Guest guest Posted February 26, 2000 Report Share Posted February 26, 2000 >From: E3280S@... > Hi, Your cousin sounds like there is a lot more than CFS going on!! Is she in hospital and is doc taking her seriously?? I hope she gets a real diagnosis... People in MI cannot get gamma at all according to my RHEUM who uses in people with autoimmune disease. This is one thing that sounds like it has potential for many with immune dysjunction, but it is in short supply. People with Mito diseases get it if it is availble and do well on it. Chrisite >My cousin in California has a diagnosis of CFIDS is having a serious problem >with her lungs. She is now on oxygen full time. Are there anyother CFIDS >Patients on oxygen? A friend here in Atlanta is also having very serious >lung and breathing problems. She is the most seriously ill CFIDS patient I >have seen. From year to year, we don't expect her to be here. Her doctor >has to go with her when she has blood drawn for tests. She went into cardiac >arrest in the lab. >And a last question. Is anyone on IV Gamma Globulin? If so, do you have >problems getting the GG? Are you having problems with the insurance company? >liz Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.