Update late appointment

[Guest guest]

Hi

Remember me saying that I have problems with bile leaking out of my stoma and

waiting to see endoscopist about this? Well I've been told on the phone and I

have received a letter this morning telling me that there is a 10 - 12 week

waiting list for me to see this endoscopist/gastroenterologist. On the phone I

was told that since this is unaceptable to the General Surgeon who referred me I

shall have the first cancellation of any appointment that comes along. We'll

see. My General Practicioner is back from leave next week and I have made an

appointment to see him for a chat as things are getting to the stage where I

cannot change the dressings around the feeding tube on the stoma without bile

running down my tummy from the stoma. I also have problems with webbing in my

little bit of oesophagus in my throat, I know this as this has been seen during

the last endoscopy. I am annoyed and am going for a walk to calm down as getting

myself worked up isn't going

to help is it?

[Guest guest]

,

Oh I do hope that you get a cancelation soon!!! Good luck, I know how awful

it is to wait for appointments!!

From: achalasia [mailto:achalasia ] On Behalf

Of Hulmes

Sent: Wednesday, July 16, 2008 6:02 AM

achalasia

Cc: Isabella Arnold

Subject: Update late appointment

Hi

Remember me saying that I have problems with bile leaking out of my stoma

and waiting to see endoscopist about this? Well I've been told on the phone

and I have received a letter this morning telling me that there is a 10 - 12

week waiting list for me to see this endoscopist/gastroenterologist. On the

phone I was told that since this is unaceptable to the General Surgeon who

referred me I shall have the first cancellation of any appointment that

comes along. We'll see. My General Practicioner is back from leave next week

and I have made an appointment to see him for a chat as things are getting

to the stage where I cannot change the dressings around the feeding tube on

the stoma without bile running down my tummy from the stoma. I also have

problems with webbing in my little bit of oesophagus in my throat, I know

this as this has been seen during the last endoscopy. I am annoyed and am

going for a walk to calm down as getting myself worked up isn't going

to help is it?

[Guest guest]

Hi ,

Sorry for not responding to your post sooner, but I've got many things to take

care of myself right now. The kids have their summer holidays and thus are

around the house a lot, which prevents me from taking my rest. Furthermore I am

over at my GP's almost daily now because of extra B12 injections I need as my

anaemia has gotten worse and so have the tiredness and heachache that come along

with it. My GP has also put me on iron meds and folic acid, this as to try to

get me in shape before we leave for Italy (just one more week, I cannot wait!).

Furthermore at the moment I am hardly able to eat again, but hey, Wednesday is

dilatation day again, so I don't worry.

Thank God for that J-tube, I just wouldn't want to miss that thing for anything

in the world right now. Plans were to get the thing removed September 3rd, but I

don't think I will. The tube doesn't give me any troubles anymore, things have

settled down for it and it just helps me in my hardest days, it keeps me going

and is being a very dear friend to me -LOL-.

Now back to your case, , why don't you just go over to the ER??? If

over here things were the way they are with you now, , one would

immediately be sent over to the ER to get things sorted. If the doctor that

needs to see you isn't in at the moment, they put out the " beep " for him and he

needs to come within a few hours. It's just not right to wait so much longer,

things are worsening. Now you are waiting for someone to cancel his appointment,

but what if nobody does? How much worse will you let things become? I don't see

why you need to be so patient. It's your life, take it in your own hands,

please!

Love,

Isabella

Update late appointment

Hi

Remember me saying that I have problems with bile leaking out of my stoma and

waiting to see endoscopist about this? Well I've been told on the phone and I

have received a letter this morning telling me that there is a 10 - 12 week

waiting list for me to see this endoscopist/ gastroenterologi st. On the phone I

was told that since this is unaceptable to the General Surgeon who referred me I

shall have the first cancellation of any appointment that comes along. We'll

see. My General Practicioner is back from leave next week and I have made an

appointment to see him for a chat as things are getting to the stage where I

cannot change the dressings around the feeding tube on the stoma without bile

running down my tummy from the stoma. I also have problems with webbing in my

little bit of oesophagus in my throat, I know this as this has been seen during

the last endoscopy. I am annoyed and am going for a walk to calm down as getting

myself worked up isn't

going

to help is it?

[Guest guest]

Hi

Thanks Isabella for your encouragement. Have been to the A & E but they had to

turn me away as there were no free beds available to admit me. The docs

apologise but I will be monitored until I can get an appointment and to get

admitted to the hospital I must be at deaths door! I will get it sorted out one

way or another. Enjoy your hols with the family. Thank goodness for the J Tube

eh.

Update late appointment

Hi

Remember me saying that I have problems with bile leaking out of my stoma and

waiting to see endoscopist about this? Well I've been told on the phone and I

have received a letter this morning telling me that there is a 10 - 12 week

waiting list for me to see this endoscopist/ gastroenterologi st. On the phone I

was told that since this is unaceptable to the General Surgeon who referred me I

shall have the first cancellation of any appointment that comes along. We'll

see. My General Practicioner is back from leave next week and I have made an

appointment to see him for a chat as things are getting to the stage where I

cannot change the dressings around the feeding tube on the stoma without bile

running down my tummy from the stoma. I also have problems with webbing in my

little bit of oesophagus in my throat, I know this as this has been seen during

the last endoscopy. I am annoyed and am going for a walk to calm down as getting

myself worked up isn't

going

to help is it?