Re: Is your Dr.. right for you?

[Guest guest]

Steve said " just some friendly words of wisdom from someone in the 5%

group who will not be some guinea pig for medieval medical

mismanagement. "

Not sure what Steve means regarding the 5% group.

Yes I am in the 2% group that has not had an operation, I have been

holding off for a year. It is hard as hell but with the routines I

have found I believe I can make it. My GI wanted to send me to

surgery last March but I had found the Coke routine earlier.

I want to thank notan for his research, I believe with supplements

you can hold off on an operation.Once the LES is cut or destroyed

probally nothing will help. I had a nuclear stress test recently and

the heart was normal so I could have an operation, BUT not at this

time.

I would like to hear how many are in the 2% group, maybe we can

experiment with methods or supplements and trade ideas.

Rayme CA OC 78

>

> The following is helpful advice for those experiencing the initial

> stages of achalasia:

>

> All of us suffering from achalasia will inevitably have contact with

> many medical personnel--some offering good care, some acting

> indifferent, and others seemingly interested in you as a research

subject.

>

> Generally because achalasia is a little understood phenomenon-- even

> within the medical community-- there can be major misunderstandings

> about symptoms (e.g., it takes an inordinate amount of time for

> doctors to differentiate non-cardiac chest pain from high-pressure

LES

> gastroesophageal juncture pain).

>

> Often in this time period, symptoms become worse, and the probable

> outcomes for surgical success become correspondingly more uncertain.

>

> With the normal course of events, usually achalasia patients are

> pushed into surgical techniques or other invasive approaches when

> there may be simpler treatment methods.

>

> Starting out, if there were doctors who truly LISTENED to our

> heartfelt concerns, instead of dismissing them as frivolous ( " just

> chew your food more thoroughly " ), achalasia could be treated more

> aggressively.

>

> Therefore, it is imperative that all you people who have early signs

> of achalasia to form a good doctor-patient relationship with a GI.

Do

> not be hesitant to voice your most bothersome conditions. Ask lots

of

> questions. KNOW what you are asking. And if you feel as if you are

> being treated with the same level of respect that an anatomy cadaver

> receives, find another doctor.

>

> --just some friendly words of wisdom from someone in the 5% group

who

> will not be some guinea pig for medieval medical mismanagement.

>