Guest guest Posted December 26, 1999 Report Share Posted December 26, 1999 The recent discussion on ticks/ lyme and the erlichia diseases brings to mind (I have horses) the one I have vaccinated my own horses for. Erlichia risticii aka Potomac horse fever, as the first outbreaks of it originated in the Potomac river valley of land ( in the 70's). This illness in horses has spread to nearly all of the US now, but still is not known how it is transmitted. Its thought to be an insect vector, either fly, tick or mosquito as its more prevalant during the spring and summer months (mosquito season). Am wondering if some of these rickettsial type illnesses are not spread more by mosquitos than ticks as they seem to be everywhere exposing everyone? Potomac horse fever in horses can strike in an area and only a few horses will become ill, many times horses that have never been in contact with one another and the rest of the herd remaining healthy. Wonder if the time of year one becomes ill with CFS in those of us with sudden onset has any significance???? I had sudden onset in June/July. Marcia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 1999 Report Share Posted December 27, 1999 > This illness in horses has spread > to nearly all of the US now, but still is not known how it is > transmitted. Its > thought to be an insect vector, either fly, tick or mosquito " Scientists " make many dogmatic, but completely unfounded, statements about which vectors cause which diseases. The fact is that they want to appear to know more than they do. There is MUCH that is unknown. When I lived in Malaysia, the father of one of my students was one of the world's leading experts on mosquitos. He was doing research, the nature of which he was not able to divulge. I had a very enlightening conversation with him. It was during this time that statements were noised about saying AIDS couldn't be spread by mosquitos. He said this was not proved. He said it was unlikely for many reasons, but that in order to say that AIDS could absolutely not be spread by mosquitos would require experiments testing all species of mosquitos and this research has NOT BEEN DONE. Its interesting that the " experts " make these dogmatic statements based on theory. There are other diseases carried by ticks. There is something called tick-bourne encephalitis that I've been trying unsuccessfully to find info about. What I do know is that that American troops are being experimented on with a tick-bourne encephalitis vaccine. Another tick-bourne disease is Colorado Tick fever (CTF) - which I got in the 70's (and which is NOT limited to Colorado). I can find virtually no info on this disease either (was a miracle the doc figured it out). CTF felt remarkably like CFS and I often wonder if the CTF went into a latent period was reactivated by a triggering event. What I also learned from this mosquito researcher is that there are over 300 different kinds of malaria (and many are spread by species OTHER than the anopholes or ades) and that very little was known about some of the lesser-known forms of malaria. I got a very mild form of malaria while on a trek in the golden triangle. I had what felt alot like CFS and fibro for several months. I also got Dengue fever, which also felt like CFS and fibro for several months. I wonder if these microbes have been reactivated in me. (They supposedly never all die off, but go into latent forms) Since so little is known about the milder forms of malaria and dengue, and since they are so notoriously difficult to detect, I've wondered if these could also be factors in CFS. Especially since we know the military has been developing " weaponized " mosquitos for a long time, and has probably tested them on unwitting citizens (with CFS-like outbreaks near testing areas - see common cause for details) Sorry for the rambling, but there is just too much that is not known about about the diseases that ticks, mosquitos and other vecors carry to make dogmatic statements. Patti -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 1999 Report Share Posted December 27, 1999 I have heard of folks doing well on it also --is it an abx or antiviral? thanks Steve Marcia Grahn wrote: > From: Marcia Grahn <mgrahn@...> > > Skari, M wrote: > > > Since so little is known about the milder forms of > > malaria and dengue, and since they are so notoriously > > difficult to detect, I've wondered if these could also > > be factors in CFS. > > I've wondered this too when many on the list said they do well on Flagyl. Flagyl is an old malaria medication. Flagyl can be a very hard med to tolerate for many, yet some CFSers feel better on > it. I thought that was interesting..... > > Marcia > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 1999 Report Share Posted December 27, 1999 thanks for your thoughtful response, we can discuss some of these issues later. Remember how Darwin pick up a virus on his voyage on the beagle hope I got the name of the ship correct) He suffered from recurring bouts of illness for the rest of his life. Yet he still made a contribution that change the course of intellectual history. Take care Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 1999 Report Share Posted December 27, 1999 > > Since so little is known about the milder forms of > > malaria and dengue, and since they are so notoriously > > difficult to detect, I've wondered if these could also > > be factors in CFS. > > I've wondered this too when many on the list said they do > well on Flagyl. Flagyl is an old malaria medication. Flagyl > can be a very hard med to tolerate for many, yet some CFSers > feel better on > it. I thought that was interesting..... Hmmm, wonder if PWCs do better on quinine? Maybe I better pour myself a gin and tonic and see if I feel better! patti -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 1999 Report Share Posted December 27, 1999 Skari, M wrote: > Since so little is known about the milder forms of > malaria and dengue, and since they are so notoriously > difficult to detect, I've wondered if these could also > be factors in CFS. I've wondered this too when many on the list said they do well on Flagyl. Flagyl is an old malaria medication. Flagyl can be a very hard med to tolerate for many, yet some CFSers feel better on it. I thought that was interesting..... Marcia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 1999 Report Share Posted December 27, 1999 my latest drink is spice run mixed with vanela flavor " soy milk " -- sort of like eggnog good night Steve " Skari, M " wrote: > From: " Skari, M " <SkariPM@...> > > > > Since so little is known about the milder forms of > > > malaria and dengue, and since they are so notoriously > > > difficult to detect, I've wondered if these could also > > > be factors in CFS. > > > > I've wondered this too when many on the list said they do > > well on Flagyl. Flagyl is an old malaria medication. Flagyl > > can be a very hard med to tolerate for many, yet some CFSers > > feel better on > > it. I thought that was interesting..... > > Hmmm, wonder if PWCs do better on quinine? Maybe > I better pour myself a gin and tonic and see if I feel > better! > > patti > -- > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 1999 Report Share Posted December 27, 1999 Dr. Steve wrote: > From: " Dr. Steve " <moores@...> > > I have heard of folks doing well on it also --is it an abx or antiviral? Old abx. It has a warning in my old old PDR that it is carcinogenic in mice and possibly in rats and should not be used unnecessarily or in diseases of the CNS. There are many contraindications and possible reactions.......suggest anyone considering taking it look it up a more current PDR than I've got. Marcia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 1999 Report Share Posted December 27, 1999 Skari, M wrote: > Hmmm, wonder if PWCs do better on quinine? Maybe > I better pour myself a gin and tonic and see if I feel > better! > > patti > -- Where do I sign up for your clinical trials on this treatment???? LOL! Marcia > > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 1999 Report Share Posted December 28, 1999 > >I've wondered this too when many on the list said they do well on Flagyl. Flagyl is an old malaria medication. Flagyl can be a very hard med to tolerate for many, yet some CFSers feel better on >it. I thought that was interesting..... > >Marcia Plaquenil is also a malaria medication but it is used in autoimmune disorders as well. Some PWC feel helped by it (it is supposed to decrease NO) Stania Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 1999 Report Share Posted December 28, 1999 > > >There are other diseases carried by ticks. There is >something called tick-bourne encephalitis that I've >been trying unsuccessfully to find info about. What >I do know is that that American troops are being >experimented on with a tick-bourne encephalitis >vaccine. > Tick bourne encephalitis (tbe) is caused by arbo viruses. There are central-european tbe, Russian spring-summer enc., Scotch louping-ill, horse enc. - american (east, west and venezuela), Japanese enc. ( or Encephalitis B)and Epidemic enc.(Encephalitis A) Hope this could help your research Stania Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 1999 Report Share Posted December 28, 1999 Actually, reading Osler's web ($5 on Amazon!) ... that is one 'interpretation' of the Incline village outbreak... Visitor from Africa ==> visit relatives across US --> ALL of his relatives developed an extremely rare form of cancer [thus infectious cancer issue.... written up in journals] --> one was in the Incline Village area, shortly before its outbreak --> ... seem to recall some indicators with the Incline village patients --> a very poor rural community close by also had an outbreak at the same time.... one of the patients frequented Incline Village.. --> SF (where many visitors to IV came from) had a subsequent large increase in CFS ........ Thus an Africian originating illness for one strain of CFS is protrayed as a reasonable conclusion.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 1999 Report Share Posted December 28, 1999 what is the treatment for tick born E Stanislava MužÃková wrote: > From: " =?iso-8859-1?B?U3RhbmlzbGF2YSBNdZ7ta2924Q==?= " <stanislava.muzikova@...> > > > > > > >There are other diseases carried by ticks. There is > >something called tick-bourne encephalitis that I've > >been trying unsuccessfully to find info about. What > >I do know is that that American troops are being > >experimented on with a tick-bourne encephalitis > >vaccine. > > > Tick bourne encephalitis (tbe) is caused by arbo viruses. There are > central-european tbe, Russian spring-summer enc., Scotch louping-ill, horse > enc. - american (east, west and venezuela), Japanese enc. ( or Encephalitis > B)and Epidemic enc.(Encephalitis A) > Hope this could help your research > Stania > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 1999 Report Share Posted December 28, 1999 Hi, In addition, lyme pts are sometimes given plaqunil (usually used in lupus to slow disease process). However it is an antimalarial - curiouser and curiouser.....! CHristie >Skari, M wrote: > >> Since so little is known about the milder forms of >> malaria and dengue, and since they are so notoriously >> difficult to detect, I've wondered if these could also >> be factors in CFS. > >I've wondered this too when many on the list said they do well on Flagyl. Flagyl is an old malaria medication. Flagyl can be a very hard med to tolerate for many, yet some CFSers feel better on >it. I thought that was interesting..... > >Marcia > >>This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 1999 Report Share Posted December 28, 1999 Hmmm, wonder if PWCs do better on quinine? Maybe I better pour myself a gin and tonic and see if I feel better! patti Sounds like a plan! CHristie At 08:57 PM 12/27/99 -0700, you wrote: >From: " Skari, M " <SkariPM@...> > >> > Since so little is known about the milder forms of >> > malaria and dengue, and since they are so notoriously >> > difficult to detect, I've wondered if these could also >> > be factors in CFS. >> >> I've wondered this too when many on the list said they do >> well on Flagyl. Flagyl is an old malaria medication. Flagyl >> can be a very hard med to tolerate for many, yet some CFSers >> feel better on >> it. I thought that was interesting..... > >Hmmm, wonder if PWCs do better on quinine? Maybe >I better pour myself a gin and tonic and see if I feel >better! > >patti >-- > >>This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 1999 Report Share Posted December 29, 1999 Sorry to say that, but I do not know. The book I have (an old one) says treat symptoms - which are various, mostly neurological. Stania >From: " Dr. Steve " <moores@...> > >what is the treatment for tick born E .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 1999 Report Share Posted December 29, 1999 >Hmmm, wonder if PWCs do better on quinine? Maybe >I better pour myself a gin and tonic and see if I feel >better! >patti > this is mentioned as part of stratton's protocol for chlamydia pneumoniae. not essential, but might help, if i remember right. i think it is without the gin, however. nancym Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 1999 Report Share Posted December 29, 1999 Message text written by INTERNET:onelist >Hmmm, wonder if PWCs do better on quinine? Maybe I better pour myself a gin and tonic and see if I feel better! < Interesting to bring this up. I knew someone who had a terrible back injury Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 1999 Report Share Posted December 29, 1999 Message text written by INTERNET:onelist >Hmmm, wonder if PWCs do better on quinine? Maybe I better pour myself a gin and tonic and see if I feel better! < Interesting to bring this up. I knew someone who had a terrible back injury Quote Link to comment Share on other sites More sharing options...
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