Re: Re: Moving and Recovery

[Guest guest]

Hi Zazzue...... i live in Buffalo and was wondering y u felt better in

Syracuse? how are u doing mow , neighbor?

[Guest guest]

It also happened to me. I moved from LA to Syracuse, NY and improved.

It took about a year for me to get sick again. And it's been up and

down ever since.

Zazzue

http://www.CreativeAddiction.com

mailto:Zazzue@...

> >>

> One thing I have noticed is that many of the PWC's I know who have

> experienced improvement have moved for environmental reasons (i.e. moved to

> the mountains, moved to more temperate climates, etc.). I am curious if

> others know of other such stories. I have contemplated moving again and

> again because of this fact but wonder if it really does help people. Two of

> my friend with CFIDS have experienced improvements after making radical moves

> from urban environments to fairly rural ones. What do others think?

> Peggy

> > This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

[Guest guest]

Hi,

I live in an industrial area in Michigan and would love to move. But I

haven't figured out how to do that with little money and a teen! Any

experiences welcome.

CHristie

t 03:36 PM 12/14/99 EST, you wrote:

>From: Peggomatic@...

>

>

>In a message dated 12/14/99 5:29:13 AM, onelist writes:

>

><< From: " Springer " <katspring@...>

>

>Subject: Re: CFIDS Recovery?

>

>

>Hi everybody _

>

>

>I want to provide a note of hope on the " recovery " issue. I am roughly

>

>75%-80% back to my old self, and it came about 10 years into CFIDS and about

>

>4-5 yrs into FMS. Technically, I'm probably supposed to be in Cheney's third

>

>phase. Been on disability since 1995, devoting fulltime (even moving across

>

>the country) to healing.

>

> >>

>

>One thing I have noticed is that many of the PWC's I know who have

>experienced improvement have moved for environmental reasons (i.e. moved to

>the mountains, moved to more temperate climates, etc.). I am curious if

>others know of other such stories. I have contemplated moving again and

>again because of this fact but wonder if it really does help people. Two of

>my friend with CFIDS have experienced improvements after making radical

moves

>from urban environments to fairly rural ones. What do others think?

>

>Peggy

>

>>This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

>

[Guest guest]

My gut feeling is YES -- the reason may include the following:

* less toxins in the air (make sure you ar upwind from cities and

industry - we are west of seattle with only the olympic national forest and

the pacific upwind!)

* a lot less stress living in the country, slower pace (and stress reduces

blood flow)

* more likely to be outside and doing things (eventually you stop locking

your car at home..)

Some other factors to consider if moving for health:

-- low altitude is better than high (since CFS and mountain sickness

seems too similar)

-- ideally you want a 1960-1970 house or apartment ( older house can run

risks of hidden mold, newer houses use a lot of 'pressboard' construction

and 'too-air tight' construction. Preferably with wood floors -- again the

key factor is reducing airborn chemical exposure ('stress')

-- ideally a grocier that stocks organic products that is reasonably

close...

If you want more on 'preparing a new home', drop me an email ... just 4

months before my CFS, we moved to the ideal house for my wife's Multiple

Chemical Sensistivities... and I believe that it has contributed to my fast

recovery [probably the stress of moving and house hunting contributed to the

onset]

Ken

----- Original Message -----

From: <Peggomatic@...>

I have contemplated moving again and

> again because of this fact but wonder if it really does help people. >

> Peggy

[Guest guest]

I had my sudden onset of cfids less than 3 months after moving from L.A. to

Austin, Tx, a smaller city with cleaner air (10 years ago). I think the

stress of the move contributed, but maybe the vacation at Lake Tahoe had

something to do with it. Maybe I just didnt get out of L.A. soon enough.

My allergies have been very bad here in Austin, but I'm very afraid of the

stress of moving again. Its hard to know how much difference it will make to

be in a cleaner environment and whether it will be worth the effort and

expense.

Re: CFIDS Recovery?

>

>

>Hi everybody _

>

>

>I want to provide a note of hope on the " recovery " issue. I am roughly

>

>75%-80% back to my old self, and it came about 10 years into CFIDS and

about

>

>4-5 yrs into FMS. Technically, I'm probably supposed to be in Cheney's

third

>

>phase. Been on disability since 1995, devoting fulltime (even moving

across

>

>the country) to healing.

>

> >>

>

>One thing I have noticed is that many of the PWC's I know who have

>experienced improvement have moved for environmental reasons (i.e. moved to

>the mountains, moved to more temperate climates, etc.). I am curious if

>others know of other such stories. I have contemplated moving again and

>again because of this fact but wonder if it really does help people. Two

of

>my friend with CFIDS have experienced improvements after making radical

moves

>from urban environments to fairly rural ones. What do others think?

>

>Peggy

>

>>This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

>

[Guest guest]

> Two of

> my friend with CFIDS have experienced improvements after

> making radical moves

> from urban environments to fairly rural ones.

I know of one PWC who completely recovered when she moved

from Denver to Houston (both big metro areas - same job,

stress etc, got transfered). The key in this case I would

guess could be a humidity factor or oxygen factor. Denver

is the mile-high city - some people get " high altitude

sickness " in Denver - also our humidity level is often

unmeasurable. Houston is sea-level (no oxygen deprivation

and very humid).

I was much healthier when I lived in Malaysia (WAY too many

factors here, altitude, humidity, food, culture, life style,

expectations, etc.) But some of my Malaysian friends are

much healthier in Denver. Go figure.

My allergist says that many people improve when they move

because they move away from lots of things they are allergic

to, but after several years in the new place they start

becomming sensitive to things in their new surrounding then

same song, different verse.

For my brother it worked. He was allergic to darn near

everything when he was a kid. He could hardly even

touch anything. Had horrid asthma attacks all the time.

I was always scared he'd fall over dead. When we moved

to Denver all his allergies simply disappeared! Really.

Years later, after he lived in Borneo, a few allergies

came back, but very mild and easily avoided.

So Denver cured my brother but is probably not the best

place for me.

I'd say its a crap shoot.

Patti

--

[Guest guest]

Hi Christie and others -

My move was from NYC to the Monterey Peninsula in CA. Once I got

disability, I figured my ONLY priority was getting well...Looked for a place

where the mountains and the sea came together (literally on a map of the US)

because the energy there supports me - I feel best around the ions of the

ocean and the heat of the more inland areas.

Secondly, it seemed every moment in NYC was stressful to anyone

hypersensitive - what energized me in the early years there was terribly

debilitating - noise, rush, always having to cope with major or minor

crises. I found a place where there is great physical beauty and quiet

(which I had to have spiritually in order to heal - I'm near Big Sur and

Carmel Beach). It's easy to be grateful here for all I have - just watch

the sunset over the Pacific. Also doesnt cost anything.

I also moved to get away from my family of origin. Many people will

disagree with this decision. I decided to eliminate every single source of

stress. The demands of my mother and sisters (even just to go 300miles to

visit, spend time with their children, etc) were wellmeaning but they dont

understand that attempting to meet their expectations makes me crash and

have to work back up again. I couldnt afford it.

My new friends, and the guy I date, know I only do things on my own time. I

dont talk about CFIDS/FM/visual handicap, etc. I say I am a beach bum -

earnestly trying to leave my type A personality behind, and " do as little as

possible. " It's my lifestyle after retiring from NYC.

----------

>From: " C.Tab. " <tab@...>

>onelist

>Subject: Re: Re: Moving and Recovery

>Date: Tue, Dec 14, 1999, 5:17 PM

>

>From: " C.Tab. " <tab@...>

>

>Hi,

>

>I live in an industrial area in Michigan and would love to move. But I

>haven't figured out how to do that with little money and a teen! Any

>experiences welcome.

>

>CHristie

>

>

>

>

>

>

>

>

>

>t 03:36 PM 12/14/99 EST, you wrote:

>>From: Peggomatic@...

>>

>>

>>In a message dated 12/14/99 5:29:13 AM, onelist writes:

>>

>><< From: " Springer " <katspring@...>

>>

>>Subject: Re: CFIDS Recovery?

>>

>>

>>Hi everybody _

>>

>>

>>I want to provide a note of hope on the " recovery " issue. I am roughly

>>

>>75%-80% back to my old self, and it came about 10 years into CFIDS and about

>>

>>4-5 yrs into FMS. Technically, I'm probably supposed to be in Cheney's third

>>

>>phase. Been on disability since 1995, devoting fulltime (even moving across

>>

>>the country) to healing.

>>

>> >>

>>

>>One thing I have noticed is that many of the PWC's I know who have

>>experienced improvement have moved for environmental reasons (i.e. moved to

>>the mountains, moved to more temperate climates, etc.). I am curious if

>>others know of other such stories. I have contemplated moving again and

>>again because of this fact but wonder if it really does help people. Two of

>>my friend with CFIDS have experienced improvements after making radical

>moves

>>from urban environments to fairly rural ones. What do others think?

>>

>>Peggy

>>

>>>This list is intended for patients to share personal experiences with each

>other, not to give medical advice. If you are interested in any treatment

>discussed here, please consult your doctor.

>>

>>

>

>>This list is intended for patients to share personal experiences with each

>other, not to give medical advice. If you are interested in any treatment

>discussed here, please consult your doctor.

>

[Guest guest]

That may not be such an outrageous thought. I know that here inNew Jersey when

it's damp and humid I feel not just exhausted but awful. How I long for the dry

weather out west from where I moved!

Phil

Peggomatic@... wrote:

> From: Peggomatic@...

>

> In a message dated 12/14/99 5:29:13 AM, onelist writes:

>

> << From: " Springer " <katspring@...>

>

> Subject: Re: CFIDS Recovery?

>

> Hi everybody _

>

> I want to provide a note of hope on the " recovery " issue. I am roughly

>

> 75%-80% back to my old self, and it came about 10 years into CFIDS and about

>

> 4-5 yrs into FMS. Technically, I'm probably supposed to be in Cheney's third

>

> phase. Been on disability since 1995, devoting fulltime (even moving across

>

> the country) to healing.

>

> >>

>

> One thing I have noticed is that many of the PWC's I know who have

> experienced improvement have moved for environmental reasons (i.e. moved to

> the mountains, moved to more temperate climates, etc.). I am curious if

> others know of other such stories. I have contemplated moving again and

> again because of this fact but wonder if it really does help people. Two of

> my friend with CFIDS have experienced improvements after making radical moves

> from urban environments to fairly rural ones. What do others think?

>

> Peggy

>

> > This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

[Guest guest]

In a message dated 12/15/99 4:46:17 AM Eastern Standard Time,

SkariPM@... writes:

> My allergist says that many people improve when they move because they move

>away from lots of things they are allergic to, but after several years in

the new place >they start becomming sensitive to things in their new

surrounding then

> same song, different verse.

Same wording from my Drs...... same logic also with cfs and food, one month

we are allergic and next month we are not, Cheney told my sister in law, she

would have to be retested for her food etc. , I personally just try to see

how i feel after a meal etc., never can tell if i am feeling poorly so I

identify to feeling well or better and then try to stick with whatever I ate,

also I have noticed some can move and it seems it eleviates stress for awhile

which makes them feel better but only to be replaced with other stress once

settled down.

Susy

[Guest guest]

Dear ,

Monteray sounds wonderful, but how in the world did you do that on a

disablilty income?? I'm glad people understand you must do things at your

own pace. This is difficult for most people to understand = even friends

and family. And their expectations often are unreasonable.

I think the worst thing is outright rejection when you don't live up to

others standards. We still can do some things, for heavens sake! - we are

disabled, not dead!

Where I'm coming from here is a friend informed me that I could not visit

her this winter in South because I cannot get up at 7am and go all day as

she can. My attitude was straight until this. We are not islands unto our

selves, but sometimes we almost don't have a choice - esp, with friends

like mine!

Did it help to completely start over? Do you find that people are more

accepting if they know up front that you go on your time and not theirs? I

think of moving constantly, but wonder if it would be different elsewhere.

At any rate, I with you about the mountains, water and temperate climate! I

always feel better in warmer weather and being away from my home. Guess

I'll buy a lottery ticket (right!).

Thank you for writing - you have given some hope!

take care,

Christie

From: " Springer " <katspring@...>

>

>Hi Christie and others -

>

>My move was from NYC to the Monterey Peninsula in CA. Once I got

>disability, I figured my ONLY priority was getting well...Looked for a place

>where the mountains and the sea came together (literally on a map of the US)

>because the energy there supports me - I feel best around the ions of the

>ocean and the heat of the more inland areas.

>

>Secondly, it seemed every moment in NYC was stressful to anyone

>hypersensitive - what energized me in the early years there was terribly

>debilitating - noise, rush, always having to cope with major or minor

>crises. I found a place where there is great physical beauty and quiet

>(which I had to have spiritually in order to heal - I'm near Big Sur and

>Carmel Beach). It's easy to be grateful here for all I have - just watch

>the sunset over the Pacific. Also doesnt cost anything.

>

>I also moved to get away from my family of origin. Many people will

>disagree with this decision. I decided to eliminate every single source of

>stress. The demands of my mother and sisters (even just to go 300miles to

>visit, spend time with their children, etc) were wellmeaning but they dont

>understand that attempting to meet their expectations makes me crash and

>have to work back up again. I couldnt afford it.

>

>My new friends, and the guy I date, know I only do things on my own time. I

>dont talk about CFIDS/FM/visual handicap, etc. I say I am a beach bum -

>earnestly trying to leave my type A personality behind, and " do as little as

>possible. " It's my lifestyle after retiring from NYC.

>