Re: update, surgery scheduled on Friday!

[Guest guest]

hidepending on your op and the local procedures etc etc it may vary but I had a myotomy in January in the UK and had no tubes anywhere - just a small drip for pain reflief in my hand but that was gone in around 12 hours of the op.

Andy2008/6/18 mskgee22 <mskgee22@...>:

Hello all,

I was diagnosed with the early stages of A in early May and I go for

the surgery this Friday June 20. I am both nervous and excited to get

this over with and resume a normal life again.

I do have one question for the folks who have had the surgery, did you

have a tube in your nose when you woke up?

THanks,

KG

------------------------------------

[Guest guest]

The same for me - no nose tube, just the cannula in my hand for pain relief and IV feeding until after I had had the surgery checked, by having a barium test to check for leaks. That check was performed 48 hours later.

From: Haigh <mr.gadget1961@...>Subject: Re: update, surgery scheduled on Friday!achalasia Date: Wednesday, 18 June, 2008, 7:06 PM

hidepending on your op and the local procedures etc etc it may vary but I had a myotomy in January in the UK and had no tubes anywhere - just a small drip for pain reflief in my hand but that was gone in around 12 hours of the op.Andy

2008/6/18 mskgee22 <mskgee22 (DOT) com>:

Hello all,I was diagnosed with the early stages of A in early May and I go forthe surgery this Friday June 20. I am both nervous and excited to getthis over with and resume a normal life again.I do have one question for the folks who have had the surgery, did youhave a tube in your nose when you woke up?THanks,KG------------ --------- --------- ------

[Guest guest]

mskgee22 wrote:

> ... did you

> have a tube in your nose when you woke up?

No. However, you may end up with one between your legs.

notan

[Guest guest]

Hello KG,

I think it depends on the hospital you go to. I had my first myotomy done at another hospital than the one where I had my second myotomy and my -ectomy. After my first myotomy I didn't have the nose tube, after my second one and after my -ectomy I did.

This tube is a horrible thing, but I have been told it is necessary to prevent fluids to run into your lungs. Opinions on this one differ, so like I said before, it depends on the hospital/surgeon that performs your procedure. The only one to answer your question is your surgeon.

Good luck with your surgery!

Isabella

update, surgery scheduled on Friday!

Hello all,I was diagnosed with the early stages of A in early May and I go for the surgery this Friday June 20. I am both nervous and excited to get this over with and resume a normal life again.I do have one question for the folks who have had the surgery, did you have a tube in your nose when you woke up?THanks,KG

[Guest guest]

Hi KG

I had the myotomy back in July 2003 1 year before I had the ectomy in October 2004. On both occasions I had the tube down my nose and was told that it was to drain any bile in the system to allow the gullet to heal and also to help stop you going sick. Had it in for 3 days after the myotomy and 7 days after the ectomy.

update, surgery scheduled on Friday!

Hello all,I was diagnosed with the early stages of A in early May and I go for the surgery this Friday June 20. I am both nervous and excited to get this over with and resume a normal life again.I do have one question for the folks who have had the surgery, did you have a tube in your nose when you woke up?THanks,KG

[Guest guest]

Hi Andy

I too am from the UK well North Wales to be exact and had my surgeries in The Cardiothoracic Centre in Liverpool by Mr D. Page. Where did you have yours done?

Re: update, surgery scheduled on Friday!

hidepending on your op and the local procedures etc etc it may vary but I had a myotomy in January in the UK and had no tubes anywhere - just a small drip for pain reflief in my hand but that was gone in around 12 hours of the op.Andy

2008/6/18 mskgee22 <mskgee22 (DOT) com>:

Hello all,I was diagnosed with the early stages of A in early May and I go forthe surgery this Friday June 20. I am both nervous and excited to getthis over with and resume a normal life again.I do have one question for the folks who have had the surgery, did youhave a tube in your nose when you woke up?THanks,KG------------ --------- --------- ------

[Guest guest]

Hi Notan

Many thanks for the laugh. Yes you do end up with one between the legs and yes you can aford to laugh about it.

Re: update, surgery scheduled on Friday!

mskgee22 wrote:> ... did you > have a tube in your nose when you woke up?No. However, you may end up with one between your legs.notan

[Guest guest]

Had a heart surgeon who was the one that performed my first heller

myotomy. He went THROUGH my lung, so, I had a chest tube. No NG

tube though. The second heller myotomy that I had, I had no tubes

and NO chest tube as he went through my new stomach pouch since I

just had gastric bypass. As a side note, the first surgeon was NOT

well versed in Achalasia. The second doctor was and he also had the

surgeon higher up assist. First surgery was about 3 hours and the

second one was 1 1/2 hours.

Christi

>

> From: Haigh <mr.gadget1961@...>

> Subject: Re: update, surgery scheduled on Friday!

> achalasia

> Date: Wednesday, 18 June, 2008, 7:06 PM

>

>

>

>

>

>

> hi

> depending on your op and the local procedures etc etc it may vary

but I had a myotomy in January in the UK and had no tubes anywhere -

just a small drip for pain reflief in my hand but that was gone in

around 12 hours of the op.

>

> Andy

>

>

> 2008/6/18 mskgee22 <mskgee22 (DOT) com>:

>

> Hello all,

>

> I was diagnosed with the early stages of A in early May and I go for

> the surgery this Friday June 20.  I am both nervous and excited to

get

> this over with and resume a normal life again.

>

> I do have one question for the folks who have had the surgery, did

you

> have a tube in your nose when you woke up?

>

> THanks,

>

> KG

>

>

> ------------ --------- --------- ------

>

>

[Guest guest]

Christi wrote:

> ... He went THROUGH my lung, so, I had a chest tube. No NG

> tube though. The second heller myotomy that I had, I had no tubes

> and NO chest tube as he went through my new stomach pouch since I

> just had gastric bypass. ...

I didn't say anything the first time you said this. I just scratched my

head. What does " through " mean in this context. I can't imagine going

" through " a lung or a stomach pouch to do a Heller myotomy.

notan

[Guest guest]

They told me that they had to go through the lung to access the

esophagus accurately due to my gastric bypass. The need for the chest

tube was so that the lung did not collapse after he was in there. That

time I was in the hospital for about 8 days. The second time I had the

heller myotomy, he went up through my gastric bypass lap incisions and

made a small incision in the pouch that was created. I don't

understand why, but, that is what he said he did. I was in the

hospital for 5 days after that one. Both seemed odd to me, especially

the one going thru my pouch since it is the OUTER layers of the

esophagus that are cut. I BELIEVE that he was checking to make sure

that I did not have a stricture from my gastric bypass that could cause

issues tha mimic achalasia issues. He did tell me that my gastric

bypass was perfect!

> > ... He went THROUGH my lung, so, I had a chest tube. No NG

> > tube though. The second heller myotomy that I had, I had no tubes

> > and NO chest tube as he went through my new stomach pouch since I

> > just had gastric bypass. ...

>

> I didn't say anything the first time you said this. I just scratched

my

> head. What does " through " mean in this context. I can't imagine going

> " through " a lung or a stomach pouch to do a Heller myotomy.

>

> notan

>

[Guest guest]

It should also be said here that THIS is why you SHOULD to go a

doctor that is well versed in achalasia and treatment!!!! I was told

it was such a rare disease that there was not the luxury of knowledge

that a surgeon likes to have. This is NOT the case as I am finding

out now!!!! Thank you everyone!!

> > > ... He went THROUGH my lung, so, I had a chest tube. No NG

> > > tube though. The second heller myotomy that I had, I had no

tubes

> > > and NO chest tube as he went through my new stomach pouch since

I

> > > just had gastric bypass. ...

> >

> > I didn't say anything the first time you said this. I just

scratched

> my

> > head. What does " through " mean in this context. I can't imagine

going

> > " through " a lung or a stomach pouch to do a Heller myotomy.

> >

> > notan

> >

>

[Guest guest]

Hi Christi,

Maybe VATS would have been better in your

case because they go through the side and between your ribs. There are a few

people in the group who have had their myotomies via Thoracic surgery with

great success and I don’t think it is necessary to go through the lung or

stomach….that does sound very odd. Who were your surgeons? Dr Fuller at

Cedars Sinai in LA does his myotomies this way.

Sandi in No CA

From: achalasia [mailto:achalasia ] On Behalf Of christim1969

Sent: Thursday, June 19, 2008 9:45

AM

achalasia

Subject: Re: update,

surgery scheduled on Friday!

They told me that they had to go through the lung to

access the

esophagus accurately due to my gastric bypass. The need for the chest

tube was so that the lung did not collapse after he was in there. That

time I was in the hospital for about 8 days. The second time I had the

heller myotomy, he went up through my gastric bypass lap incisions and

made a small incision in the pouch that was created. I don't

understand why, but, that is what he said he did. I was in the

hospital for 5 days after that one. Both seemed odd to me, especially

the one going thru my pouch since it is the OUTER layers of the

esophagus that are cut. I BELIEVE that he was checking to make sure

that I did not have a stricture from my gastric bypass that could cause

issues tha mimic achalasia issues. He did tell me that my gastric

bypass was perfect!

> > ... He went THROUGH my lung, so, I had a chest tube. No NG

> > tube though. The second heller myotomy that I had, I had no tubes

> > and NO chest tube as he went through my new stomach pouch since I

> > just had gastric bypass. ...

>

> I didn't say anything the first time you said this. I just scratched

my

> head. What does " through " mean in this context. I can't imagine

going

> " through " a lung or a stomach pouch to do a Heller myotomy.

>

> notan

>

[Guest guest]

Sandi wrote:

Maybe VATS

would have been better in your

case because they go through the side and between your ribs.

It should also be pointed out that in this case they may deflate a lung

instead of going through it. Perhaps the aneurysm required not

deflating a lung. That still does not explain the stomach pouch.

notan

[Guest guest]

Hi Sandi

Yes I had my myotomy throught the left side of my chest wall and then between the ribs (had to take out a rib before spreading them) and and through the same scar on my left side to do the ectomy. Had drains in both times, the first only for 24 hrs and the second for 5 days because of the blood loss. I can't imagine going through the lung or stomach. Sounds odd.

Re: update, surgery scheduled on Friday!

They told me that they had to go through the lung to access the esophagus accurately due to my gastric bypass. The need for the chest tube was so that the lung did not collapse after he was in there. That time I was in the hospital for about 8 days. The second time I had the heller myotomy, he went up through my gastric bypass lap incisions and made a small incision in the pouch that was created. I don't understand why, but, that is what he said he did. I was in the hospital for 5 days after that one. Both seemed odd to me, especially the one going thru my pouch since it is the OUTER layers of the esophagus that are cut. I BELIEVE that he was checking to make sure that I did not have a stricture from my gastric bypass that could cause issues tha mimic achalasia issues. He did tell me that my gastric bypass was perfect!> > ... He went THROUGH my lung, so, I had a chest tube. No NG > > tube though. The second heller myotomy that I had, I had no tubes > > and NO chest tube as he went through my new stomach pouch since I > > just had gastric bypass. ...> > I didn't say anything the first time you said this. I just scratched my > head. What does "through" mean in this context. I can't imagine going > "through" a lung or a stomach pouch to do a Heller myotomy.> > notan>

[Guest guest]

Hi Notan

Yes they do deflate a lung to gain better access to the gullet. When I had my myotomy then my ectomy through the left side they had to deflate the right lung to gain this access and as the Anaesthetist told me before and afterwards as they deflate the lung it is more difficult to intubate the left lung while the surgeons move it to one side to gain the access and therefore more difficult to maintain the bloodgas levels during the op. To keep an eye on the bloodgases during the op the Anaesthetist has to insert some IV lines in the throat (i had six lines after my ectomy for 9 days so that they could use them for IV fluids and blood tests post op).

Re: Re: update, surgery scheduled on Friday!

Sandi wrote:

Maybe VATS would have been better in your case because they go through the side and between your ribs. It should also be pointed out that in this case they may deflate a lung instead of going through it. Perhaps the aneurysm required not deflating a lung. That still does not explain the stomach pouch.notan

[Guest guest]

It depends on the type of -ectomy whether a lung is deflated or not. In my case there was no need to do so, again, as they took out the whole esophagus and worked through stomach and neck. So I didn't have a deflated lung.

Isabella

Re: Re: update, surgery scheduled on Friday!

Sandi wrote:

Maybe VATS would have been better in your case because they go through the side and between your ribs. It should also be pointed out that in this case they may deflate a lung instead of going through it. Perhaps the aneurysm required not deflating a lung. That still does not explain the stomach pouch.notan

[Guest guest]

I don't remember the name of the first doctor. The second one was

Dr. Sumeet Mittal in Omaha at Creighton.

> > > ... He went THROUGH my lung, so, I had a chest tube. No NG

> > > tube though. The second heller myotomy that I had, I had no

tubes

> > > and NO chest tube as he went through my new stomach pouch since

I

> > > just had gastric bypass. ...

> >

> > I didn't say anything the first time you said this. I just

scratched

> my

> > head. What does " through " mean in this context. I can't imagine

going

> > " through " a lung or a stomach pouch to do a Heller myotomy.

> >

> > notan

> >

>

[Guest guest]

I did not have the aneurysm at the time. I think the reason he went

through the pouch was because he wanted to be sure that all was good

with my gastric bypass.

[Guest guest]

Christi,

I was reading back through your history

and you have had quite a rough time. You mentioned that you had your old stomach….I

don’t recall if anyone else has asked, but I am interested in knowing

more about this. Do they have it frozen for you? I hope this is not too

personal of a question to ask you, but I think this is wonderful that you still

have it to use to recreate a new esophagus.

Also, I am sorry to hear that your

daughter isn’t supportive. It is sometimes difficult for our family

members to understand. There is a booklet in the group files written by a dearly

departed member of our group that explains Achalasia very well and maybe you

could print it up for your daughter to read so she has a better understanding

of what you are going through. It would be nice if you could have the support

of your family.

I look forward to hearing more about what

Dr Patti has to say. I saw him when he was in San Francisco, and although he is not the one

to do my myotomy, I have heard wonderful things about him. Dr Rice is also very

good as I believe has been mentioned. They are both highly regarded and specialized

in achalasia….the best of the best!

Wishing you all the best and I am so happy

that you have found us!

Sandi in No CA

From: achalasia [mailto:achalasia ] On Behalf Of christim1969

Sent: Thursday, June 19, 2008 8:10

PM

achalasia

Subject: Re: update,

surgery scheduled on Friday!

I don't remember the name of the first doctor. The

second one was

Dr. Sumeet Mittal in Omaha

at Creighton.

> > > ... He went THROUGH my lung, so, I had a chest tube. No NG

> > > tube though. The second heller myotomy that I had, I had no

tubes

> > > and NO chest tube as he went through my new stomach pouch since

I

> > > just had gastric bypass. ...

> >

> > I didn't say anything the first time you said this. I just

scratched

> my

> > head. What does " through " mean in this context. I can't

imagine

going

> > " through " a lung or a stomach pouch to do a Heller myotomy.

> >

> > notan

> >

>

[Guest guest]

wrote:

,,,. You

mentioned that you had your old stomach….

In the Roux-en-Y gastric bypass procedure, the stomach across the top

is stapled to create a small pouch for a stomach. The rest of the

stomach is separated from the pouch and closed. This portion of the

stomach remains in the body and continues to produce digestive juices

that will flow into the small intestines. A portion of the small

intestine is made into a “Y” keeping the old connection to the

remainder of the stomach and making a new connection to the pouch.

See:

http://www.laparoscopicsurgeon.com.au/images/gastric_bypass.gif

There are other procedures that keep varying amounts of the stomach.

I don't know how well this modified stomach can be used to replace an

esophagus. Hopefully it is not a problem.

notan

[Guest guest]

Hi Isabella

I had to have my right lung deflated so that they could work through the left side and they took all but 2" of esophagus out and went in through the neck to join the ends together. They also made a tube out of the 1/3 of the stomach that they left in.

Re: Re: update, surgery scheduled on Friday!

Sandi wrote:

Maybe VATS would have been better in your case because they go through the side and between your ribs. It should also be pointed out that in this case they may deflate a lung instead of going through it. Perhaps the aneurysm required not deflating a lung. That still does not explain the stomach pouch.notan

[Guest guest]

I didn’t know the rest of the

stomach remains in the body….it makes so much more sense to me now,

thanks…

Sandi, Sandri, or

People will get confused!

From: achalasia [mailto:achalasia ] On Behalf Of notan ostrich

Sent: Thursday, June 19, 2008

11:54 PM

achalasia

Subject: Re: Re:

update, surgery scheduled on Friday!

wrote:

,,,. You mentioned that you had your old

stomach….

In the Roux-en-Y gastric bypass procedure, the stomach across the top is

stapled to create a small pouch for a stomach. The rest of the stomach is

separated from the pouch and closed. This portion of the stomach remains in the

body and continues to produce digestive juices that will flow into the small

intestines. A portion of the small intestine is made into a “Y”

keeping the old connection to the remainder of the stomach and making a new

connection to the pouch.

See:

http://www.laparoscopicsurgeon.com.au/images/gastric_bypass.gif

There are other procedures that keep varying amounts of the stomach.

I don't know how well this modified stomach can be used to replace an esophagus.

Hopefully it is not a problem.

notan

[Guest guest]

No, my " old " stomach is still in my body. It is separated from the

small pouch that they created for me and bypassed that and a very

large portion of my intestines as I had RNY Gastric Bypass.

> > > > ... He went THROUGH my lung, so, I had a chest tube. No NG

> > > > tube though. The second heller myotomy that I had, I had no

> tubes

> > > > and NO chest tube as he went through my new stomach pouch

since

> I

> > > > just had gastric bypass. ...

> > >

> > > I didn't say anything the first time you said this. I just

> scratched

> > my

> > > head. What does " through " mean in this context. I can't imagine

> going

> > > " through " a lung or a stomach pouch to do a Heller myotomy.

> > >

> > > notan

> > >

> >

>