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To Notan( the Oracle) and other interested parties

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Dear anyone who is interested,

We all know how we sometimes wonder about the cause of our disease, which the experts describe as "idiopathic". The latest diagnosis of Crohn's in my nephew (who is the son of my sister) has put me back onto the track of thinking about the genetic aspect. Crohn's, like achalasia, is thought to be an auto-immune disease. If my mum and dad passed on a rogue gene to me and my sister, their only children, which resulted in my achalasia and her passing the gene to her son, it would make sense that our achalasia is genetic.

I would be interested in your comments.

Best Wishes from Ann in England. XX

Sent from .

A Smarter Email.

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Congratulations, Ann!

Wonderful to hear about your anniversary!

I was taking it easy tonight, having a SALAD !!! and some crab meat, drinking

some nice Arrowhead bubbly water and watching ONLY WHEN I LAUGH, which

makes me really laugh about medicine and hospitals and life....!

I'm glad you are mended and having a happy life!

And I'm always glad to hear from you and Notan and and all the

other generous commentators here!

Deborah

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Hey, Ann,

That idea of Achalasia being an auto-immune disease interests me

hugely. If you, or anyone else, sees an article about this, I'd love to hear about it.

Thanks!

Deborah

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Is that really possible?

If achalasia is a sort of a nerve disorder then this would equate it to someone

getting over paralysis.

Sent on my BlackBerry® from Vodafone Essar

Re:To Notan( the Oracle) and other interested parties

Hey, Ann,

 

        That idea of Achalasia being an auto-immune disease interests me

hugely.  If you, or anyone else, sees an article about this, I'd love to hear

about it.

 

Thanks!

 

        Deborah

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No, that's not true Arun (is that your name?)

The nerves do not recover, and we are stuck with the lack of muscle action too, so there is no miracle recovery, just a skilled intervention.

I am glad that you asked the question though.

Best Wishes from Ann

From: arun23_in@... <arun23_in@...>Subject: Re: Re:To Notan( the Oracle) and other interested partiesachalasia Date: Sunday, 8 June, 2008, 9:58 AMIs that really possible?

If achalasia is a sort of a nerve disorder then this would equate it to someone

getting over paralysis. Sent on my BlackBerry® from Vodafone Essar

Re:To Notan( the Oracle) and other interested parties

Hey, Ann, That idea of Achalasia being an auto-immune disease interests me

hugely. If you, or anyone else, sees an article about this, I'd love to

hear about it. Thanks! Deborah ------------------------------------

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Dear Astrid,

I don't know whether you have got to Notan's reply yet but if you haven't it is well worth reading. He has convinced me that it takes a peculiar combination of events to create achalasia and that we are unlucky to have this. I still don't really know how much truth there is in the significance of relatives having strange diseases too, but if the experts are still calling achalasia "idiopathic", then we underlings can't expect to know the answers - so my conclusion is just to get on with it.

I hope you are ok Astrid,

Lots of English love coming your way from Ann XXXX

From: Astrid Bonemeijer <astrid_bonemeijer@...>Subject: Re: To Notan( the Oracle) and other interested partiesachalasia Date: Thursday, 12 June, 2008, 10:40 PM

Hi Ann,

Here is a belated Happy Anniversary from Holland. Glad to see you are doing so well!

Just trying to catch up a bit on all the new messages. Still 247 to go. Your message made me wonder. My mother has polyneuropathy and my father has sleep apnoea. Looks like we all have problems with our nerves, showing in different areas though. Love, Astrid

To Notan( the Oracle) and other interested parties

Dear anyone who is interested,

We all know how we sometimes wonder about the cause of our disease, which the experts describe as "idiopathic" . The latest diagnosis of Crohn's in my nephew (who is the son of my sister) has put me back onto the track of thinking about the genetic aspect. Crohn's, like achalasia, is thought to be an auto-immune disease. If my mum and dad passed on a rogue gene to me and my sister, their only children, which resulted in my achalasia and her passing the gene to her son, it would make sense that our achalasia is genetic.

I would be interested in your comments.

Best Wishes from Ann in England. XX

Sent from . A Smarter Email.

Sent from .

A Smarter Email.

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