Re: - DONT GIVE UP!

[Guest guest]

Yes, never give up.

Never think they can con you into the latest surgery, which will

benefit the medical residents more than the patients.

Speak up.

refuse to be silenced.

>

> I know how much you want Dr Rice to do Dakotas surgery! But..there

> are a few other awesome specialist out there.Im not sure who your

> insurance is but maybe post and let everyone here know.Then maybe we

> can get you with one of the other specialist of whom your insurance

> covers and who is just as good as DR Rice.

> You could always talk with a attorney adn see if there is anything hat

> can be done,ya never know.

> Gosh I was so hoping that you guys would here good news for Cleveland!

> See thats why I turned down a job making almost double plus some my

> salary because of insurance issues for the fear of stuff like

> this.Money is nothing right now when it come to a good insurance.

> Lets see what we can do. Post your insurance,where you live and lets

> see what all of us can figure out.

> Dont give up and get discouraged, I know its heart breaking and very

> hard but lets kep pushing to see what we can find out!

> If I dont get back with you over the next day or two I will get with

> you afterwards.

> I WILL BE THINKING AND PRAYING FOR YOU GUYS!

> Tonia

>

[Guest guest]

tonia- oh tonia. I am so disappointed. I try to get mad but I find myself cring.

I know I need to get pissed but I hate what this is doing to my son spirit.

everytime we think something is going to happen we get let down. he's so tired

of this tube in his nose. he still cannot eat or drink anything. he's home now

for the holidays and just hanging around makes him want to try and eat. dakotas

local gi doctor has agreed to a peer to peer review of dakota's case with the

insurance doctor. tonia I want to ask you a favor. would you be willing to write

james story down and mail it to me so I can include it in a case agrument for a

specialist. I need both medical, personal, emotional.. you know the whole can of

worms to help us get through to this insurance doc. I know it's a lot to ask.

but I really need some amimo. dakota's local gi has asked me to compile any

information I can on why a specialist is the best person to do the surgery. I

really don't know where to begin to collect this info aside from the people on

this board. my home address is angela baker, 924 beryl ave. virginia beach,

virginia, 23464. I'm thinking about asking the community at large if anyone

would be willing to contribute their story. or if anyone could present medical

evidence to show why a specialist is a prefered. I know a few people didn't use

a specialist and are doing ok but dakota's gi wants to argue for a specialist.

I just really need the amimo. ok sounds like I've asked already. I have e mailed

and received a reply from the editor of our local paper. he says he can't help

with the insurance stuff but maybe interested in doing an article on achalasia.

maybe it will help draw attention. I sound desperate don't I. I'm going to take

everyones advice and not give up the fight. but I need some good corner folks if

I'm dancing in this ring. I know I have your love and support from day one and

it has been a god sent to me. merry christmas to you and your family...angela

- DONT GIVE UP!

I know how much you want Dr Rice to do Dakotas surgery! But..there

are a few other awesome specialist out there.Im not sure who your

insurance is but maybe post and let everyone here know.Then maybe we

can get you with one of the other specialist of whom your insurance

covers and who is just as good as DR Rice.

You could always talk with a attorney adn see if there is anything hat

can be done,ya never know.

Gosh I was so hoping that you guys would here good news for Cleveland!

See thats why I turned down a job making almost double plus some my

salary because of insurance issues for the fear of stuff like

this.Money is nothing right now when it come to a good insurance.

Lets see what we can do. Post your insurance,where you live and lets

see what all of us can figure out.

Dont give up and get discouraged, I know its heart breaking and very

hard but lets kep pushing to see what we can find out!

If I dont get back with you over the next day or two I will get with

you afterwards.

I WILL BE THINKING AND PRAYING FOR YOU GUYS!

Tonia

[Guest guest]

Dear ,

My heart goes out to you and Dakota. I feel for the fellow to have to see and

smell food, but not being able to eat or drink. That tube in the nose feels and

looks horrible, I know, and especially during the Christmas days... 

Christmas isn't just about food, I think we achalasians know that better than

anyone in the world, the true spirit is to feel and give love and to celebrate

life.

You are right: you mustn't give up. You're doing the right thing, trying to get

as many stories as you can. I am sure you will receive plenty. If you find the

time, search for " Rice " on this board and I bet you find several stories where

other docs messed up and Dr. Rice fixed...

Merry Christmas!

Love,

Isabella

 

________________________________

From: ANGELA BAKER <kotacj@...>

achalasia

Sent: Wednesday, December 24, 2008 2:08:36 PM

Subject: Re: - DONT GIVE UP!

tonia- oh tonia. I am so disappointed. I try to get mad but I find myself cring.

I know I need to get pissed but I hate what this is doing to my son spirit.

everytime we think something is going to happen we get let down. he's so tired

of this tube in his nose. he still cannot eat or drink anything. he's home now

for the holidays and just hanging around makes him want to try and eat. dakotas

local gi doctor has agreed to a peer to peer review of dakota's case with the

insurance doctor. tonia I want to ask you a favor. would you be willing to write

james story down and mail it to me so I can include it in a case agrument for a

specialist. I need both medical, personal, emotional.. you know the whole can of

worms to help us get through to this insurance doc. I know it's a lot to ask.

but I really need some amimo. dakota's local gi has asked me to compile any

information I can on why a specialist is the best person to do the surgery. I

really don't know

where to begin to collect this info aside from the people on this board. my

home address is angela baker, 924 beryl ave. virginia beach, virginia, 23464.

I'm thinking about asking the community at large if anyone would be willing to

contribute their story. or if anyone could present medical evidence to show why

a specialist is a prefered. I know a few people didn't use a specialist and are

doing ok but dakota's gi wants to argue for a specialist. I just really need the

amimo. ok sounds like I've asked already. I have e mailed and received a reply

from the editor of our local paper. he says he can't help with the insurance

stuff but maybe interested in doing an article on achalasia. maybe it will help

draw attention. I sound desperate don't I. I'm going to take everyones advice

and not give up the fight. but I need some good corner folks if I'm dancing in

this ring. I know I have your love and support from day one and it has been a

god sent to me. merry

christmas to you and your family...angela

- DONT GIVE UP!

I know how much you want Dr Rice to do Dakotas surgery! But..there

are a few other awesome specialist out there.Im not sure who your

insurance is but maybe post and let everyone here know.Then maybe we

can get you with one of the other specialist of whom your insurance

covers and who is just as good as DR Rice.

You could always talk with a attorney adn see if there is anything hat

can be done,ya never know.

Gosh I was so hoping that you guys would here good news for Cleveland!

See thats why I turned down a job making almost double plus some my

salary because of insurance issues for the fear of stuff like

this.Money is nothing right now when it come to a good insurance.

Lets see what we can do. Post your insurance,where you live and lets

see what all of us can figure out.

Dont give up and get discouraged, I know its heart breaking and very

hard but lets kep pushing to see what we can find out!

If I dont get back with you over the next day or two I will get with

you afterwards.

I WILL BE THINKING AND PRAYING FOR YOU GUYS!

Tonia

[Guest guest]

isabella- merry christmas isabella. how are you doing?...angela

[Guest guest]

Hi ,

Regarding the circumstances, I am doing fine. The tube infection has gone. The

antibiotics give me side effects, but I am on meds against those as well (I am a

walking pharmacia -LOL-). Just two more weeks and the scar tissue is going to be

cut away. I cannot wait for it to be January 7th!

As I had my dilatation one week ago, I am on eating terms now -LOL-. So I will

be enjoying some nice things to eat tomorrow. Just a few more days until things

will close up again, so I better enjoy food to the max right now, eh?

I am just very very tired. The kids have their season holidays now and take up a

lot of my time of course. That's very nice and I love having them around, but

with the lack of energy I have right now, I could do with some rest every now

and then... Romeo will be home early this evening for Christmas and he won't

have to go to work until Monday, so that will give me some rest.

Love,

Isabella

________________________________

From: ANGELA BAKER <kotacj@...>

achalasia

Sent: Wednesday, December 24, 2008 3:03:12 PM

Subject: Re: - DONT GIVE UP!

isabella- merry christmas isabella. how are you doing?...angela

[Guest guest]

isabella- I so wish we could just board us all up and take us all to cleveland.

I know my expectations are high but my spirit tells me this is where we need to

be. are you able to take additional vitamin supplements? I am so pleased you

will be able to enjoy a meal with the ones you love. who is romeo? ...angela

[Guest guest]

,

We live in land and my husband was able to see Dr. Rice and have

his " re-do " myotomy on 12/11/08. We SO wish we would've seen Dr.

Rice the first go-round. Instead, we went to Temple----Cleveland

Clinic by FAR outshines Temple, and I can't say enough about Dr.

Rice! My husband has Blue Cross Blue Shield - the one where you can

go anywhere as long as they're on 'the list'.....We're both fed

employees and open season is this time of year....maybe you have some

sort of open season as well and can change insurance companies??

Knowing what I know now, I wouldn't settle for anyone but Dr.

Rice... My husband's doing well and can actually sleep on his side

now - instead of all propped up. Dr. Rice told him he could have a

normal Christmas Dinner, but we're still on soft foods for now...and

everything is going down beautifully.....we won't know for certain

where we stand until we go back in 2 mos. for follow-up tests, but

for now, things are SO much better......we're very pleased with the

outcome so far. Best of luck to you.

>

> Dear ,

>

> My heart goes out to you and Dakota. I feel for the fellow to have

to see and smell food, but not being able to eat or drink. That tube

in the nose feels and looks horrible, I know, and especially during

the Christmas days... 

>

> Christmas isn't just about food, I think we achalasians know that

better than anyone in the world, the true spirit is to feel and give

love and to celebrate life.

>

> You are right: you mustn't give up. You're doing the right thing,

trying to get as many stories as you can. I am sure you will receive

plenty. If you find the time, search for " Rice " on this board and I

bet you find several stories where other docs messed up and Dr. Rice

fixed...

>

> Merry Christmas!

>

> Love,

> Isabella

>  

>

>

>

> ________________________________

> From: ANGELA BAKER <kotacj@...>

> achalasia

> Sent: Wednesday, December 24, 2008 2:08:36 PM

> Subject: Re: - DONT GIVE UP!

>

>

> tonia- oh tonia. I am so disappointed. I try to get mad but I find

myself cring. I know I need to get pissed but I hate what this is

doing to my son spirit. everytime we think something is going to

happen we get let down. he's so tired of this tube in his nose. he

still cannot eat or drink anything. he's home now for the holidays

and just hanging around makes him want to try and eat. dakotas local

gi doctor has agreed to a peer to peer review of dakota's case with

the insurance doctor. tonia I want to ask you a favor. would you be

willing to write james story down and mail it to me so I can include

it in a case agrument for a specialist. I need both medical,

personal, emotional.. you know the whole can of worms to help us get

through to this insurance doc. I know it's a lot to ask. but I really

need some amimo. dakota's local gi has asked me to compile any

information I can on why a specialist is the best person to do the

surgery. I really don't know

> where to begin to collect this info aside from the people on this

board. my home address is angela baker, 924 beryl ave. virginia

beach, virginia, 23464. I'm thinking about asking the community at

large if anyone would be willing to contribute their story. or if

anyone could present medical evidence to show why a specialist is a

prefered. I know a few people didn't use a specialist and are doing

ok but dakota's gi wants to argue for a specialist. I just really

need the amimo. ok sounds like I've asked already. I have e mailed

and received a reply from the editor of our local paper. he says he

can't help with the insurance stuff but maybe interested in doing an

article on achalasia. maybe it will help draw attention. I sound

desperate don't I. I'm going to take everyones advice and not give up

the fight. but I need some good corner folks if I'm dancing in this

ring. I know I have your love and support from day one and it has

been a god sent to me. merry

> christmas to you and your family...angela

>

> - DONT GIVE UP!

>

> I know how much you want Dr Rice to do Dakotas surgery! But..there

> are a few other awesome specialist out there.Im not sure who your

> insurance is but maybe post and let everyone here know.Then maybe

we

> can get you with one of the other specialist of whom your insurance

> covers and who is just as good as DR Rice.

> You could always talk with a attorney adn see if there is anything

hat

> can be done,ya never know.

> Gosh I was so hoping that you guys would here good news for

Cleveland!

> See thats why I turned down a job making almost double plus some my

> salary because of insurance issues for the fear of stuff like

> this.Money is nothing right now when it come to a good insurance.

> Lets see what we can do. Post your insurance,where you live and

lets

> see what all of us can figure out.

> Dont give up and get discouraged, I know its heart breaking and

very

> hard but lets kep pushing to see what we can find out!

> If I dont get back with you over the next day or two I will get

with

> you afterwards.

> I WILL BE THINKING AND PRAYING FOR YOU GUYS!

> Tonia

>

>

[Guest guest]

-Yes i will do whatever you need.Keep in mind the other

patient of DR Rices whom her first Dr screwed her up as well and she

ended up going through open myotomy and ICU for almost 2 weeks as

well afetr Dr Rice had to refix her.She was also 12 at the time.Her

mom I bet would send you a letter also.I will check.I will get on

this during the weekend ok.

My heart breaks fo rDakota.I cant begin what he and you are going

thrOUGH.With he went through alot but was in diffrent spurts

not daily with not eating food at all and tubes and let downs ugh

gosh poor guy!!! I hope something happens soon-you all can only

handle so much.Please know I will help anyway I can.

Ya know maybe even call Clevland and tell them of your story,maybe

they can help.THEY DID help from here when she needed surgery

and had no insurance. Maybe they could do the same or a payment plan.

They did set me up on a payment plan fro $2500 which was what my

insurance didnt cover.They even let me choose the amount to pay

monthly and did no interest charges or nothing! Call them it would

be worth a try.

I hope you all had as Merry CHRISTMAS AS YOU COULD! Lets hope and

pray the new year brings new changes and surgery!!!!!!

Much love-Tonia

>

> tonia- oh tonia. I am so disappointed. I try to get mad but I find

myself cring. I know I need to get pissed but I hate what this is

doing to my son spirit. everytime we think something is going to

happen we get let down. he's so tired of this tube in his nose. he

still cannot eat or drink anything. he's home now for the holidays

and just hanging around makes him want to try and eat. dakotas local

gi doctor has agreed to a peer to peer review of dakota's case with

the insurance doctor. tonia I want to ask you a favor. would you be

willing to write james story down and mail it to me so I can include

it in a case agrument for a specialist. I need both medical,

personal, emotional.. you know the whole can of worms to help us get

through to this insurance doc. I know it's a lot to ask. but I

really need some amimo. dakota's local gi has asked me to compile

any information I can on why a specialist is the best person to do

the surgery. I really don't know where to begin to collect this info

aside from the people on this board. my home address is angela

baker, 924 beryl ave. virginia beach, virginia, 23464. I'm thinking

about asking the community at large if anyone would be willing to

contribute their story. or if anyone could present medical evidence

to show why a specialist is a prefered. I know a few people didn't

use a specialist and are doing ok but dakota's gi wants to argue

for a specialist. I just really need the amimo. ok sounds like I've

asked already. I have e mailed and received a reply from the editor

of our local paper. he says he can't help with the insurance stuff

but maybe interested in doing an article on achalasia. maybe it will

help draw attention. I sound desperate don't I. I'm going to take

everyones advice and not give up the fight. but I need some good

corner folks if I'm dancing in this ring. I know I have your love

and support from day one and it has been a god sent to me. merry

christmas to you and your family...angela

>

> - DONT GIVE UP!

>

>

> I know how much you want Dr Rice to do Dakotas surgery!

But..there

> are a few other awesome specialist out there.Im not sure who

your

> insurance is but maybe post and let everyone here know.Then

maybe we

> can get you with one of the other specialist of whom your

insurance

> covers and who is just as good as DR Rice.

> You could always talk with a attorney adn see if there is

anything hat

> can be done,ya never know.

> Gosh I was so hoping that you guys would here good news for

Cleveland!

> See thats why I turned down a job making almost double plus some

my

> salary because of insurance issues for the fear of stuff like

> this.Money is nothing right now when it come to a good insurance.

> Lets see what we can do. Post your insurance,where you live and

lets

> see what all of us can figure out.

> Dont give up and get discouraged, I know its heart breaking and

very

> hard but lets kep pushing to see what we can find out!

> If I dont get back with you over the next day or two I will get

with

> you afterwards.

> I WILL BE THINKING AND PRAYING FOR YOU GUYS!

> Tonia

>

>

>

>

>

>