Guest guest Posted November 20, 2008 Report Share Posted November 20, 2008 Hey everyone, I've been off the site awhile. This will be 's 1st Thanksgiving dinner after her Heller procedure. I think she is ready to make up for missing last year. She is up to 73 pounds. ( a whole 14 pounds from Aug 2007) Hurray!!!!!!!! As far as food goes: Hotdogs and Ketchup are not tollerated. I find I need to limit to small portions: sausage red spagetti sauce Portions have bulked up, we are now: breakfast snack lunch ( normal portion) snack snack at times Dinner (normal portion) desert at times I'm thinking of doing away with extra snacks in school, but I figure I'd rather have the snacks availible and not be eaten , than the other way around. I think when newly diagnosed or parents of newly diagnosed we all go through a process. similar to the steps in a grieving process. I too felt tempted to " have science catch up to cure Achalasia " . I still am hopeful, but try to mix hopeful with reality. ( Choose the best treament for us , go for it and hope something better comes along.) After the surgery I noticed that my daughter had smiled. It was not until that point that I realized for the past 11 months , had not been smiling. It was a heartfilled moment for sure. I think it is hard to accept the one has Achalasia, and that there are limited options. I still am hopeful. I am hopeful everyone is getting the treatment they deserve, and I hope in 10 years the Scientific commmunity will get its act together and help out all the people suffering with " A " . I am thankful my daughter is not fainting, or feeling sick everyday and everynight. I am thankful we can now leave the house, because before she was always feeling carsick. i am thankful that i do not have to keep my ears " perked up " at night to be able to " run to her rescue " if she aspirates. I am thankful for everyday I have with my child, especially when she is NOT suffering. And I am especially thankful for ALL the wisdom, compasion, and friendships from the people on this group. I wish everyone a great Thanksgiving and Christmas and New Year!!!! Again, I am always hopeful things can be better!!!! Hey will someone win the lottery already and get the research and Achalsia non-profit group started we've been dreaming about. HA HA again - hopeful Dana Mills in VA Quote Link to comment Share on other sites More sharing options...
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