This is the support I was hoping to find! Thank you

February 7, 2008

Dear Wipperwillow,

There is a very caring alternative group' and yes because we do not

believe this is incurable; we are all treated like we have something

the rest can catch. The majority of the people on the site live their

disease. They have lots of valuable information, but please do not

let it discourage you too much. I was accused of having something to

sell when i first joined and i backed away quickly. I still read the

useful email but i do not join into the pity party. There are great

ways to cope and understand more about the disease than most doctors

will ever know. I think this is one of those problems that not

enough in known and we get medical treatment from physicians that do

not take the time to learn more about what works and what does not.

Mostly we are the people that do not believe that our esophagus's

nerves are dead. The alternative group usually uses alternative or

homeopathic medical help. We change out diets to accommodate our new

situation and do not expect to swallow steaks and fast food. We do

share what we can and cannot get through our systems.

Do not give up, i think we are very close to a cure or some ways to

hang in there till we can be " cured " . There have been cures who come

online and share their stories, but the people here do not want to

believe it, discount what the " cured " have to say. Personally I

think there is a relationship with food allergies and stress. It

looks like there are many similarities and celiac disease (Gluten

intolerance), progressive gerds, and other clues let us know there

is still hope. My understanding is, that if you have the myotomy and

or one of the " wraps " , you will never be able to undo the surgery,

you will not be able to burp, will take an anti-reflux prescription

medication for the rest of your life and may still get cancer of the

esophagus or have the whole thing removed. To start out, please eat

many mini-meals of foods you can get down. I have a whole list of

what does and does not work for me. Hot water with or after small

meals that are very well chewed helps. Stopping your eating by 6 or

7 pm and emptying your esophagus before you go to bed also helps.

Since it is very serious, you do need to monitor your health. If you

join the alternative Achalasia group, you can still read the regualr

emails but you will also get the alternative information and much

nicer support than you have witnessed. Please feel free to email me

at margmorgan@... or call me at 925-256-1130. I am home most

days. Good luck and god bless.

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