J-Tube,

[Guest guest]

Hi ,

At the time the tube was placed, they chose the intestines (with stomach

incision), since I already had several tubes in my nose. It was placed during my

esophagectomy. They planned it to stay there only for a few weeks, untill I

would be able to eat normally again. Of course the scar tissue thing wasn't part

of our plans...

So far I've been very happy with the tube being where it is right now. I would

hate the thing being in my nose for several reasons. The main reason is that I

simply hate the feeling of a tube running through my nose, than neck further

down. The times I did have nasal tubes, I always got throat infections. Simply

as my body doesn't want tubes in and fights them with infections, it wants to

work foreign bodies out, no matter where they are.

Furthermore when you have that tube in your nose you also look sick for the

world and that's something I don't want if not absolutely necessary and in my

case it isn't absolutely necessary. I go to work and when I am off the feed

nobody even notices my tube, since it's under my clothes. When I am on the feed,

they many don't even notice, since it's in my back pack, which I have standing

under my desk... Of course the collegues know, but most customers don't notice.

The antibiotics are really doing their job and the infection has gone now. When

it stays the way it does right now, I can stop the antibiotics in two weeks

time. If not I continue taking them as long as I have the tube in (but hopefully

that won't be long anymore now, with the new treatments looking just around the

corner). That's no problem. I probably would need antibiotics as well if I had

the thing through my nose.

The one thing I kept telling my husband over and over again these last few

months was: I am so happy to have the thing in my belly and not in my nose.

I really feel for your son having to walk around with that tube. I don't even

notice it at all anymore (well, if I don't have an infection that is) and

neither does anyone around me. I hope your son gets better so soon as well! No

kid in the world deserves this.

Love,

Isabella

________________________________

From: ANGELA BAKER <kotacj@...>

achalasia

Sent: Saturday, December 20, 2008 2:22:00 AM

Subject: Re: Re: Incisions in my post -ectomy scar tissue - TIM,

please read this too!!!

isabella- risk of infection is one of the main reasons docs didn't put a j tube

in my son. his is in his left nare. he tells me he no longer feels it. I wonder

if you would be open to this a a way to clear the infection as a short term

thing. I just can't see antibiodics taken by mouth as effective enough for you.

it would seem to me that you would be getting vancomycin iv if this infection is

recurrent. I know a tube in the nose really sucks and maybe your docs are

worried about a tube in your esopha