Treatment update

September 19, 2008

Elva, , Gail.....you are all in my prayers and that goes for everyone else too Newton in Nevada'Be kinder than necessary because everyone you meet is fighting some kind of battle.

From: gail <gaila@.... ca>Subject: RE: [HepatitisCSupportG roupForDummies] Treatment updateTo: HepatitisCSupportGr oupForDummies@ yahoogroups. comDate: Thursday, September 18, 2008, 6:08 AM

Fortunately I have a wonderful husband too and thank god during treatment.How is your white count,did they say.Try getting B12 with folic acid in 1000 mg from your pharmacist and take two under the tongue and let them disolve there and it will help improve your energy.They are kept behind the counter so you will have to ask the pharmacist for them.In Canada they are only 9.dollars for 100 pills.

Gail

[HepatitisCSupportG roupForDummies] Treatment update

Hi everyone,

I am not sure when I last wrote so thought I should send an update out. I have made it through 5 weeks!!!! I did some blood work on week 4 and things came back great. One of my liver enzymes is back into a normal range at 36 where 3 weeks prior they were 200 points higher. That says nothing about the virus just that my liver is healing some. Overall treatment has not been bad. As I am on the treatment longer I am getting more and more tired. I slept right through my first class on mon and barely made it tuesday. School and my normal housewife duties are becoming a hard task. Its hard to do things when you can hardly stay awake. LOL Things are good though, Bob is really helping with chores around the house. He has been doing most of the cooking because by evening I am too tired. I could not have asked for a better husband, we have become better friends bcause of this whole thing. I am having memory loss too. Which is a normal side effect, so please know, if I forget to return calls or things like that please all dont take it personal. Thats about all here. I hope all is well with everyone. I would love an update from you too.

Love

October 8, 2008

it is great to learn about what helps the itching. let us know how it work out and we can add one more thing that helps for itching.

gail

[Hepatitis CSupportG roupForDummies] treatment update

Hello everyone,

How are you doing today? I hope all is well with you. Please write me and tell me how things are on your end. Well, I had my 8th shot last night! 1/3 the way through!!! Things are good overall. I am tired and grumpy, but a nap mid day for a couple hours seems to help for the rest of the day. Bob hired a maid to help out every other week. This will take a lot of the stress I have from not having a clean house. Bob helps but he works so much that when he comes home and helps me with stuff he has no energy to clean either. They are just sweeping and moping and the bathrooms, the stuff that wears me out. Its strange to pay someone to clean but just to help me through treatment. My skin has become so irritable that I cant wear make-up. I had to change my face wash to organic, which has helped, it was looking like i was sun burned from other products. I can only use all natural hair products and body stuff. It helps the itching. What helps with shaving? Any suggestions? I am more itchy than before but its ok I am getting through it. Oh yeah I saw Bob looking at a spot on my head where I am losing hair. Not bad more noticeable to me than others. So thats my treatment update!

On a side note our team raised $500 towards liver diease.

December 22, 2008

, I don't post much these days, but I do try to read all the post.

Girl, you must be a Saint. You have put up with more than anyone else I've

ever known.

There is no way I'd put up with what you've had to deal with. I don't know

all the rules and regulations of health care in your country, but there has

to have some kind of controls for protecting the patience better than this.

I would never in a million years go until after Christmas for the correction

of this.

If nothing else, I'd walk through the door of another hospital requesting

emergency care. In addition you might do like another member of this board

did. Call a reporter and have them print an article about the poor care you've

gotten. I'd first get myself taken care of immediately. There is no excuse

for the treatment you've been given.

My heart is with you and I'm wishing you a lot of courage to handle this.

Hugs

Maggie

**************One site keeps you connected to all your email: AOL Mail,

Gmail, and Mail. Try it now.

(http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000025)

December 22, 2008

Hello All

I had a new J-Tube fitted last Friday afternoon. Within 2 hours it had 2

extensive bile leaks. (Gastro docs who placed the J-Tube had gone home for the

day and told nursing staff to discharge me after a short rest.) I only got out

of the bed and went to the changing room to change and the bile ran down my

front soaking the hospital gown. I mopped up what I could with clean gauze and

put clean dressings around the J-tube stoma and showed the soiled gauze to the

nurses and that was when they told me that the docs had gone home. As it was a

Saturday the next day I was told to contact the doc's team this morning (Monday)

to ask for advice and was told that the J-Tube needs adjusting and to return to

the hospital ward next Monday morning after Xmas. The point is these leaks are a

long running problem now and my family and myself want it sorted out and I made

this clear to the doc I spoke to on the phone this morning. I mean I now change

the dressings on

average 12-15 times every 24 hours whereseas before mu tube change I only

changed the dressings 6-7 times daily. I have a cup of tea and the bile soaks

the dressings, I have a snack and the bile soaks the dressings. This also

happens when I go for a little walk. Terrible isn't it. I am so angry now. I am

convinced that the bile leakage is conected to a possible liver problem as I

have bad, bad pain under my right ribs going through to my back and have to take

regular painkillers for this alone. Pff.

Gastroscopy done at the same time showed that the web of scar tissue had

contracted and that they dilated this web and so far I am able to swallow a

little with liquid but of course every time I do this the bile leaks out. I keep

asking the docs WHY?

December 23, 2008

Hi Isabella

The hospital that I went to last Friday is the only one in my region of North

West Wales and to go to another regional hospital I would have to first see the

Gastro doc. and ask for a referral to another Gastro doc at another hospital.

Anyway I contacted the Gastro Doc.'s secretary this morning as I have had enough

of this bile leak and there is now green bile as well as the yellow bile and I

am convinced that there is something to do with either the liver or stomach

causing it but as the Gastroscopy was done last Friday and none of the docs have

told me anything except that one of the nurses told me that the examination was

fine. No other word about if they checked the bile ducts or Gallbladder or

anything. Anyway the Gastro docs secretary said that the Gastro doc was out

until lunchtime and that she will phone me back as regards with my request to

see him ASAP in the New Year to discuss the bile leakage once and for all. I

have reached the limit of my patience as regards this matter now and am in

constant pain with it. God do I ramble. Sorry.

Merry Xmas to everyone on this board and many thanks for any advice and support

that I receive I do appreciate it even though I tend to ramble on these days.

________________________________

From: Isabella Arnold <arnoldisabella@...>

achalasia

Sent: Monday, December 22, 2008 3:29:24 PM

Subject: Re: Treatment update

Dear dear ,

You should NOW change hospital. This is WRONG.

Sorry, I'm at work right now so I'm not able to write more, but I think my

message is clear....

Love,

Isabella

____________ _________ _________ __

From: Hulmes <christine.hulmes>

achalasia@grou ps.com

Sent: Monday, December 22, 2008 3:03:13 PM

Subject: Treatment update