Guest guest Posted May 31, 2008 Report Share Posted May 31, 2008 Should I be worried? I had my Upper GI yesterday, and as I said before, food is reaching my stomach just fine. However, my stomach isn’t digesting the food at a normal rate. I’ve long suspected this as I am rarely hungry and I find it very hard to eat some mornings due to the “full” feeling I get. After 12 hours my stomach still had my dinner. Does anyone else have this problem? And now my E looks very different, but it’s working as a vertical slide to my stomach. And there was an intermittent “bird’s peak” half way down my E. Confused, in SF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2008 Report Share Posted May 31, 2008 What did the radiologist say when he/she saw it? Has your doctor seen it yet, and did he have anything to say? Vertical slide is a good thing. OOHH ohhh... daughter out of shower, no towel. s >> > > Should I be worried?> > > > I had my Upper GI yesterday, and as I said before, food is reaching my> stomach just fine. However, my stomach isn't digesting the food at a normal> rate. I've long suspected this as I am rarely hungry and I find it very> hard to eat some mornings due to the "full" feeling I get. After 12 hours> my stomach still had my dinner. Does anyone else have this problem?> > > > And now my E looks very different, but it's working as a vertical slide to> my stomach. And there was an intermittent "bird's peak" half way down my E.> > > > > Confused,> > in SF> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2008 Report Share Posted May 31, 2008 Hi , I have no answers for you, I can just share with you that I've had the same trouble with my stomach as well. We found out last year during a special test. My doctors told me that when you have achalasia it is very likely that other digestive trouble occurs as well and in my case that was the slow digestion of food. The first signs were food remains in my stomach found during gastro scopies, which made them run the test (gastric emptying test). So it's not abnormal, but I still don't have a solution for you. In my case the -ectomy was the solution, this as the problem didn't lay in malfunctioning of the pylorus (the muscle passing the food from stomach to intestines) but in malfunctioning of the stomach itself. As the -ectomy had them remove half my stomach and as the other half was pulled up gravity now does it's job for me and my stomach empties normally. Before going in for my -ectomy I dived into the research whether a pyloromyotomy (myotomy of the pylorus) would be wise in my case. I know in Pittsburgh a pyloromyotomy comes standard with an -ectomy (and I spoke on the phone about this with Prof. Luketich as well). Yet my surgeons were convinced this wouldn't be a wise decision, as a pyloromyotomy would probably cause severe dumping problems. Though I didn't want to face another surgery, I preferred to have the -ectomy done without the pyloromyotomy, knowing that this could still be done afterwards if ever needed. I don't regret this decision, as I only have really minor dumping issues and the gastric emptying problems have totally gone! There is only one advise I can give you here, . Even if they offer you a pyloromyotomy you should be very carefull in going along with that one. This as you might regret this p-myotomy in case you would ever need an -ectomy (which we of course hope you don't and which we of course expect you don't!). I believe there are certain medicins that might help you, have you discussed that with your doc? In contrary to you I was always hungry, this as first the food wouldn't go down to my stomach and when it finally did, the stomach didn't do it's job. My body did need it's nutritions and I always feel very dizzy and nausea when I don't get enough down. Well, I guess different bodies react differently. Sorry for not being able to help you out more, but maybe it just helps knowing that others here suffer(ed) from the same thing. Love, Isabella 's 11 month post op Should I be worried? I had my Upper GI yesterday, and as I said before, food is reaching my stomach just fine. However, my stomach isn’t digesting the food at a normal rate. I’ve long suspected this as I am rarely hungry and I find it very hard to eat some mornings due to the “full” feeling I get. After 12 hours my stomach still had my dinner. Does anyone else have this problem? And now my E looks very different, but it’s working as a vertical slide to my stomach. And there was an intermittent “bird’s peak” half way down my E. Confused, in SF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2008 Report Share Posted May 31, 2008 Well, After listening to me describe how my E was shaped prior to surgery, the radiologist took more pictures. He commented on how successful the Myotomy was and that liquids cleared my E with in 3 minutes. However, what he thought was the top of my stomach may not be. He thought that my E was dilated at the bottom but actually it is in the upper half. Then under closer examination, he noticed that my stomach still had a lot of food in it. And that my E had “froth” and maybe some small bits of food clinging. He thought that there was a 1cm to 1.5cm opening at my stomach juncture and that allowed good drainage into my stomach. But I’m not clear if he identified my stomach properly. He asked questions about my dilation history and when and where my last Upper GI was done (Stanford). I could tell that he was taken-back by what I was saying. And he ordered more pictures of my stomach. I’m not really sure when Dr. Campos will see me next. His assistant had moved my Upper GI appointment up because there was a possible strike next week at the hospital. And I’m not having any major problems like before. I’m even off of the PPIs. Am I worrying for nothing? in SF From: achalasia [mailto:achalasia ] On Behalf Of toomuchclutter Sent: Saturday, May 31, 2008 12:02 PM achalasia Subject: Re: 's 11 month post op What did the radiologist say when he/she saw it? Has your doctor seen it yet, and did he have anything to say? Vertical slide is a good thing. OOHH ohhh... daughter out of shower, no towel. s > > > > Should I be worried? > > > > I had my Upper GI yesterday, and as I said before, food is reaching my > stomach just fine. However, my stomach isn't digesting the food at a normal > rate. I've long suspected this as I am rarely hungry and I find it very > hard to eat some mornings due to the " full " feeling I get. After 12 hours > my stomach still had my dinner. Does anyone else have this problem? > > > > And now my E looks very different, but it's working as a vertical slide to > my stomach. And there was an intermittent " bird's peak " half way down my E. > > > > > Confused, > > in SF > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2008 Report Share Posted May 31, 2008 , Did you have a gastric emptying study? What imaging studies have they done? Good Luck with everything- I know you are very knowledgeable and will get yourself the appropriate workup and treatment. Let us know what is going on! Thinking of you!!! Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2008 Report Share Posted May 31, 2008 Thanks, It is nice knowing that others can relate, but not that they suffer. And discussing this helps me, so thank you. From what I was told from the Stanford Surgeon, a Pyloromyotomy is standard with an esophagectomy. But I’m seeing Dr Campos at UCSF now. The Upper GI showed that my stomach is not in an upright position that will allow for gravity to pull food down. I believe that with the next meal, food is forced to move down my digestion. Here lies the problem; I sometimes forget to eat because I’m not hungry, then I get very moody and confrontational. When food was getting stuck in my E, I would get the shakes and almost faint. But I don’t have that problem anymore. In the mornings, I walk 3-4 miles which might help move things along. Then sometimes I get hungry 3-4 hours later, or I’m not hungry until late afternoon/early evening. I’ve now started walking an additional 2-3 miles in the evening and then I get very hungry. But I try to stick to a liquid snack because I need gravity to move food into my stomach. I’m sorry that many others are suffering with A. For now, I’m not, but there are the occasional spasms or “food poisoning” feeling I get in the morning. These are my main issues and I haven’t gotten much information from Dr. Campos because he wants me to identify what I’m eating that causes this issues. I can’t find any. Thanks again, in SF From: achalasia [mailto:achalasia ] On Behalf Of Isabella Arnold Sent: Saturday, May 31, 2008 12:46 PM achalasia Subject: Re: 's 11 month post op Hi , I have no answers for you, I can just share with you that I've had the same trouble with my stomach as well. We found out last year during a special test. My doctors told me that when you have achalasia it is very likely that other digestive trouble occurs as well and in my case that was the slow digestion of food. The first signs were food remains in my stomach found during gastro scopies, which made them run the test (gastric emptying test). So it's not abnormal, but I still don't have a solution for you. In my case the -ectomy was the solution, this as the problem didn't lay in malfunctioning of the pylorus (the muscle passing the food from stomach to intestines) but in malfunctioning of the stomach itself. As the -ectomy had them remove half my stomach and as the other half was pulled up gravity now does it's job for me and my stomach empties normally. Before going in for my -ectomy I dived into the research whether a pyloromyotomy (myotomy of the pylorus) would be wise in my case. I know in Pittsburgh a pyloromyotomy comes standard with an -ectomy (and I spoke on the phone about this with Prof. Luketich as well). Yet my surgeons were convinced this wouldn't be a wise decision, as a pyloromyotomy would probably cause severe dumping problems. Though I didn't want to face another surgery, I preferred to have the -ectomy done without the pyloromyotomy, knowing that this could still be done afterwards if ever needed. I don't regret this decision, as I only have really minor dumping issues and the gastric emptying problems have totally gone! There is only one advise I can give you here, . Even if they offer you a pyloromyotomy you should be very carefull in going along with that one. This as you might regret this p-myotomy in case you would ever need an -ectomy (which we of course hope you don't and which we of course expect you don't!). I believe there are certain medicins that might help you, have you discussed that with your doc? In contrary to you I was always hungry, this as first the food wouldn't go down to my stomach and when it finally did, the stomach didn't do it's job. My body did need it's nutritions and I always feel very dizzy and nausea when I don't get enough down. Well, I guess different bodies react differently. Sorry for not being able to help you out more, but maybe it just helps knowing that others here suffer(ed) from the same thing. Love, Isabella 's 11 month post op Error! Filename not specified. Should I be worried? I had my Upper GI yesterday, and as I said before, food is reaching my stomach just fine. However, my stomach isn’t digesting the food at a normal rate. I’ve long suspected this as I am rarely hungry and I find it very hard to eat some mornings due to the “full” feeling I get. After 12 hours my stomach still had my dinner. Does anyone else have this problem? And now my E looks very different, but it’s working as a vertical slide to my stomach. And there was an intermittent “bird’s peak” half way down my E. Confused, in SF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2008 Report Share Posted May 31, 2008 I haven’t had a gastric emptying study, yet. Dr. Campos had mentioned it at my last visit, but he wanted an upper GI first and he insisted that it be done at UCSF verses Stanford. He suggested a few more tests but he tried to discourage me from worrying about them until after the results from the upper GI. I just don’t know what to ask for or what I need because life is better after my myotomy. I’ve struggled for so long with A and I’m used to managing around my digestion issues. Now, I know better than to be passive about my health care and I want to take better care of myself, but sometimes don’t know what to do. Where do I go from here? in SF From: achalasia [mailto:achalasia ] On Behalf Of Dawn Batchelder Sent: Saturday, May 31, 2008 1:22 PM achalasia Subject: Re: Re: 's 11 month post op , Did you have a gastric emptying study? What imaging studies have they done? Good Luck with everything- I know you are very knowledgeable and will get yourself the appropriate workup and treatment. Let us know what is going on! Thinking of you!!! Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2008 Report Share Posted May 31, 2008 wrote: Should I be worried? Why worry, just stay on top of it. There are things that can be done to help a stomach empty. See what they can find and then see what happens. notan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2008 Report Share Posted May 31, 2008 hi seems like gastric emptying and endoscopy and upper gi are all important to start. i warn you i was made to lie flat on my back for over an hour for emptying test-make sure your e is empty! let us know what happens and try not to worry unless they find something. thinking of you dawn >From: " Venable " <rmvenable@...> >Reply-achalasia ><achalasia > >Subject: RE: Re: 's 11 month post op >Date: Sat, 31 May 2008 14:21:10 -0700 > >I haven't had a gastric emptying study, yet. Dr. Campos had mentioned it >at >my last visit, but he wanted an upper GI first and he insisted that it be >done at UCSF verses Stanford. He suggested a few more tests but he tried >to >discourage me from worrying about them until after the results from the >upper GI. > > > >I just don't know what to ask for or what I need because life is better >after my myotomy. I've struggled for so long with A and I'm used to >managing around my digestion issues. Now, I know better than to be passive >about my health care and I want to take better care of myself, but >sometimes >don't know what to do. Where do I go from here? > > > > in SF > > > >From: achalasia [mailto:achalasia ] On >Behalf >Of Dawn Batchelder >Sent: Saturday, May 31, 2008 1:22 PM >achalasia >Subject: Re: Re: 's 11 month post op > > > > > >, > >Did you have a gastric emptying study? What imaging studies have they >done? > >Good Luck with everything- I know you are very knowledgeable and will get >yourself the appropriate workup and treatment. Let us know what is going >on! Thinking of you!!! > >Dawn > > > > > ><< image003.jpg >> ><< image004.jpg >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2008 Report Share Posted June 1, 2008 Hi , First I read Dawn's reply concerning the gastric emptying test. Well, in my case it was done differently. I had to eat a sandwich with some radio-active egg (which was difficult for me of course) and then they filmed my stomach every ten minutes for hours. I didn't have to lay down. So there is this type of test where you can stand up instead of laying down! If you need to have the test done, ask for the test I had, as there is no need to get yourself in trouble by laying down with a full esophagus. Furthermore you mention the pyloromyotomy being standard with an -ectomy. Partly you are right. Partly, as it comes standard with some surgeons, some surgeons are convinced p-myotomies are necessary with an -ectomy, others aren't (mine aren't...). Most -ectomy patients go in for their -ectomy surgery without having gastric emptying problems and indeed even then the pro surgeons give them the p-myotomy too. So I think you can imagine how much I doubted whether it was the right decision of my doctors to not give me a p-myotomy with my -ectomy: I was already suffering from what other surgeons feared to happen after an -ectomy. But I trusted my doctors. They told me gravity would do it's job and they told me they feared the dumping a lot more than they feared gastric emptying problems after surgery. If the gastric emptying problems would stay, they would still be able to do the p-myotomy. Yes, it would mean another surgery, on the other hand (and more importantly) it would mean preventing any possible severe complication that might be unneccessary. Now why is there such a difference between over there and over here? I've been thinking a lot about that one lately and I THINK I might have found an answer. I've been reading a lot about -ectomies lately of course and I think that there are many partial -ectomies done. -Ectomies where not the complete esophagus is removed, but only part of it. In my case the esophagus was removed until under the chin, whereas I hear stories of others where the upper part of the esophagus stays in tact (which both me and my surgeons absolutely didn't want). Well, I guess (I'm no doctor, it's just a guess, maybe someone else knows if what I think here is the truth) that be not removing the complete esophagus, one doesn't remove as much stomach as they did in my case. In my case about half my stomach was removed, the other half was pulled up until under the chin. You can imagine how little stomach is left to be a true stomach in my case now. This means it's full easier and things go downwards easier, thus not needing the p-myotomy. I can proudly add to it, that I am very able to eat quite normal portions nowadays. Breadwise I really get in enough. The only thing I need to work on is getting my dinner in in normal portions, but hey, it's only been 9 weeks now. Well, that's a lot of talking about -ectomies now, whereas you are really not in need for that one. This as I read how well you are doing achalasiawise because of your myotomy. I promised this before and I am making this promise again: some day soon I am going to post here what I think the differences are between -ectomies over here and over there. In my opinion there are huge differences, some good for us, some good for you... There really are other solutions to the gastric emptying problems than just a pyloromyotomy. Don't worry too much. Let the doctors run their tests and have them advise you. Don't jump to conclustions and don't rush into surgeries (but we all know you well enough to know that you don't and that's a relief). Love, Isabella 's 11 month post op Error! Filename not specified. Should I be worried? I had my Upper GI yesterday, and as I said before, food is reaching my stomach just fine. However, my stomach isn’t digesting the food at a normal rate. I’ve long suspected this as I am rarely hungry and I find it very hard to eat some mornings due to the “full” feeling I get. After 12 hours my stomach still had my dinner. Does anyone else have this problem? And now my E looks very different, but it’s working as a vertical slide to my stomach. And there was an intermittent “bird’s peak” half way down my E. Confused, in SF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2008 Report Share Posted June 1, 2008 Dear Isabella, As far as I know, the test is more "real" if it is done lying down because it is then depending on peristalsis to move the food down. If you are standing for the test, gravity will be involved and helping the food to go down. As Achalasians we would never dream of attempting to eat whilst horizontal, but a non-achalasian would register peristalsis working efficiently even if they were at a 180degree angle. Or do I mean 90? Lying flat anyway. Just my twopenceworth (don't bother looking THAT word up sweetie.LOL) Love from your friend Ann XXX From: Isabella Arnold <arnoldisabella@...>Subject: Re: 's 11 month post opachalasia Date: Sunday, 1 June, 2008, 7:07 AM Hi , First I read Dawn's reply concerning the gastric emptying test. Well, in my case it was done differently. I had to eat a sandwich with some radio-active egg (which was difficult for me of course) and then they filmed my stomach every ten minutes for hours. I didn't have to lay down. So there is this type of test where you can stand up instead of laying down! If you need to have the test done, ask for the test I had, as there is no need to get yourself in trouble by laying down with a full esophagus. Furthermore you mention the pyloromyotomy being standard with an -ectomy. Partly you are right. Partly, as it comes standard with some surgeons, some surgeons are convinced p-myotomies are necessary with an -ectomy, others aren't (mine aren't...). Most -ectomy patients go in for their -ectomy surgery without having gastric emptying problems and indeed even then the pro surgeons give them the p-myotomy too. So I think you can imagine how much I doubted whether it was the right decision of my doctors to not give me a p-myotomy with my -ectomy: I was already suffering from what other surgeons feared to happen after an -ectomy. But I trusted my doctors. They told me gravity would do it's job and they told me they feared the dumping a lot more than they feared gastric emptying problems after surgery. If the gastric emptying problems would stay, they would still be able to do the p-myotomy. Yes, it would mean another surgery, on the other hand (and more importantly) it would mean preventing any possible severe complication that might be unneccessary. Now why is there such a difference between over there and over here? I've been thinking a lot about that one lately and I THINK I might have found an answer. I've been reading a lot about -ectomies lately of course and I think that there are many partial -ectomies done. -Ectomies where not the complete esophagus is removed, but only part of it. In my case the esophagus was removed until under the chin, whereas I hear stories of others where the upper part of the esophagus stays in tact (which both me and my surgeons absolutely didn't want). Well, I guess (I'm no doctor, it's just a guess, maybe someone else knows if what I think here is the truth) that be not removing the complete esophagus, one doesn't remove as much stomach as they did in my case. In my case about half my stomach was removed, the other half was pulled up until under the chin. You can imagine how little stomach is left to be a true stomach in my case now. This means it's full easier and things go downwards easier, thus not needing the p-myotomy. I can proudly add to it, that I am very able to eat quite normal portions nowadays. Breadwise I really get in enough. The only thing I need to work on is getting my dinner in in normal portions, but hey, it's only been 9 weeks now. Well, that's a lot of talking about -ectomies now, whereas you are really not in need for that one. This as I read how well you are doing achalasiawise because of your myotomy. I promised this before and I am making this promise again: some day soon I am going to post here what I think the differences are between -ectomies over here and over there. In my opinion there are huge differences, some good for us, some good for you... There really are other solutions to the gastric emptying problems than just a pyloromyotomy. Don't worry too much. Let the doctors run their tests and have them advise you. Don't jump to conclustions and don't rush into surgeries (but we all know you well enough to know that you don't and that's a relief). Love, Isabella 's 11 month post op Error! Filename not specified. Should I be worried? I had my Upper GI yesterday, and as I said before, food is reaching my stomach just fine. However, my stomach isn’t digesting the food at a normal rate. I’ve long suspected this as I am rarely hungry and I find it very hard to eat some mornings due to the “full†feeling I get. After 12 hours my stomach still had my dinner. Does anyone else have this problem? And now my E looks very different, but it’s working as a vertical slide to my stomach. And there was an intermittent “bird’s peak†half way down my E. Confused, in SF Sent from . A Smarter Email. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2008 Report Share Posted June 1, 2008 Dear Ann, Hmmm, I have to disagree with you on this one... I've checked the internet for it as well and I can only come to the conclusion that normally the gastric emptying test is done either with one standing up or sitting down (over here in Holland that is, I don't know in the rest of the world, but I guess it would be the same). The peristaltis isn't the real issue, as it's not the esophagus tested now, but the way the food goes from stomach to intestines. I was told they wanted to copy the "normal" situation under which one eats. I remember the film of my test and I could very clearly see the food particles in my stomach, like they were flying, these particles had no intention to go down into my intestines. I still don't know what caused this trouble, but the trouble was very obvious to see. I was very worried this trouble would cause a different kind of achalasia when my stomach was formed to be my "new" esophagus. Nowadays I am glad to know that it didn't and that gravity now does it's job for me. Maybe Notan knows more on this one, or someone else has experience on this one too? Love, Isabella 's 11 month post op Error! Filename not specified. Should I be worried? I had my Upper GI yesterday, and as I said before, food is reaching my stomach just fine. However, my stomach isn’t digesting the food at a normal rate. I’ve long suspected this as I am rarely hungry and I find it very hard to eat some mornings due to the “full” feeling I get. After 12 hours my stomach still had my dinner. Does anyone else have this problem? And now my E looks very different, but it’s working as a vertical slide to my stomach. And there was an intermittent “bird’s peak” half way down my E. Confused, in SF Sent from . A Smarter Email. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2008 Report Share Posted June 1, 2008 Isabella Arnold wrote: Maybe Notan knows more on this one, I don't really know. For the esophagus a barium swallow is often done both standing and lying down. This way they can tell the difference gravity makes. If it makes a big difference then a motility problem is suspected. For the stomach I don't know. notan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2008 Report Share Posted June 1, 2008 THANKS EVERYONE, I will try to put this on the back burner for now, as there is little I can do. I hope Dr. Campos calls next week. And if I start to have problems, I’m sure he won’t mind me emailing him or calling his office. On the brighter side, this might slow down the weight gaining. in SF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2008 Report Share Posted June 1, 2008 I had the gastric empting test last fall, came back on high side but not bad. I thought " I had " Gasproparesis but was diagnosed with A in March. My GI says that stomach empting is part of A. I was put on Reglan which helps empting, but had many side affects. Ordered Domperidone 10 mg from Canada which is similar but no side affects.Can take 4 per day, but I usually just take one after dinner at nite. Seems to work!No FDA approvalin US. Ray > > I haven't had a gastric emptying study, yet. Dr. Campos had mentioned it at > my last visit, but he wanted an upper GI first and he insisted that it be > done at UCSF verses Stanford. He suggested a few more tests but he tried to > discourage me from worrying about them until after the results from the > upper GI. > > > > I just don't know what to ask for or what I need because life is better > after my myotomy. I've struggled for so long with A and I'm used to > managing around my digestion issues. Now, I know better than to be passive > about my health care and I want to take better care of myself, but sometimes > don't know what to do. Where do I go from here? > > > > in SF > > > > From: achalasia [mailto:achalasia ] On Behalf > Of Dawn Batchelder > Sent: Saturday, May 31, 2008 1:22 PM > achalasia > Subject: Re: Re: 's 11 month post op > > > > > > , > > Did you have a gastric emptying study? What imaging studies have they > done? > > Good Luck with everything- I know you are very knowledgeable and will get > yourself the appropriate workup and treatment. Let us know what is going > on! Thinking of you!!! > > Dawn > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2008 Report Share Posted June 1, 2008 Just a question but isn't Domperidone a souped up antacid? Sent on my BlackBerry® from Vodafone Essar Re: Re: 's 11 month post op > > > > > > , > > Did you have a gastric emptying study? What imaging studies have they > done? > > Good Luck with everything- I know you are very knowledgeable and will get > yourself the appropriate workup and treatment. Let us know what is going > on! Thinking of you!!! > > Dawn > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2008 Report Share Posted June 1, 2008 I am not sure my GI says it is like Reglan but because of lactation was not approved by thr FDA. http://en.wikipedia.org/wiki/Domperidone unlike metoclopramide ( Reglan), domperidone does not cross the blood- brain barrier. No it is not an antacid. Ray > > > > I haven't had a gastric emptying study, yet. Dr. Campos had > mentioned it at > > my last visit, but he wanted an upper GI first and he insisted that > it be > > done at UCSF verses Stanford. He suggested a few more tests but he > tried to > > discourage me from worrying about them until after the results from > the > > upper GI. > > > > > > > > I just don't know what to ask for or what I need because life is > better > > after my myotomy. I've struggled for so long with A and I'm used > to > > managing around my digestion issues. Now, I know better than to be > passive > > about my health care and I want to take better care of myself, but > sometimes > > don't know what to do. Where do I go from here? > > > > > > > > in SF > > > > > > > > From: achalasia@grou <mailto:achalasia%40> ps.com [mailto:achalasia@grou <mailto:achalasia% 40> ps.com] > On Behalf > > Of Dawn Batchelder > > Sent: Saturday, May 31, 2008 1:22 PM > > achalasia@grou <mailto:achalasia%40> ps.com > > Subject: Re: Re: 's 11 month post op > > > > > > > > > > > > , > > > > Did you have a gastric emptying study? What imaging studies have > they > > done? > > > > Good Luck with everything- I know you are very knowledgeable and > will get > > yourself the appropriate workup and treatment. Let us know what is > going > > on! Thinking of you!!! > > > > Dawn > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2008 Report Share Posted June 1, 2008 Hi ,Don't forget the old fashioned "snail mail". A hand addressed letter is far more likely to be read by the addressee than an email. In my area of the country, a normal letter gets there in one to two days.DanFrom: Venable <rmvenable@...>Subject: RE: 's 11 month post opachalasia Date: Sunday, June 1, 2008, 1:40 PM THANKS EVERYONE, I will try to put this on the back burner for now, as there is little I can do. I hope Dr. Campos calls next week. And if I start to have problems, I¢m sure he won¢t mind me emailing him or calling his office. On the brighter side, this might slow down the weight gaining. in SF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2008 Report Share Posted June 2, 2008 Hi Domperidone helps the digestive system work more efficiently and helps with the sickness too. Have used it in the past. Re: Re: 's 11 month post op> > > > > > ,> > Did you have a gastric emptying study? What imaging studies have they> done? > > Good Luck with everything- I know you are very knowledgeable and will get> yourself the appropriate workup and treatment. Let us know what is going> on! Thinking of you!!!> > Dawn> ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2008 Report Share Posted June 2, 2008 I’m glad to hear that there might be medication to help. After I speak with my doctor and take the test needed, I’m sure I’ll have a better idea as to what is going on. AND then I’m sure I’ll be back with more questions. Thanks you all so very much!!!!!! in SF From: achalasia [mailto:achalasia ] On Behalf Of Hulmes Sent: Monday, June 02, 2008 1:10 AM achalasia Subject: Re: Re: 's 11 month post op Hi Domperidone helps the digestive system work more efficiently and helps with the sickness too. Have used it in the past. Re: Re: 's 11 month post op > > > > > > , > > Did you have a gastric emptying study? What imaging studies have they > done? > > Good Luck with everything- I know you are very knowledgeable and will get > yourself the appropriate workup and treatment. Let us know what is going > on! Thinking of you!!! > > Dawn > ------------------------------------ Quote Link to comment Share on other sites More sharing options...
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