To and

[Guest guest]

Hi , ,

<<Does everyone experience one set of emotions and views on these issues one

day, and then the next day they change?>>

It's really difficult for me to distance myself from the OCD roller coaster

too. Fortunately, we're pretty much off the " good day " : bad day " thing so

we're generally all happier. However, on relapse days, once every two weeks

or so I find myself depressed and disapointed again. Although last time I

was better able to maintain my perspective.

-If your son's OCD manifests at school, his teacher should probably

know. I guess I'd hope that a good teacher would want to see him succeed.

If anything, it's hard to convince them there's really a problem. When

Kelsey couldn't finish her assignments b ecause she was so stressed about

having to re-write, her teacher didn't believe that was why because she

said she wasn't seeing much erasing. Of course, she was using every inch of

willpower not to erase and therefore couldn't focus very long.

" OCD a very confusing disease, and not just to us, but to doctors, too.

is into her 4th week of increased Zoloft and third week of CBT and

we're simply watching symptoms shift around. None are leaving -- they're

just changing. Where is our daughter?? "

-Your daughter is in there and can resurface. I said these same words

for many weeks and now Kelsey is back!! I don't think you can make a child

do the CBT. They have to be inconvenienced enough and hate it enough to

want to get better. But you can keep talking about it and naming the OCD

for what it is to increase their awareness and point out when it's causing

problems for your child.

For the first 5 weeks or so of CBT, we also saw all the symptoms shifting

around too. It seemed like we'd be working on one thing and then something

new would pop up. I couldn't understand how we were ever going to get it

all to go away when the new things were popping up faster than we could

address the old problems. But eventually, new things quit popping up, or

when they did she'd be able to resist them a few times and then they

wouldn't come up anymore. Over the past month we've had nothing new come up

(well, two small things that I discovered by redoing the YBOCS but they

don't interfere and can be addressed at some point later) and we've made

big progress on the old things and are just starting to go back through the

long list of things that have been a problem, but a few of those things

drop off by themselves every week.

So, if she's willing to try the CBT, maybe you should continue. If she

doesn't WANT to get better, maybe it's too soon. If it's a question of her

not believeing it will work, I believe you can show her that it will and

she'll see for herself. Do you think she maybe wants to stop spitting into

the towel, but it's too difficult a task for her? If so, you could have the

therapist find ways to break down the task (or work on something else). By

going very slowly with Kelsey at first, she really built her confidence and

gained momentum.

Hang in there,

in San Diego

[Guest guest]

You just did sweetie---I cannot repeat that often enough!!! I wonder often

how much different, easier, my life would have been today and yesterday had

my parents been like you?

Hang in there, doll...

Love and hugs,

In S. Ont. where a cold wind has just whipped up!!! Brrrr...and I've got the

flu...boo hoo :-(

In a message dated 1/4/2000 12:17:28 PM Eastern Standard Time,

GPesses@... writes:

<< I often

feel so helpless that you reminder of the power of unconditional love was

just what I needed to hear. I wish I could tell you how much your message

meant to me. >>

[Guest guest]

Welcome and ,

My name is Joyce and my husband's name is Mike. We are the parent's of seven

kids. Three of them are down syndrome. Ben is 16 and also hard of hearing.

He is a sweetheart and very helpful with the younger kids. is 6

years old and she is something else! She is extremely talkative and quite a

swimmer! She is in the " why " stage. is 3 years old and spent most

of his life sick, that is, until just a month and a half ago when he got his

tonsils and adnoids out and had tubes put in his ears. He was on oxygen for

low blood oxygen saturation levels, he had 4-6 breathing treatments a day for

asthma, and it was even considered that he might possibly have luekemia at

one time. He had constant upper respiratory infections. Since the surgery

last month, he has been an absolute picture of health. We can't believe

it,he is like a new little boy. He doesn't even get breathing treatments

anymore. He now runs everywhere, he jumps on the trampoline with fantastic

agility bouncing from his bottom and back up to his feet---beeming with joy.

He even relates to our pets in a new way.....would you believe that when the

chickens see him coming, they run to him??? He would sit for hours with them

if we let him. They won't even peck at his toes, but they'd gladly peck at

mine. Ha! In essence, I am saying that we just want to give God the Glory

for our precious special kids. We wouldn't trade them for anything in the

world. Sometimes it's overwhelming at the work, but most of the time the

rewards are far greater. Again, welcome to the group and we hope to get to

know you better.

Joyce and Mike-parents to seven (three are DS)

PS all three are also straight trisomy 21

[Guest guest]

I hope the mall was great and you logged many steps!

To and

Good work this morning! I am off to walk in the malls. Have a good day everyone.The answer to reaching my goal is to stop making reasons for why I can't.--------- from the old .com web site Daily MessageDon't forget to check our list's Files and Links pages for helpful weight loss information and loads of healthy recipes.

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[Guest guest]

Hello you two.

You won't be reading this message yet, as you will both still be in hospital after your surgeries. Just wanted to let you know I have been thinking about you a lot yesterday. In Holland it was

liberation day and I was just thinking how you were more or less being "liberated" from your conditions.

Take it easy recovering and I look forward to hearing from you how you are doing. Love, Astrid

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