Guest guest Posted February 11, 2003 Report Share Posted February 11, 2003 Wenoka: I believe I recall being on Keflex for cellulitis and it KILLED my stomach. Maybe check on the med insert to see if that's a side effect and ask how to counteract it (can it be taken with food?). (mom to Kate, born 9/19/02; and , age 4 -- currently has polysaccharide antibody def, previously had transient IgG, IgA, t-cell & other defs) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2003 Report Share Posted February 11, 2003 I don't know yet. He said to finish out the Augmentin before starting the other, so I don't know if it's to be taken with food or not. Thanks for the heads up. I'll check it out with my pharmacist ( was laughing at me today because we drove up with him at the wheel, and he got the " Can I help you sir? " , then I leaned over where the pharmacist could see me and it was the " Oh, hi Wenoka. Your medicine is right here..... " Everyone at our pharmacy knows me well. Especially the last few days. I think I've made about 3 pick ups in the last 4 days.) Did you know they have Augmentin in generic now??? But it tastes yucky. Christi doesn't usually buck medicine, but she hates this stuff. I had to hold her nose closed so that she would swallow it instead of spitting it out. She hasn't spit anything out for months. Wenoka At 09:23 PM 02/11/2003 EST, you wrote: >Wenoka: > >I believe I recall being on Keflex for cellulitis and it KILLED my stomach. >Maybe check on the med insert to see if that's a side effect and ask how to >counteract it (can it be taken with food?). > > (mom to Kate, born 9/19/02; and , age 4 -- currently has >polysaccharide antibody def, previously had transient IgG, IgA, t-cell & >other defs) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2008 Report Share Posted June 23, 2008 Before you have this chricholaryngeal myo thing done, have you exhausted all of your other options. It seems to me that many of us that have had -ectomies have needed further dilations due to built up scar tissue. How much experience does your surgeon have? By now you know it is so very important to go to someone who is very experienced. I'd hate to see you go through another difficult surgery if not completely necessary. I've already had 3 dilations (since Jan.) - the first 2 were with my surgeon and he also scraped the scar tissue down - made an immediate difference. I've just had my 3rd with a local GI doc and he injected some steroids in my remaining scar tissue to reduce it. I have my next one scheduled in about a month. When all is said and done, I should need a few more and then be done for awhile. Is your surgeon ABSOLUTELY positive that this is not the case for you? Like you, I only have an inch or so of my original E left, just enough to connect it to my new 'tube'. Good luck in whatever you decide and please keep us posted. - in NC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2008 Report Share Posted June 24, 2008 Hi Thanks for the e-mail. I think that you have got my name mixed up but the right answer to the email. I am seeing one of my surgeons next Monday morning to discuss what to do next and yes Cricopharyngeal Myotomy will come up into the conversation and other possabilities on what to do. My swallowing now is very poor and can only swallow a little fluid thank goodness that I have a Jejunostomy feeding tube and am having almost 100% feeding regime to keep my weight of 98lbs (which for my height of 5' 4" is too low) constant. I will see what the surgeon has to say. Maybe he will referre me bak to the Thoracic surgeon who did the ectomy on me for his opinion, I don't know. But I will let everyone know what happens. Christi Before you have this chricholaryngeal myo thing done, have you exhausted all of your other options. It seems to me that many of us that have had -ectomies have needed further dilations due to built up scar tissue. How much experience does your surgeon have? By now you know it is so very important to go to someone who is very experienced. I'd hate to see you go through another difficult surgery if not completely necessary. I've already had 3 dilations (since Jan.) - the first 2 were with my surgeon and he also scraped the scar tissue down - made an immediate difference. I've just had my 3rd with a local GI doc and he injected some steroids in my remaining scar tissue to reduce it. I have my next one scheduled in about a month. When all is said and done, I should need a few more and then be done for awhile. Is your surgeon ABSOLUTELY positive that this is not the case for you? Like you, I only have an inch or so of my original E left, just enough to connect it to my new 'tube'.Good luck in whatever you decide and please keep us posted.- in NC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2008 Report Share Posted June 24, 2008 Christi, , , Sandi, Sandy (Sandri??)lol Whew, there's just so many of us - thanks for understanding my confusion. Please ask your doctor about the scar tissue thing, it seems to be fairly common and for the most part, an easier fix than another myotomy. Keep us posted on your appointment. How many -ectomies has your surgeon done? Please ask him/her for a REAL number (not one of these 'I've done plenty' answers) Make sure you find the most experienced person you can!! Good Luck - in NC > > Hi > Thanks for the e-mail. I think that you have got my name mixed up but the right answer to the email. I am seeing one of my surgeons next Monday morning to discuss what to do next and yes Cricopharyngeal Myotomy will come up into the conversation and other possabilities on what to do. My swallowing now is very poor and can only swallow a little fluid thank goodness that I have a Jejunostomy feeding tube and am having almost 100% feeding regime to keep my weight of 98lbs (which for my height of 5' 4 " is too low) constant. I will see what the surgeon has to say. Maybe he will referre me bak to the Thoracic surgeon who did the ectomy on me for his opinion, I don't know. But I will let everyone know what happens. > > > > > Christi > > > Before you have this chricholaryngeal myo thing done, have you > exhausted all of your other options. It seems to me that many of us > that have had -ectomies have needed further dilations due to built up > scar tissue. How much experience does your surgeon have? By now you > know it is so very important to go to someone who is very experienced. > I'd hate to see you go through another difficult surgery if not > completely necessary. I've already had 3 dilations (since Jan.) - the > first 2 were with my surgeon and he also scraped the scar tissue down - > made an immediate difference. I've just had my 3rd with a local GI doc > and he injected some steroids in my remaining scar tissue to reduce it. > I have my next one scheduled in about a month. When all is said and > done, I should need a few more and then be done for awhile. Is your > surgeon ABSOLUTELY positive that this is not the case for you? Like > you, I only have an inch or so of my original E left, just enough to > connect it to my new 'tube'. > Good luck in whatever you decide and please keep us posted. > > - in NC > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2008 Report Share Posted June 24, 2008 Hi , Just wondering here... You talk about this myotomy on the upper muscles of the esophagus, the remaining part of it. But have you ever before had swallowing problems in that part of the esophagus? I mean before your -ectomy was done? Have you had testings done, to check whether it is a muscle problem? I feel my swallowing problems due to the scar tissue so differently (worse) than before the -ectomy, just because it's in an area where you get more trouble from it. The feeling is completely different and thus I am sure in my case it's scar tissue instead of muscles. I wonder whether a mytomomy in your case really would be the right option. Don't run into anything out of panic please!!! Take your time, though it's hard, think it over and let your doctors think things over as well. If necessary, seek second opinion (you know how I doubt your doc's/dietician etc., sorry). Love, Isabella Christi Before you have this chricholaryngeal myo thing done, have you exhausted all of your other options. It seems to me that many of us that have had -ectomies have needed further dilations due to built up scar tissue. How much experience does your surgeon have? By now you know it is so very important to go to someone who is very experienced. I'd hate to see you go through another difficult surgery if not completely necessary. I've already had 3 dilations (since Jan.) - the first 2 were with my surgeon and he also scraped the scar tissue down - made an immediate difference. I've just had my 3rd with a local GI doc and he injected some steroids in my remaining scar tissue to reduce it. I have my next one scheduled in about a month. When all is said and done, I should need a few more and then be done for awhile. Is your surgeon ABSOLUTELY positive that this is not the case for you? Like you, I only have an inch or so of my original E left, just enough to connect it to my new 'tube'.Good luck in whatever you decide and please keep us posted.- in NC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2008 Report Share Posted June 25, 2008 Hi Isabella No, I did not have swallowing problems with the portion of the oesophagus that was left in prior to the ectomy. Tests have been mentioned to see what the problem is and again it is something to be discussed with the surgeon when I see him next Monday. Remember me saying that I had inflamation in the bottom portion of my new oesphagus?? Well there are more developing problems there now. The fluid inside of my Jejunostomy tube has a lot of blood in it, fresh blood that is and it is leaking out of the stoma hole where the feeding tube is. Not a lot of blood but enough to worry me a bit and the area in my oesophagus is now rather painfull. I will mention all this next Monday whaen I see the surgeon. Christi Before you have this chricholaryngeal myo thing done, have you exhausted all of your other options. It seems to me that many of us that have had -ectomies have needed further dilations due to built up scar tissue. How much experience does your surgeon have? By now you know it is so very important to go to someone who is very experienced. I'd hate to see you go through another difficult surgery if not completely necessary. I've already had 3 dilations (since Jan.) - the first 2 were with my surgeon and he also scraped the scar tissue down - made an immediate difference. I've just had my 3rd with a local GI doc and he injected some steroids in my remaining scar tissue to reduce it. I have my next one scheduled in about a month. When all is said and done, I should need a few more and then be done for awhile. Is your surgeon ABSOLUTELY positive that this is not the case for you? Like you, I only have an inch or so of my original E left, just enough to connect it to my new 'tube'. Good luck in whatever you decide and please keep us posted. - in NC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2008 Report Share Posted June 25, 2008 Hi , Do you have separate Jejunostomy problems now too? Do I read your post wrong, do you think your Jejunostomy problems have something to do with the problems in your " new " esophagus? How can that be, as the -stomy is in your instestines? Nevertheless I had a time where there came blood out of the -stomy as well and this seemed to be an infection, once treated with antibiotics the problem was solved within a couple of days. Not good to wait until Monday with this one!!! The infection could get real bad and that's something you don't want to happen. Now that you mention not having had the swallowing problems at the spot where you have them now, makes me wonder even more, whether it's a muscle problem and you need that type of myotomy you mentioned. I personally think it's got something to do with the adhesion of the stomach and the esophagus. Please be carefull and don't rush into things, you've got me worried over you! The inflammation problems you mention sound pretty serious. Aren't you on PPI's (I am not by the way, but I know many -ectomy patients are)? Sorry for these questions and sorry if I am too direct towards you, that's not my intention, but I get confused from what you write and I am worried for wrong decisions being made by doc't that might not be experienced or well intentioned enough. Anyway, good luck coming Monday and please please be carefull! Love, Isabella Christi Before you have this chricholaryngeal myo thing done, have you exhausted all of your other options. It seems to me that many of us that have had -ectomies have needed further dilations due to built up scar tissue. How much experience does your surgeon have? By now you know it is so very important to go to someone who is very experienced. I'd hate to see you go through another difficult surgery if not completely necessary. I've already had 3 dilations (since Jan.) - the first 2 were with my surgeon and he also scraped the scar tissue down - made an immediate difference. I've just had my 3rd with a local GI doc and he injected some steroids in my remaining scar tissue to reduce it. I have my next one scheduled in about a month. When all is said and done, I should need a few more and then be done for awhile. Is your surgeon ABSOLUTELY positive that this is not the case for you? Like you, I only have an inch or so of my original E left, just enough to connect it to my new 'tube'. Good luck in whatever you decide and please keep us posted. - in NC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2008 Report Share Posted June 26, 2008 Hi Isabella Yes I do take PPI's in the morning and again at night but the effectivines has been reduced due to the amount of bile being produced by the Gall bladder and the slackness of the bottom of my new oesophagus is allowing this bile to back up and cause the inflamation which is causing me enormous problems now. To demonstrate this I woke up this morning and the dressings around my stoma/Jejunostomy site was literlly soaked with yellow bile and had made a mess of the top sheet in the bed (this happens quite a lot). You know I have read somewhere that when bile gets into the stomach the acid produced there neutralises the bile and if someone takes PPI's long term they can interfere with the bile that backs up into the stomach causing ultimetaly more damage and upset the balance in the stomach. This could explain that particularly at night I have bile coming up my throat into my mouth and causing me to cough frequently at night and sometimes during the day. Had a little blood in the feeding tube again this morning and was also in with the bile on my dressings. Still not able to swallow solids and only a little water or luke warm tea. I will keep in touch with you and please don't worry about me but thank you anyway. Christi Before you have this chricholaryngeal myo thing done, have you exhausted all of your other options. It seems to me that many of us that have had -ectomies have needed further dilations due to built up scar tissue. How much experience does your surgeon have? By now you know it is so very important to go to someone who is very experienced. I'd hate to see you go through another difficult surgery if not completely necessary. I've already had 3 dilations (since Jan.) - the first 2 were with my surgeon and he also scraped the scar tissue down - made an immediate difference. I've just had my 3rd with a local GI doc and he injected some steroids in my remaining scar tissue to reduce it. I have my next one scheduled in about a month. When all is said and done, I should need a few more and then be done for awhile. Is your surgeon ABSOLUTELY positive that this is not the case for you? Like you, I only have an inch or so of my original E left, just enough to connect it to my new 'tube'. Good luck in whatever you decide and please keep us posted. - in NC Quote Link to comment Share on other sites More sharing options...
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