- steroids for scar tissue

June 30, 2008

Hi ,

You mention you had steroids injected during your last dilatation. I never heard

of that before. Have they explained to you how it's supposed to function? Do you

notice a difference already, or when are you supposed to notice difference?

Might it be helpfull in cases like mine, where one needs weekly dilatations or

one is back to relying on the tube again? My dilatations work for about 6 to 7

days for 100% to then fall back again, so within about 9 days I cannot swallow

anymore. This problem will disappear within the year, but if steroids can speed

things up... Yet, maybe I need to wait for the scar tissue to get less severe

before steroids can help me?

Anyway, I certainly will discuss this with the gastro-enterologist coming

Wednesday before having my dilatation.

Love,

Isabella

Christi

Before you have this chricholaryngeal myo thing done, have you

exhausted all of your other options. It seems to me that many of us

that have had -ectomies have needed further dilations due to built up

scar tissue. How much experience does your surgeon have? By now you

know it is so very important to go to someone who is very experienced.

I'd hate to see you go through another difficult surgery if not

completely necessary. I've already had 3 dilations (since Jan.) - the

first 2 were with my surgeon and he also scraped the scar tissue down -

made an immediate difference. I've just had my 3rd with a local GI doc

and he injected some steroids in my remaining scar tissue to reduce it.

I have my next one scheduled in about a month. When all is said and

done, I should need a few more and then be done for awhile. Is your

surgeon ABSOLUTELY positive that this is not the case for you? Like

you, I only have an inch or so of my original E left, just enough to

connect it to my new 'tube'.

Good luck in whatever you decide and please keep us posted.

- in NC

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