha.ca > www.our-sma-angels.com/elizabeth/ http://www2.caringbridge.org/il/elizabeth/ Jeanna Huette caretaker/grandmother to Even terrifying things that hide in the shadows can be overcome by the light of consciousness. However, the problems start when we choose denial over awareness, allowing our fears to grow. ________________________________________________________________________________\ ____ Bored stiff? Loosen up... Download and play hundreds of games for free on Games. http://games./games/front Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2008 Report Share Posted February 25, 2008 Thank you I think that sounds like a good idea. I will let her know and when she is ready for it, I will get back to you. I believe she has a my space account as well that might be a good way for them to talk. Angie -- In achalasia , " toniasdogsandi " <toniasdogsandi@...> wrote: > > For a little extra support,My son would be happy to talk with > her if she ever wanted too.He knows first hand what she is going > through!He has a my space account if she would ever like to send him a > message or anything he would be more than happy to chat or answer > questions for her, or by phone . He is 14 and who also has A > and is 14 , have become very good friends.Kinda gives them a bond > they dont have with anyone else ya know. > Any way-The offer is there for her if she would like.I know its ruff > for her as well as you.Let me know if i can be of any help or support > for you too ok. > Tonia > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2008 Report Share Posted March 7, 2008 You bet I will keep you all in my prayers! Here is my home e mail I dontuse one tcooper1973@... Call me anytime u need ok. I know things right now seem like there is no light at the end of the tunnel but I promise it is and things will be normal again one day for her as well as you.I guess I should say as normal as it can be with having achalasia.It wont be a everyday battle to eat and it wont be on her mind daily but ....she will always have it.I know she is suffering both pysically and mentally did as well.Its very hard but,It will all be over soon : ) I look forward to hearing from you. Tonia In Va Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2008 Report Share Posted December 19, 2008 I forgot to add to my post about SMA and stroke info that Sunday (Dec. 21) is Angie's 44th birthday! Her email address again - angie@... Quote Link to comment Share on other sites More sharing options...
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