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OH angela!!!

Honey I'm so sorry you are dealing with these butt head doctors!!! Have you

talked to Dr. Rice's office about this? They may have patient advocates

there at CCF that could help you!! TONIA!!!!!!!!!!!!!!!!!!!!!!!!

I know she had one!!! I'm sure she will chime in here!!!!! First you need to

calm down, I know that it isn't easy dealing with all of this!! But you

don't want to upset Dakota either!!! Little ones seeing their parents upset

makes them upset, which doesn't help the situation!!! We are all here for

you.. I'm SURE some one will help you!!!

Hang in there Honey it will be ok!!!! If you need someone to talk to I'm

always home.well almost always!!! You can call if you just need to vent!!

479-986-8838!!

From: achalasia [mailto:achalasia ] On Behalf

Of kotacj

Sent: Thursday, November 20, 2008 3:32 PM

achalasia

Subject: hmo nightmare

dakota's gi doc is refusing to write us a letter of medical necessity

which will help us in our quest to have dr rice operate. dr barrette

barnes of vua want us to let dr bradely rodgers operate on dakota. he

says because he works with dr rodgers he is obligated to refer to my

son to dr rodgers because he, dr barnes, " depends on his relationship "

with the doctors at uva. since when does a doctor not consider what the

patient wants. i am cring so hard right now i can't even see how type.

please please help me. should i get a lawyer? i only wants dr rice, i

don't doubt dr rodgers is a good surgeon but he has only done 7 of

these procedures and one of the seven had to go back. he has not kept

tract of his previous patients and refuses to give us any phones

numbers or information regarding his patient outcomes. when asked about

the fact dakota has eosinophilic esophagitis and the impact it could

have on surgery he, dr rodgers said " he didn't know. " when ask how

dakota gastropresis will impact the surgery he said " i don't " know.

what the hell... please if anyone can advise me, please...angela

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wrote:

> dakota's gi doc is refusing to write us a letter of medical necessity ...

For me it was my primary doctor that did the letter not the GI. I called

his office and told them I was ready to see a surgeon and that I had

found one at Mayo and could they set it up. They did.

notan

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Here are a few articles that mention the learning curve in Heller

myotomies. The first three might be useful to print out, highlight the

relevant portions and show to the GI and/or HMO, especially the first

article below. (The last would not. I was surprised to read its

conclusion.)

http://www.ncbi.nlm.nih.gov/pubmed/12002295

" After approximately 20 videoscopic Heller myotomies, surgeons can

expect fewer conversions to open procedures, shorter hospital stays, and

better symptomatic relief. "

http://ats.ctsnetjournals.org/cgi/reprint/80/4/1191.pdf

" As experience is gained, the incidence of intraoperative complications

has decreased significantly (p = 0.0075). "

www.ncbi.nlm.nih.gov/pubmed/10921184

" The higher incidence of mucosal tears during the first 30 operations

suggests the effect of the learning curve. "

An opposing view:

http://www.ncbi.nlm.nih.gov/pubmed/18488266

(The first 10-20 laparoscopic myotomies had a longer operating time and

were more often converted to open procedures, but:) " Intraoperative

complications, overall satisfaction with the outcome, reoperation rate,

and postoperative dysphagia were *not* associated with the institutional

or the surgeon's operative experience. "

in PA

hmo nightmare

> dakota's gi doc is refusing to write us a letter of medical necessity

> which will help us in our quest to have dr rice operate. dr barrette

> barnes of vua want us to let dr bradely rodgers operate on dakota. he

> says because he works with dr rodgers he is obligated to refer to my

> son to dr rodgers because he, dr barnes, " depends on his

> relationship "

> with the doctors at uva. since when does a doctor not consider what

> the

> patient wants. i am cring so hard right now i can't even see how type.

> please please help me. should i get a lawyer? i only wants dr rice, i

> don't doubt dr rodgers is a good surgeon but he has only done 7 of

> these procedures and one of the seven had to go back. he has not kept

> tract of his previous patients and refuses to give us any phones

> numbers or information regarding his patient outcomes. when asked

> about

> the fact dakota has eosinophilic esophagitis and the impact it could

> have on surgery he, dr rodgers said " he didn't know. " when ask how

> dakota gastropresis will impact the surgery he said " i don't " know.

> what the hell... please if anyone can advise me, please...angela

>

>

> ------------------------------------

>

>

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I have a friend that used to work for Pacificare, but not one of the

people you would talk to on the phone, but she was in management in

the administration of the clients, working w/ HR departments. She

told me that threats from the clients that they were going or did go

to the state insurance commissioner got them to move up the ladder

and reach a satisfactory resolution quickly. Same with a lawyer, but

I'd suggest the insurance commissioner. She said that was about the

only way to get speed out of them, then your problem went to a

diffent group of people specializing in avoiding litigation, meaning

you get the doctors you want.

As always, (but I don't do it always) it is a good idea to keep a

journal of dates, times, names and phone numbers and what was said

when you fight your HMO. One easy way is to just send an email

confirming a phone conversation or whatever. If I'm really organized

I set up a folder in my email boxes for each client (for instance)

and move that email there. Also, if I just want to document

something, attach a file, or whatever, I send it to myself and file

it in that box when it reappears as inmail. It is a great way to

keep track w/o paper and if EVER proof is needed in court or mostly

the threat of court, there it is, all date stamped. If you can scan

tests and keep them there also. There are other programs, more

complicated, but I've found the email technique very handy, and

easier than the messy paper files. You organized ones are rolling

your eyes, as this comes naturally to you.

Be assertive, perhaps threaten, ask advice from the goof you might be

talking to on the phone how to move up the chain of command, they may

just be doing their job and secretly are on your side and will help

you. Keep asking for the next supervisors and copy quote any stupid

comments, such as the doctor saying he wants to stay friends w/ his

peers. They probably already don't respect him... that would be

grounds for malpractice I'd think if that quote appeared in court.

My same Pacificare friend said she often saw the staff crying at

lunch or at breaks if they had a rough day and had to keep turning

people down. It was so stressful that ambulances often came when

these workers snapped mentally or physically. For some HMO's there

is incredible pressure to keep you in their network and keep costs

low.

You will find a way. There may be some angels that will help you

when you least expect it.

Sandy

>

> dakota's gi doc is refusing to write us a letter of medical

necessity

> which will help us in our quest to have dr rice operate. dr

barrette

> barnes of vua want us to let dr bradely rodgers operate on dakota.

he

> says because he works with dr rodgers he is obligated to refer to

my

> son to dr rodgers because he, dr barnes, " depends on his

relationship "

> with the doctors at uva. since when does a doctor not consider what

the

> patient wants. i am cring so hard right now i can't even see how

type.

> please please help me. should i get a lawyer? i only wants dr rice,

i

> don't doubt dr rodgers is a good surgeon but he has only done 7 of

> these procedures and one of the seven had to go back. he has not

kept

> tract of his previous patients and refuses to give us any phones

> numbers or information regarding his patient outcomes. when asked

about

> the fact dakota has eosinophilic esophagitis and the impact it

could

> have on surgery he, dr rodgers said " he didn't know. " when ask how

> dakota gastropresis will impact the surgery he said " i don't " know.

> what the hell... please if anyone can advise me, please...angela

>

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Please, please get another GI doc who could write you a letter to Dr. Rice.

Maybe someone in this group could give you the name of a better and more

experienced GI doc. who has experience with Achalasia and could referre you. My

God there are some ignorant doctors who think only of themselves and their own

financial gains never mind the patient and their needs.

I went through something of this kind of nightmare myself before I was referred

by another doctor to see a surgeon. My first GI doctor couldn't care less about

my feelings as regards surgical treatment and was determined to keep me on

medication to control my Achalasia symptoms despite my going down on bended

knees to him for a referral to a surgeon. He would much rather I remained in

pain for the rest of my life. In the end I saught help through a Patient

Association here in the UK and they helped me with advice on who to see here in

the UK for help.

Good Luck to you. Please keep this group informed on how things go for you.

________________________________

From: kotacj <kotacj@...>

achalasia

Sent: Thursday, November 20, 2008 9:31:49 PM

Subject: hmo nightmare

dakota's gi doc is refusing to write us a letter of medical necessity

which will help us in our quest to have dr rice operate. dr barrette

barnes of vua want us to let dr bradely rodgers operate on dakota. he

says because he works with dr rodgers he is obligated to refer to my

son to dr rodgers because he, dr barnes, " depends on his relationship "

with the doctors at uva. since when does a doctor not consider what the

patient wants. i am cring so hard right now i can't even see how type.

please please help me. should i get a lawyer? i only wants dr rice, i

don't doubt dr rodgers is a good surgeon but he has only done 7 of

these procedures and one of the seven had to go back. he has not kept

tract of his previous patients and refuses to give us any phones

numbers or information regarding his patient outcomes. when asked about

the fact dakota has eosinophilic esophagitis and the impact it could

have on surgery he, dr rodgers said " he didn't know. " when ask how

dakota gastropresis will impact the surgery he said " i don't " know.

what the hell... please if anyone can advise me, please...angela

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