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OUCH! Stay warm! Heating pad, water bottle.. Sheena Dave <d_k45050@...> wrote: I have Pleurisy, and go to the Doctor today, just what I need something else. Atany rate anyone knoe about Pleurisy, or have had it ?THX,PEACE,

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yes its not bad its the way i was told inflamation of the lining of your lungs.when you cough it hurts.generally it will run its coarse.ive had it twice and never treated it.Dave <d_k45050@...> wrote: I have Pleurisy, and go to the Doctor today, just what I need something else. Atany rate anyone knoe about Pleurisy, or have had it ?THX,PEACE,Tim Parsons knoxville,tn 37931 865-588-2465 x107 work

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Im confused-Why are you having to have another dialation if you have

had a ectomy?

Tonia

>

> Hey all - I'm in need (not desperately thankfully) of another

> dilation and really am trying to find someone more local to me for

> routine follow up. The 10 hour drives to Pittsburgh were expensive

> and LONG!

> Anyway, after calling several surgical practices in Norfolk, Va.

(a

> little less than 2 hours for me) I went to a GI practice today and

> scheduled my dilation for the 25th. They seem to have a fair

amount

> of experience with A and the doctor I saw there takes care of ALL

of

> their dilations so he is VERY familiar with them. He did tell me

one

> thing I've never heard of before so I'm throwing it out to all of

you

> fabulous researchers out there.

> I told him that I've been having scar tissue build up at the

> anastamosis from my -ectomy and that needed to be 'cut down'. He

said

> something about injecting the scar tissue itself with steroids

> because it makes the scar tissue 'softer'? I've never heard of it

and

> I'm going to email my surgeon also but thought that maybe one of

you

> smarty pants researching types might know something.

> I'll let everyone know how it goes - I told the guy about the

group

> and that if I was impressed - I would add him to the database for

all

> of us in the mid-atlantic coastal states.

> Any info or previous experience anyone has with this will be

> appreciated.

>

> Oh, and the other wierd thing - I said something to the effect

> of 'I've had A for over 25 years, well, I guess I don't have it

> anymore' and he said 'no, you're cured'

> It's just wierd to think of it that way - it's been with me for so

> long ** I don't miss it** it just becomes such a part of your

> existence - you know??

>

> Now achalasia free since Jan. 11th

> - in NC

>

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michelle wrote:

> ...I told him that I've been having scar tissue build up at the

> anastamosis from my -ectomy and that needed to be 'cut down'. He said

> something about injecting the scar tissue itself with steroids ...

>

Here are some links about it. It has been used for various types of

strictures which may or may not mean anything about how it would work

for an anastomosis. A lot of strictures have fibrosis so it may be that

the fibrosis in the anastomosis would react similarly.

notan

Intralesional steroid injection in benign esophageal strictures

resistant to bougie dilation

http://cat.inist.fr/?aModele=afficheN & cpsidt=16364250

Intralesional steroids augment the effects of endoscopic dilation in

corrosive esophageal strictures.

http://www.ncbi.nlm.nih.gov/pubmed/10202068

Usefulness of intralesional triamcinolone in treatment of benign

esophageal strictures.

http://www.ncbi.nlm.nih.gov/pubmed/12447293

[use of corticosteroids after esophageal dilations on patients with

corrosive stenosis: prospective, randomized and double-blind study]

http://www.ncbi.nlm.nih.gov/pubmed/14666354

A prospective, randomized, double-blind, placebo-controlled trial of

endoscopic steroid injection therapy for recalcitrant esophageal peptic

strictures.

http://www.ncbi.nlm.nih.gov/pubmed/16279894

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There are also references about using steroids specifically for

strictures at the esophagogastric anastomosis.

This one mentions injecting steroids immediately prior to

dilating the anastomosis. It also has a picture of a patient

being taught to perform a dilation on his own esophagus!

Management of the Cervical Esophagogastric

Anastomotic Stricture (2007)

http://deepblue.lib.umich.edu/bitstream/2027.42/57525/1/Anastomotic%20Stricture%\

202007.pdf

The following reference also says that endoscopic injections of

steroids are occasionally helpful with refractory anastomotic

scars that cause cervical dysphagia, and it also talks about

teaching patients over several weeks how to perform dilations on

themselves with help from a family member. (I imagine that's for

people who need many, many dilations, and maybe it's more for

cancer patients, I don't know.)

Complications in Surgery (2006) p. 257

http://books.google.com/books?id=iCtpH2Hj-0cC

It's a book, and portions can be previewed via Google Books.

The portion of this book that deals with achalasia (myotomy and

esophagectomy) is quite interesting to read. It's very technical

but clearly written. Not all of this section is excerpted online.

It's scanned, but the text can't be selected and copied. Here's a

link to that section of the book:

http://books.google.com/books?id=iCtpH2Hj-0cC & pg=PA262 & vq=refractory+anastomotic\

& source=gbs_search_r & cad=1_1 & sig=sbHZaMuRWXV8-Sl8OCj2OnPEPVw#PPA257,M1

-- in PA

----- Original Message -----

> michelle wrote:

>> ...I told him that I've been having scar tissue build up at

>> the

>> anastamosis from my -ectomy and that needed to be 'cut down'.

>> He said

>> something about injecting the scar tissue itself with steroids

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, ,

I have nothing to say regarding the steroid shot for the scar tissue issue, not

because I am against it but simply because I know nothing about it. I too am

hoping someone with time to research or more knowledge than me can shed some

light on the topic. I have not needed any dilitations post-'ectomy, at least as

of yet, and it's been just over a year for me (3/29 was my one year

anniversary). Actually, tomorrow 4/10 is the anniversary of my discharge date of

my hospital stay following my surgery, and ironically, also my 8th year

anniversary at my current job. Anyway.....

My reason for responding to your point was because of your comment about being

achalasia free and " cured " of the achalasia since having the 'ectomy. I totally

know how you feel. Strange to think the only way we can be cured was to have the

damn thing yanked out. But hey, whatever works, right? I completely understand

your feelings about how achalasia, no matter how much we hated having it, had

become part of our existence. On the flip side, that was one of the most bizarre

feelings within a few months of surgery - in some odd sense, it was almost like

feeling as if part of yourself had been lost. Does that make sense? I know I got

a bit depressed for a few months following my surgery, and maybe I thought about

that type of stuff too much as a result (I'm great now, thank goodness!), but it

was like part of yourself that had consumed so much of your time and life and

worries had just disappeared. Not that it's a bad part to " lose " , clearly you

only do this surgery if you need to, but you probably know what I mean.

Anyway, glad to hear you are doing so well.

I am in the process of making my one year follow up appointment in Cleveland

with Dr. Rice, but one thing I will ask, and you should too, is how long of a

period of time is this scar tissue deal an issue. That is, if you have already

had the scar tissue build up and needed dilitations as a result, is there a

period of time that it will continue for and then does the body just stop

building up the tissue after a while? And, on the other side, if after a year

from the surgery, you haven't had any issues with that, is it pretty safe to

assume that it is a non-issue, using the theory that the time immediately

following surgery is when the body would react with the scar tissue, and the

further out you get from the surgery the less likely it is for your body to be

building it up. Just a thought and something I plan on asking Dr. Rice. Of

course, everyone's bodies are different, but an interesting thought.

Love,

in NY

---- michelle <mcnairmichelle@...> wrote:

> Hey all - I'm in need (not desperately thankfully) of another

> dilation and really am trying to find someone more local to me for

> routine follow up. The 10 hour drives to Pittsburgh were expensive

> and LONG!

> Anyway, after calling several surgical practices in Norfolk, Va. (a

> little less than 2 hours for me) I went to a GI practice today and

> scheduled my dilation for the 25th. They seem to have a fair amount

> of experience with A and the doctor I saw there takes care of ALL of

> their dilations so he is VERY familiar with them. He did tell me one

> thing I've never heard of before so I'm throwing it out to all of you

> fabulous researchers out there.

> I told him that I've been having scar tissue build up at the

> anastamosis from my -ectomy and that needed to be 'cut down'. He said

> something about injecting the scar tissue itself with steroids

> because it makes the scar tissue 'softer'? I've never heard of it and

> I'm going to email my surgeon also but thought that maybe one of you

> smarty pants researching types might know something.

> I'll let everyone know how it goes - I told the guy about the group

> and that if I was impressed - I would add him to the database for all

> of us in the mid-atlantic coastal states.

> Any info or previous experience anyone has with this will be

> appreciated.

>

> Oh, and the other wierd thing - I said something to the effect

> of 'I've had A for over 25 years, well, I guess I don't have it

> anymore' and he said 'no, you're cured'

> It's just wierd to think of it that way - it's been with me for so

> long ** I don't miss it** it just becomes such a part of your

> existence - you know??

>

> Now achalasia free since Jan. 11th

> - in NC

>

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wrote:

>

> I am in the process of making my one year follow up appointment in Cleveland

with Dr. Rice, but one thing I will ask, and you should too, is how long of a

period of time is this scar tissue deal an issue.

As you were saying in your other post we don't all scar the same. I

don't know what he will say is typical, but there is probably those who

are typical and then those who are not.

notan

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Yes, as I posted to privately, I scar VERY badly. Actually I form keloids which are very hard, thick scars. My heller scar is a doozie. Funny thing is that my heller scar is worse than ANY of my -ectomy scars (something about vertical scars healing worse than horizontal ones). Anyway the keloids are a genetic thing, everyone in my family gets them - they're NOT pretty. I am really grateful to have not had a neck incision because with my scarring, it would have stayed visible for the rest of my life. As it is, I have quite a road map on my gut now (2 c-sections to boot) but you can't see any of it when I wear a bathing suit and I'm not 20 years old anymore so I don't wear anything else that would show them.

At the end of the day - it's all worth it and I would do it all again.

- in NCPlanning your summer road trip? Check out AOL Travel Guides.

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In plastic surgery, the concept of placing an incision along "natural skin lines" is called Langerhan's Lines. There are "road maps" to determine the best "lie" for any surgical incision. On the belly horizontal is within Langerhans' lines so they would look better than vertical ones.

I hear ya on the bikini thing- it's a one piece all the way for me too!

All my best

Dawn

Re: my latest

Yes, as I posted to privately, I scar VERY badly. Actually I form keloids which are very hard, thick scars. My heller scar is a doozie. Funny thing is that my heller scar is worse than ANY of my -ectomy scars (something about vertical scars healing worse than horizontal ones). Anyway the keloids are a genetic thing, everyone in my family gets them - they're NOT pretty. I am really grateful to have not had a neck incision because with my scarring, it would have stayed visible for the rest of my life. As it is, I have quite a road map on my gut now (2 c-sections to boot) but you can't see any of it when I wear a bathing suit and I'm not 20 years old anymore so I don't wear anything else that would show them.

At the end of the day - it's all worth it and I would do it all again.

- in NC

Planning your summer road trip? Check out AOL Travel Guides.

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Hi ,

Just going through the many messages in my inbox. I was just curious, does the build up of scar tissue make you have the same issues you had prior to the -ectomy? Sorry if this is a stupid question you may have already answere.

Love from Astrid

my latest

Hey all - I'm in need (not desperately thankfully) of another dilation and really am trying to find someone more local to me for routine follow up. The 10 hour drives to Pittsburgh were expensive and LONG!Anyway, after calling several surgical practices in Norfolk, Va. (a little less than 2 hours for me) I went to a GI practice today and scheduled my dilation for the 25th. They seem to have a fair amount of experience with A and the doctor I saw there takes care of ALL of their dilations so he is VERY familiar with them. He did tell me one thing I've never heard of before so I'm throwing it out to all of you fabulous researchers out there.I told him that I've been having scar tissue build up at the anastamosis from my -ectomy and that needed to be 'cut down'. He said something about injecting the scar tissue itself with steroids because it makes the scar tissue 'softer'? I've never heard of it

and I'm going to email my surgeon also but thought that maybe one of you smarty pants researching types might know something.I'll let everyone know how it goes - I told the guy about the group and that if I was impressed - I would add him to the database for all of us in the mid-atlantic coastal states.Any info or previous experience anyone has with this will be appreciated.Oh, and the other wierd thing - I said something to the effect of 'I've had A for over 25 years, well, I guess I don't have it anymore' and he said 'no, you're cured'It's just wierd to think of it that way - it's been with me for so long ** I don't miss it** it just becomes such a part of your existence - you know??Now achalasia free since Jan. 11th- in NC

__________________________________________________

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Hi all. , after a little over 3 months I'm heading back north to see Rice. I've got that tight feeling in the connection area, so I'm heading up to get dialated. Going to scope and dialate and make sure theres nothing else going on that shouldn't be. Other than this, I'm doing okay. I've been reading all the posts lately and it seems that all of us are doing pretty good. I can't believe how well Isabella has done. it seems that you've been one of the lucky ones not to have to get dialated. Whenever I called and talked to a in Rice's office, she was like get here and lets fix it now. I told her no prob and told her I'd see her next Friday the 18th. Hope all is well with everyone else. , how's Kristy doing? Haven't heard from her in a while.

in KY

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,

I have been lucky so far. But I have to be honest that all this talk about the

scar tissue build up and need for dilitations post-ectomy has me paranoid that

as usual, my body is over-accomodating for things that are wrong and maybe I do

need a dilitation I just haven't noticed it. Do you know what I mean? I really

try to limit how much I drink when I eat to avoid stomach issues, so there are

on occassion times when it feels like a " hard swallow " . It doesn't feel like

anything is stuck, so to speak, and anytime it has happened it is with something

thicker like a sandwich or something and I haven't taken any sips of anything

(it's amazing to even be able to do that, isn't it? To eat without a drink, that

is....). Anyway, I think if it was an issue I would notice it much more

frequently than I already do. It's just hard to know - this is the only surgery

I've ever had, so I don't really have an idea of how I form scar tissue. For any

previous dilitations I've had prior to my 'ectomy they never mentioned I had a

build up at the LES, so who knows. I'm trying to work out details of my one year

follow up with Rice, so I haven't sceduled it yet. Was hoping to get in by the

end of the month just to get it over with. I know an endoscopy is part of the

testing, so I guess if it's an issue I'll find out and he'll dilate me while I'm

there. Glad to hear you are doing well otherwise.

in NY

---- Hyden <bc223@...> wrote:

>

> Hi all. , after a little over 3 months I'm heading back north to see

Rice. I've got that tight feeling in the connection area, so I'm heading up to

get dialated. Going to scope and dialate and make sure theres nothing else

going on that shouldn't be. Other than this, I'm doing okay. I've been reading

all the posts lately and it seems that all of us are doing pretty good. I can't

believe how well Isabella has done. it seems that you've been one of the

lucky ones not to have to get dialated. Whenever I called and talked to a

in Rice's office, she was like get here and lets fix it now. I told her no prob

and told her I'd see her next Friday the 18th. Hope all is well with everyone

else. , how's Kristy doing? Haven't heard from her in a while.

>

> in KY

>

> ___

>

>

>

>

>

>

> _________________________________________________________________

> Pack up or back up–use SkyDrive to transfer files or keep extra copies.

Learn how.

>

hthttp://www.windowslive.com/skydrive/overview.html?ocid=TXT_TAGLM_WL_Refresh_sk\

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, you are unique, but don't you think you would know if you are having trouble. Peggy asks me all the time if I'm having trouble and I say no... then a few days later I think, oh no, is this the beginning of trouble, then I forget. I just ate dry oatmeal... I know totally weird and you are all gasping, my daughter got me hooked on it because horses eat oats, and a few years ago she wanted oats and it is surprisingly good that way. Because I don't eat meat that often oatmeal dry is like eating steak as far as the chew factor. But it does stick until I drink some water. I can feel it now but as soon as I have a swallow of water it will go down. You may need to flush down more often than you are doing, as I've gotten lazy about always having water around, but you are very different than most of us.

The power of suggestion might have gotten to you, but really don't you think you would know. If you can remember, wondering if you were pregnant and is that morning sickness.. or later is that the baby kicking? It could be you are looking for those problems. I'd think if you actually HAD those problems that would need a dialation you would realize oh yes, that is IT. Back to morning sickness and baby kicks? Once you have them again you wonder how you could have forgotten.

Since you are going back fairly soon I'd try to relax. A month or so likely wouldn't make a difference. And at the worst, it would be a dialation... compared to other problems, that isn't that scary is it? Deep breaths, and sip some water.

Sandy > > > > Hi all. , after a little over 3 months I'm heading back north to see Rice. I've got that tight feeling in the connection area, so I'm heading up to get dialated. Going to scope and dialate and make sure theres nothing else going on that shouldn't be. Other than this, I'm doing okay. I've been reading all the posts lately and it seems that all of us are doing pretty good. I can't believe how well Isabella has done. it seems that you've been one of the lucky ones not to have to get dialated. Whenever I called and talked to a in Rice's office, she was like get here and lets fix it now. I told her no prob and told her I'd see her next Friday the 18th. Hope all is well with everyone else. , how's Kristy doing? Haven't heard from her in a while.> > > > in KY> > > > ___ > > > > > > > > > > > > > > _________________________________________________________________> > Pack up or back upâ€"use SkyDrive to transfer files or keep extra copies. Learn how.> > hthttp://www.windowslive.com/skydrive/overview.html?ocid=TXT_TAGLM_WL_Refresh_skydrive_packup_042008>

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