Guest guest Posted May 12, 2008 Report Share Posted May 12, 2008 Sandi, Absolutely we will be thinking of him…and hope that questions are answered and things work out to his benefit!!!! From: achalasia [mailto:achalasia ] On Behalf Of sholtsmith Sent: Monday, May 12, 2008 12:07 PM achalasia Subject: OT- update Hi everyone, Well had another seizure yesterday and was admitted to Children's LA. He had been role playing " Seizure " with his Big Bird all week long and yesterday he told my daughter that he was going to have one and he was afraid to take a nap. She laid with him and watched over him and when he woke up, sure enough, he had the seizure. She has been having problems getting the insurance to approve UCLA because Blue Cross says they are too expensive and have been removed for the preferred hospital list so now they are considered out of network. My daughter doesn't like the way is cared for at Children's so she asked for him to be transferred to UCLA anyway. They told her it wasn't possible and at best he might get into emergency but 15 minutes later there was a room waiting for him at UCLA! Dr Lazareff is great! We found out today that he is the one responsible for getting everything approved and getting him admitted. Now is scheduled for his MRI today or tomorrow and probably surgery to follow sometime this week. I am heading down tomorrow and will keep everyone informed as I can. There is a medical library with computers that I found there and have always been able to use them in the past. -, I am going to need to cancel our plans for Saturday but we will get together another time soon! -Sandy, maybe you could come visit if you get a chance?? I think I will be there through the weekend. Let me know, it would be wonderful to see you! My cellphone is 925 550-0488 Take care everyone...please keep in your thoughts and prayers. Sandi in No CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2008 Report Share Posted May 12, 2008 My poor little buddy.Bless his heart.I cant believe he could sense one was going to happen that early on,THATS AMAZING! I will indeed keep him in my prayers and please keep us updated as often as you can. Hugs to you all- Tonia > > Hi everyone, > > Well had another seizure yesterday and was admitted to > Children's LA. He had been role playing " Seizure " with his Big Bird > all week long and yesterday he told my daughter that he was going to > have one and he was afraid to take a nap. She laid with him and > watched over him and when he woke up, sure enough, he had the seizure. > > She has been having problems getting the insurance to approve UCLA > because Blue Cross says they are too expensive and have been removed > for the preferred hospital list so now they are considered out of > network. My daughter doesn't like the way is cared for at > Children's so she asked for him to be transferred to UCLA anyway. They > told her it wasn't possible and at best he might get into emergency > but 15 minutes later there was a room waiting for him at UCLA! > > Dr Lazareff is great! We found out today that he is the one > responsible for getting everything approved and getting him admitted. > Now is scheduled for his MRI today or tomorrow and probably > surgery to follow sometime this week. > > I am heading down tomorrow and will keep everyone informed as I can. > There is a medical library with computers that I found there and have > always been able to use them in the past. > > -, I am going to need to cancel our plans for Saturday but we > will get together another time soon! > > -Sandy, maybe you could come visit if you get a chance?? I think I > will be there through the weekend. Let me know, it would be wonderful > to see you! My cellphone is 925 550-0488 > > Take care everyone...please keep in your thoughts and prayers. > > Sandi in No CA > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2008 Report Share Posted May 12, 2008 Thanks everyone-- Yes he is an amazing little guy. I have always felt that he has a little something extra sensory going on in his mind....not just me but most people sense this about him. He went in for his MRI about an hour ago. It was necessary to give him general anesthesia to keep him still for the procedure and he went in screaming. Hopefully he will be calm and sedate when he comes out so he won't be so scared. He acts so grown-up sometimes and has such a deep understanding of what is going on around him but he is still not quite 3 years old! He is in wonderful hands...I wish I could get down there today because he is waiting for me and knows I am coming to see him...I feel like I can't get there soon enough! Will keep you updated.... Sandi > > > > Hi everyone, > > > > Well had another seizure yesterday and was admitted to > > Children's LA. He had been role playing " Seizure " with his Big Bird > > all week long and yesterday he told my daughter that he was going > to > > have one and he was afraid to take a nap. She laid with him and > > watched over him and when he woke up, sure enough, he had the > seizure. > > > > She has been having problems getting the insurance to approve UCLA > > because Blue Cross says they are too expensive and have been > removed > > for the preferred hospital list so now they are considered out of > > network. My daughter doesn't like the way is cared for at > > Children's so she asked for him to be transferred to UCLA anyway. > They > > told her it wasn't possible and at best he might get into emergency > > but 15 minutes later there was a room waiting for him at UCLA! > > > > Dr Lazareff is great! We found out today that he is the one > > responsible for getting everything approved and getting him > admitted. > > Now is scheduled for his MRI today or tomorrow and > probably > > surgery to follow sometime this week. > > > > I am heading down tomorrow and will keep everyone informed as I > can. > > There is a medical library with computers that I found there and > have > > always been able to use them in the past. > > > > -, I am going to need to cancel our plans for Saturday but > we > > will get together another time soon! > > > > -Sandy, maybe you could come visit if you get a chance?? I think I > > will be there through the weekend. Let me know, it would be > wonderful > > to see you! My cellphone is 925 550-0488 > > > > Take care everyone...please keep in your thoughts and > prayers. > > > > Sandi in No CA > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2008 Report Share Posted May 13, 2008 Oh, Wow! What stories are in this latest postings-journal! And I especially feet for and Deb and Isabella and Ms. Hulmes, with the J-tube traumas..... Please get better soon! Please feel wonderful soon! Please know that I (and everybody else here) is thinking great thoughts of recovery for you all! Deborah Quote Link to comment Share on other sites More sharing options...
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