Guest guest Posted October 13, 2008 Report Share Posted October 13, 2008 thanks for the recommendations > From: ayondatta <ayondatta@...> > Subject: Re: Jay Pasricha patent 6808702 > achalasia > Date: Sunday, October 12, 2008, 8:44 PM > This is great. The first thing I would like to ask him how > far they are from clinical testing > on humans and how will it help people who already got a HM. > Let me know how can I > help. > -Ayondeep > > > > > I emailed Dr Pasricha, below is his reply. > > > > He wants to chat, maybe we can all come up with > questions. Help me! > > > > I believe some combination of vitamins can help. Will > start on L- > > Arginine again. I have a version from CVS called > Arginine TR Plus > > which they say lasts 12 hours, and produces nitric > oxide all day. It > > is a big pill but later in the day after a Coke I can > get it down. > > > > I also take Magnesium 500 mg,vitamin D3 2000iu as well > as Lotrel (BP) > > and Alluprinal for my gout ( as necessary). Once in a > while > > NitroQuick not necessarly for the heart. > > > > My main problem is in the regurgitation, if I could > stop it I could > > gain weight. It is definately from the stomach as I > can clean out the > > e with a Coke. I eat soups , Ensure, Cokes, pasta > Choclate ,ice cream > > and some bread. Some days I believe I have defeated > Achalasia!!!!!!!!! > > > > I am sure Dr. Pasricha will monitor this site. > > > > Ray > > > > Thanks for your email. I used to be an advisor on this > group (one of > > my former patients had started this several years > ago). Because of my > > move to Stanford, I had dropped off but would be happy > to help again > > in any way I can. > > As far as I know, in this country we are the main > group looking at > > neural stem cell replacement as a cure for achalasia > (and other > > disorders of the enteric nervous system). > > Perhaps you and I can chat and we can discuss how I > can synergize > > with your group both to help all of you but also to > push the field > > ahead. > > Regards > > Jay Pasricha > > Professor of Medicine and Surgery > > Chief Divison of Gastroenterology and Hepatology > > Stanford University School of Medicine > > > > > > > ------------------------------------------------------------------- > --- > > ---------- > > From: Ray Cherry [mailto:r_cherry_99@...] > > Sent: Sat 10/11/2008 1:14 PM > > Pasricha, Pankaj Jay > > Subject: Achalasia > > > > > > I found your patent 6808702 referenced on the > Achalasia site below. > > > > > achalasia/messages > > > > This site has 1700 members who discuss achalasia. I am > 78 years old > > and developed Achalasia 2-3 years ago. I have not had > an operation > > yet, just a bit of 16 mm balloon dilations. > > > > It is a terrible disease as I thought I had > gastroparesis first but > > the nuclear test said I was on the high side. Later > with the > > manometry test said I had achalasia. I am sure they > are both related. > > > > I have found that magnesium 500 mg and nitroglycerine > tablets really > > help me, so I have held off on an operation that would > destroy the > > LES. Have lost a lot of weight . > > > > What I want to report to the group what you can tell > us who are the > > experts in the Achalasia research field doing the stem > cell research > > on achalasia. Maybe other drugs can also help. > > Quote Link to comment Share on other sites More sharing options...
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