Re: age 8 :a girl's 4 month update

[Guest guest]

This is wonderful...I am so happy Emiloy has gained weight.

I hope you and can make it to the meet-up in Richmond.

InVa

>

> Hey everyone,

> I've been off the site awhile.

> This will be 's 1st Thanksgiving dinner after her Heller procedure.

> I think she is ready to make up for missing last year.

> She is up to 73 pounds. ( a whole 14 pounds from Aug 2007)

> Hurray!!!!!!!!

>

> As far as food goes:

> Hotdogs and Ketchup are not tollerated.

> I find I need to limit to small portions:

> sausage

> red spagetti sauce

>

> Portions have bulked up, we are now:

> breakfast

> snack

> lunch ( normal portion)

> snack

> snack at times

> Dinner (normal portion)

> desert at times

>

> I'm thinking of doing away with extra snacks in school, but I figure

> I'd rather have the snacks availible and not be eaten , than the other

> way around.

>

> I think when newly diagnosed or parents of newly diagnosed we all go

> through a process.

> similar to the steps in a grieving process.

>

> I too felt tempted to " have science catch up to cure Achalasia " .

> I still am hopeful, but try to mix hopeful with reality. ( Choose the

> best treament for us , go for it and hope something better comes along.)

>

> After the surgery I noticed that my daughter had smiled.

> It was not until that point that I realized for the past 11 months ,

> had not been smiling. It was a heartfilled moment for sure.

>

> I think it is hard to accept the one has Achalasia, and that there are

> limited options. I still am hopeful. I am hopeful everyone is getting

> the treatment they deserve, and I hope in 10 years the Scientific

> commmunity will get its act together and help out all the people

> suffering with " A " .

>

> I am thankful my daughter is not fainting, or feeling sick everyday and

> everynight. I am thankful we can now leave the house, because before

> she was always feeling carsick. i am thankful that i do not have to

> keep my ears " perked up " at night to be able to " run to her rescue " if

> she aspirates. I am thankful for everyday I have with my child,

> especially when she is NOT suffering. And I am especially thankful for

> ALL the wisdom, compasion, and friendships from the people on this

> group.

>

> I wish everyone a great Thanksgiving and Christmas and New Year!!!!

> Again, I am always hopeful things can be better!!!!

>

> Hey will someone win the lottery already and get the research and

> Achalsia non-profit group started we've been dreaming about. HA HA

> again - hopeful

>

> Dana Mills in VA

>