RE: Re: Living with Achalasia-Newbie!/

April 24, 2008

,

I haven’t had to have any thing done since 2005 (dilation),

I’ve never had botox. I haven’t noticed any more issues with the

achalasia, other then occasional slow passage. Though I have looked up the fact

that Barrett’s and E problems in general can follow Lupus. I take Plaquenil

for my Lupus and I’ve only been on it for a month now, I also take

natural plant sterols (called Moducare) which are helping more then any

meds the docs have given me!!! I started taking them because I knew the

Plaquenil takes awhile to get into your system and to work, the sterols only

took two weeks til I noticed a difference with joint pain and fatigue.

Just remember your not alone and it isn’t selfish of you

to want to live a half way normal life. That’s where I’m trying to

get to now!! I haven’t worked since last September and I was in pain all

the time then, but the doctors told me it was all in my head!! They did an ANA

test a year ago and it was neg. even though I was having all the symptoms, now

a year later it was positive and things were worse. So the rheumy here wanted

to try me on the meds and see if they helped, because the only thing that my

doc here ever gave me that worked was steroids and my rheumy said that is a

good indication that I have an auto immune problem and after a full history

(lupus runs in my family) he diagnosed me with that! Gosh ok this is getting

long!!!! If you ever wanna talk just give me a yell 479-715-6544 or give me

your # and a good time to call since I have unlimited long distance!

Good Luck and well wishes

From:

achalasia [mailto:achalasia ] On Behalf Of Thames

Sent: Thursday, April 24, 2008 8:16 AM

Subject: Re: Living with Achalasia-Newbie!

Hi

,

I am located in ton, SC. Have you had any dilations or the botox

treatments? Do you think the meds you take for Lupus make the Achalasia

worse?

,

SC

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