anyone tried this

[Guest guest]

NEW DRUG BENEFITS CFIDS!

Info

A newly approved drug for Parkinson's disease is a real help for PWCs, said Dr.

Jay A. Goldstein. If it continues to be as

useful as the initial PWCs have found it, it could very well join his first five

or six drugs in his treament protocol.

The new class of drug, called catechol-O-methyltransferase inhibitors (COMP),

helps both cognition and energy. You will

know after just one 100-mg pill if this treatment is effective for you. Dr.

Goldstein is now prescribing 100mg. twice daily for

those who find benefits from the medication.

Toleopone, with the common name of Tasmar got USA clearance just this past May.

In Europe, a similar drug is available

called Comtess. It is not as powerful as Tasmar, however. In the U.S., Comtess

is called Comtan. Tasmar is a much more

potent inhibitor of COMT and penetrates better into the brain. There do not seem

to be any adverse side effects from this

medication. The drug has been written up favoribly in the April 25th, 1998

edition of The Lancet (Vol. 351) but of course,

refers only to Parkinsonian patients. You may want to request that your

physician give you a prescription for just one pill to see

if it benefits your energy and cognition.

" Tasmar is more effective (immediately) when combined with a dopamine agonist

such as Requip (quinpirol) or a reversible

inhibitor of monoamine oxidose (RIMA) such as medlobemide, which due to the

wisdom of the FDA, is available in every

industrialized counrty in the world but the USA! When it works, it's quite

energizing, " said Dr. Goldstein.

The following was reported in The National Forum - Summer 1998.

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[Guest guest]

That sounds very interesting coming from DR Goldstein. I spent 2 weeks at

his outpatient facility in Orange CA, and was most impressed with the care he

gave his patients there. Although some might cringe at the thought of trying

50-60 different drugs in a matter of 2 weeks..it sure does cut on the amount

of time wondering if a drug is going to help you and also, when you think

about it, how many drugs have we tried for months at a time that dont help at

all. I consider DR GS a scientist..perhaps a mad one, but non the less a

genius. Although he couldn't help me, he sure tried his best. After the

first week there, I got depressed as he had not found my wonder drug, and I

got in my car and drove across the desert to Las Vegas where I sat in a hotel

room for a week contemplating the worst. Then, DR Goldstein tracked me down

there, and said to me.. " come back, because im not done treating you yet, I

have other ideas..Free of charge! " .

Well to make a long story short, I did go back and on the last day of my

stay, he had narrowed me down to some Alzheimer's drugs..and they were

helping me but I decided not to stay on them at that time. The day I got

home to Fla, I felt probably, 95% well..for about 2 days. Perhaps its a

coincidence, but I doubt it.

Anyway, I'm on ampligen now, and I wouldn't attempt to mix anything with that

right now..but..after my 18 months ends in May, I would try anything that he

thinks may help. I trust him because he is a caring and understanding

physician. He has written several very good books on CFIDS though not for

the layman. One is called " the Limbic response " and it is baffling to the

likes of myself.

DR Goldstein has helped many people who are deemed " incurable " by mainstream

medicine myself have witnessed it at his office. Watched in wonder as

people who have been depressed for 20 years or have had headaches for 15

years non stop, dance around with glee.

One thing he said to me that sticks in my mind is " when we find the right

drug, it will be like a light switch being turned on in your head " .

Anyway, I feel that anything that could help you is worth a try, afterall, is

there anything worse then living in the state that we are in? I think not.

After being on ampligen for one full year now, I have to admit that I am

about ..hmmm...40% better then I was this time last year. That makes me

roughly a 75 on the K scale. Still have the same symptoms, but they are not

progressing into other ones, and..many of them are not nearly as pronounced

as they were for the last 10 years. I can do things that I haven't been able

to do in a long time, without landing right back in bed. Also, my recovery

time is fast when I do get a relapse. But still, 40% is not 100%. And if

the brain fog would go away, and memory return, I would say that I would be

100% better. Even so, I am thankful for what I have been given, and realize

that in time, when they find a definitive cause, the cure will be soon to

follow. Until that time, we must all do what we have to. Of course, just

because it is FDA approved doesnt make it not harmful to us or toxic to some

extent.

Thanks for sending the article along.

[Guest guest]

thanks so much for your feedback and please keep me informed on you progress.

Have you thought of adding ritalin , or neurontin to get your brain back? How

long were you sick before you started

amplegin? Are you able to work.

Back channel me if you like

Steve

[Guest guest]

Dr. GS sounds a lot like Dr Baumzwieger, hes a very good doc but at times

he does remind me of a mad scientist, hes a very good Gulf war doc. One

medicine he put me on was Nimotop, its a calcium channel blocker, it was

impressive, it took away my anxiety, panic attacks, calmed me down in

general, and helped me sleep better.

[Guest guest]

doesn't that work similar klonopin but is very expensive?

green1585@... wrote:

> From: green1585@...

>

> Dr. GS sounds a lot like Dr Baumzwieger, hes a very good doc but at times

> he does remind me of a mad scientist, hes a very good Gulf war doc. One

> medicine he put me on was Nimotop, its a calcium channel blocker, it was

> impressive, it took away my anxiety, panic attacks, calmed me down in

> general, and helped me sleep better.

>

> ---------------------------

[Guest guest]

according to my pill book Klonopin is a benzodiazepine which includes

valium and zanax, which tend to cause drowiness. Nimotop is pretty

expensive, but according to Dr B any calcium channel blocker will work,

he had me on 30mg 4x a day, but I found 1 a day works fine for me, and it

does not cause drowsiness in me. I live right outside StLouis in

Hazelwood.