Re: Re: New Member ()

[Guest guest]

I shall join you in that toast, Tig. 8'>

I also found that I don't crave anything with sugar. It is amazing how much

weight can

be added with that " innocent " sweetener. I really don't have a craving for

chocolate

anymore. I used to though, especially those peanut butter cups. Now, whenever

people

would try to get me to eat them, I tell them " No thank you " . I really don't

miss it.

A quick question about the water issue...

How much is one supposed to drink? I have heard so many different theories.

Personally, I usually have at least 24 oz. throughout the day (or 3 bottles of

Aquafina).

Sometimes I have more. What are the thoughts of the group about this?

hero00@... on 10/30/2000 02:33:57 PM

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cc: (bcc: I Simar/SAE/RDC)

Subject: Re: New Member ()

Hello and WELCOME!

Reading your success is a " breath " of fresh air. No pun intended!

Whoa! You've done very well. I too use to crave the " cola " , but soon

after starting LifeLift, I lost the urge for sugary drinks and have

kept to the water. I should drink more because I know its the best.

Reading your email helps to inspire me to get more " Water " into the

system. Thanks for sharing!

I'll toast to your continued success (with water of course), Tig

-- In LifeLiftegroups, simarei@r... wrote:

> Hello. My name is and I have been working with the

LifeLift program

> since February. It is FANTASTIC!!!

>

> My lungs are stronger. I've lost close to 50 lbs. I look younger

(even though

> I'm 24, people that I've known have said that I look younger) and

have a whole

> new happier persona. LifeLift has changed my life. Thanx le!

>

> I have a question though. One area that still needs improvement

for

me is the

> stomach area. It has gone down a bit, and there is some

definition,

but it

> still is out there, as it were. I've noticed that it even has

lifted itself up

> throughout this process, making it look like it's sticking out

more.

Is this

> normal?

>

> I've ordered the new videos and can't wait to get them to give them

a go.

> Hopefully they'll complete the job that the first video started.

8'>

>

> BTW: Love this list. Just found it the other day and was so

excited about it.

http://themail.com/ref.htm?ref=1227417 *** This free e-mail service pays money

for messages that are read!

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[Guest guest]

, it's good that you're in Pittsburgh because Dr.

Luketich is also there. He does a very large number of surgeries

for achalasia patients. If I were in your shoes, I would email

him (include your phone number in case he wants to call you

back), explain the situation and ask for his advice.

luketichjd@...

http://findadoc.upmc.com/PhysicianBioQuery.aspx?ID=1604

412-647-7555

He has written some articles about achalasia. This 2007 one

unfortunately doesn't have even the abstract available to

non-subscribers, but the title looks interesting:

" Variations in Inflammation and Nerve Fiber Loss

Reflect Different Subsets of Achalasia Patients "

in PA

Re: New Member...

> Wow, thank you for the warm welcome and information. I

> appreciate them.

>

> To answer some of the questions:

>

> My son is seen by physicians at the UPMC Children's Hospital in

> Pittsburgh. I feel fairly confident in the docs since the

> gastro is

> the department head, and the surgeon is the clinical director

> for ped

> surgery. In addition, one of his docs is the director for

> clinical

> excellence and service, but this doesn't mean they know

> everything,

> and we know they don't.

>

> mentioned secondary achalasia. This is very interesting

> to me

> since as I wrote, I have my own suspicions. I'm going to ask

> about this!

>

> asked about the name of my son's seizures. Depending

> upon the

> doc referencing them, you can either see them as ESES

> (Electrical

> Status Epilepticus during Slow wave sleep) or CSWS (Continuous

> Spike-Wave Discharges during Sleep). He was diagnosed three

> years ago

> February.

>

> Unfortunately, this hospital has never treated this disorder,

> so I

> have been fighting to be referred out. Finally, the one doc

> was ready

> to talk to those outside of here who have successfully treated

> ESES/CSWS, but now that's on hold since the treatment is very

> high

> doses of prednisone. If I do decide to go ahead with the

> surgery,

> then he can't be on this protocol. However, I do wonder if the

> prednisone might help the achalasia. Hmmm...

>

> Sandy, thanks for the tip. The head of his bed is actually

> raised

> anyway because of his VP shunt. Thankfully, he does not cough

> in the

> night, so this is a good sign! My son has always been thin, so

> he

> started out with not having much to spare. It's interesting

> how the

> different textured foods affect this. He hasn't complained

> about

> eating anything. The only thing he says is, after a few bites,

> that

> he can't eat anymore because he's " full. "

>

> What I was told about his condition is that there are few

> contractions

> of the esophagus, and when it does contract, they are weak. He

> was

> diagnosed from an upper GI and endoscopy. He has not had the

> manometry since they are not sure it's an option for him.

>

> Sandi - Believe it or not, one of his docs actually emailed me

> that he

> is suspicious of my son developing mitochondrial disease! I

> would

> love to hear more about your grandson's condition and how

> achalasia is

> a secondary condition. (Feel free to email me privately.) I

> have

> been begging for these people to test him for autoimmune

> disorders,

> and I do want this testing done as well. Wow.

>

> Notan - Thank you for the information. I do plan to ask about

> the

> number of Heller's done, but I can't imagine that number is

> very high

> considering the rarity of this. The only thing that comforts

> me is

> that the surgeon knew exactly what needed done (as did the

> gastro),

> and that he is the co-director for UPMC's adult hospital.

>

> Unfortunately, my son never complains about being hungry. I

> think his

> stomach has become so small that a tiny bit of food satisfies

> it. I

> agree with you that I don't understand why the g or j tubes

> would be a

> big deal to them, but it seems they are.

>

> You asked about the muscle comment I made. It seems that the

> muscles

> are weakening because now he has developed a rather oddly

> placed

> hernia-type bulge just below the left kidney area. The surgeon

> and

> gastro were quite surprised to see it, and they are 99% sure

> it's a

> herniation from weakening muscles. The only thing is that they

> can't

> take a look until they go in for the surgery. If I don't agree

> to it,

> then we may never know what it is. It has only surfaced in the

> last

> two weeks.

>

> Once again, thanks to everyone. I feel a bit better about my

> thoughts

> and concerns.

>

>

>

>

>

>

> ------------------------------------

>

>