RE: Thyroid / abx > Christie

[Guest guest]

Hey Christie! Unfair! Unfair! I might have suggested a LITTLE bit of

this approach, but I am not actually completely uncritical in what I take!

Quite apart from not being able to swallow more than half a pound of pills

at a sitting...

Seriously though, I am at the moment only on abx and some fairly basic

supplements like CoQ10, Alpha lipoic acid and vitamins. But I have to say

that allergies are making my life hell, although I am no longer (touch

wood) constantly catching overt infections.

Another thought - there is a worrying post on Recovery which I quote here -

I have asked this woman for more details of her protocol and will post when

received if she is willing.

Best wishes,

n

----------message from recovery that worries me-------

>Recover from CFS! - http://www.seaquake.com/cfs-fm-recovery/discussion.html

>

>yes, been there, done that. My PCR was positive and I did

>alternating antibiotic cocktails (Dr. Stratton's protocol at

>Vanderbilt) for a year. My symptoms just got worse and worse.

>In the end, I was having problems walking, just the mechanics of

>lifting my legs was difficult. My sitting time went from a couple

>of hours to about 10 minutes at a time. I know of others who did

>the protocol; no one I know got better. --mindy

------------------------------------------------------

You wrote...

>I feel like n - take everything and hope for the best! But I will do

>things one at a time. Am holding off on intferon until all lyme tests are

>done, then will get back on that. Then perhaps deal with allergies....BUt

>I will see the lyme treatment through this time!! ABX's seem to have

>helped so many CFIDS people that I wonder if it is not infection of some

>sort, as I have said before. Ah well, we are the guina pigs, and I have

>decided that that is my purpose in life!

>

>Take care!

>

>CHristie

>

>>This list is intended for patients to share personal experiences with each

>other, not to give medical advice. If you are interested in any treatment

>discussed here, please consult your doctor.

n

Tel/Fax +61-2-6239 6226

Canberra, Australia

[Guest guest]

>From: n <jrobinso@...>

>

>Hey Christie! Unfair! Unfair! I might have suggested a LITTLE bit of

>this approach, but I am not actually completely uncritical in what I take!

>Quite apart from not being able to swallow more than half a pound of pills

>at a sitting...

Tried the half pound and cannot tolerate it either! No, I understood

what you were saying. lol!

>Seriously though, I am at the moment only on abx and some fairly basic

>supplements like CoQ10, Alpha lipoic acid and vitamins. But I have to say

>that allergies are making my life hell, although I am no longer (touch

>wood) constantly catching overt infections.

Have you considered allergy testing and shots? I keep saying I will go

back to those as they did help in the past. I stopped getting colds, but

didn't help asthma. I know what you mean about constant infections you

mentioned in previous post - I have had them for past 3 years without

letup. I FINALLY convinced a doc to run subclasses of IgG, etc. There is

NO way my immune system is " normal " as docs keep saying!! Right now,

sinuses are trying to act up, but abx are probably combatting infections

trying to get started. When you are fighting one infection/disorder, it is

so easy to become ill with another!

take care,

Christie

[Guest guest]

have you tried Doxepin it is a tricylic anti depressant but it is also a

very powerful anti histamine .. take a very small dose -- start with 2 to 5

mg -- at night. Give the liquid version in order to have better control over

your dose.

thanks

Steve

RE: Thyroid / abx > Christie

From: n <jrobinso@...>

Hey Christie! Unfair! Unfair! I might have suggested a LITTLE bit of

this approach, but I am not actually completely uncritical in what I take!

Quite apart from not being able to swallow more than half a pound of pills

at a sitting...

Seriously though, I am at the moment only on abx and some fairly basic

supplements like CoQ10, Alpha lipoic acid and vitamins. But I have to say

that allergies are making my life hell, although I am no longer (touch

wood) constantly catching overt infections.

Another thought - there is a worrying post on Recovery which I quote here -

I have asked this woman for more details of her protocol and will post when

received if she is willing.

Best wishes,

n

----------message from recovery that worries me-------

>Recover from CFS! - http://www.seaquake.com/cfs-fm-recovery/discussion.html

>

>yes, been there, done that. My PCR was positive and I did

>alternating antibiotic cocktails (Dr. Stratton's protocol at

>Vanderbilt) for a year. My symptoms just got worse and worse.

>In the end, I was having problems walking, just the mechanics of

>lifting my legs was difficult. My sitting time went from a couple

>of hours to about 10 minutes at a time. I know of others who did

>the protocol; no one I know got better. --mindy

------------------------------------------------------

You wrote...

>I feel like n - take everything and hope for the best! But I will do

>things one at a time. Am holding off on intferon until all lyme tests are

>done, then will get back on that. Then perhaps deal with allergies....BUt

>I will see the lyme treatment through this time!! ABX's seem to have

>helped so many CFIDS people that I wonder if it is not infection of some

>sort, as I have said before. Ah well, we are the guina pigs, and I have

>decided that that is my purpose in life!

>

>Take care!

>

>CHristie

>

>>This list is intended for patients to share personal experiences with each

>other, not to give medical advice. If you are interested in any treatment

>discussed here, please consult your doctor.

n

Tel/Fax +61-2-6239 6226

Canberra, Australia

This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.